2016
DOI: 10.1016/j.jadohealth.2016.03.020
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Ethical Considerations in Recruiting Online and Implementing a Text Messaging–Based HIV Prevention Program With Gay, Bisexual, and Queer Adolescent Males

Abstract: Purpose There is a dearth of HIV prevention/healthy sexuality programs developed for adolescent gay and bisexual males (AGBM) as young as 14 years old, in part because of the myriad ethical concerns. To address this gap, we present our ethics-related experiences implementing Guy2Guy, a text messaging-based HIV prevention/healthy sexuality program, in a randomized controlled trial of 302 14- to 18-year-old sexual minority males. Methods Potential risks and efforts to reduce these risks are discussed within th… Show more

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Cited by 29 publications
(26 citation statements)
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“…Prior studies have found that well-trained staff can be effective in helping adolescents determine if research participation is safe and in their best interest. 49 This suggests that making available an external (i.e., nonstaff) youth advocate for sexual and gender minority adolescents participating in studies involving HIV testing may not be necessary.…”
Section: Resultsmentioning
confidence: 99%
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“…Prior studies have found that well-trained staff can be effective in helping adolescents determine if research participation is safe and in their best interest. 49 This suggests that making available an external (i.e., nonstaff) youth advocate for sexual and gender minority adolescents participating in studies involving HIV testing may not be necessary.…”
Section: Resultsmentioning
confidence: 99%
“…The risk of such outcomes may be minimized by use of research protocols that help protect adolescents’ privacy. For example, as part of the consent process in a text‐messaging HIV prevention study for adolescent men who have sex with men, research staff worked with participants to determine the potential consequences of loss of privacy and to identify potential research activities that could inadvertently compromise confidentiality . The study also provided a “how to” guide that helped participants implement approaches to protecting their privacy in their daily lives, such as creating a password on their phone and clearing their browser history.…”
Section: Discussionmentioning
confidence: 99%
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“…A waiver of parental permission was obtained to prevent youth from needing to disclose their sexual identity to their parents to participate in the study [28,29] . The clinical trial registration number is: NCT02113956.…”
Section: Methodsmentioning
confidence: 99%
“…Researchers and ethical review boards experience several issues related to human subjects’ protections in online and mobile research that are either unique or different from those encountered in traditional research, including issues of informed consent, privacy/confidentiality, data security, and ownership of and access to data [ 19 - 25 ]. In recent years, there has been a substantial increase in the number of scientific papers reviewing the state of science, empirically evaluating or discussing the implications of privacy, security, and confidentiality in online and mobile research [ 17 , 19 , 20 , 22 - 29 ]. Besides risks that offline and online research share, one of the primary forms of risk posed by online and mobile research is that of informational risk [ 20 , 30 ], which is risk that research might lead to unintended creation, tracking, or sharing of data with third parties or interception of data by other audiences [ 23 ].…”
Section: Introductionmentioning
confidence: 99%