Ethnicity and Time to Institutionalization of Dementia Patients: A Comparison of Latina and Caucasian Female Family Caregivers

Mausbach, Brent T.; Coon, David W.; Depp, Colin A.; Rabinowitz, Yaron G.; Wilson-Arias, Esther; Kraemer, Helena C.; Thompson, Larry W.; Lane, Geoffrey W.; Gallagher‐Thompson, Dolores

doi:10.1111/j.1532-5415.2004.52306.x

Cited by 122 publications

(101 citation statements)

References 40 publications

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“…In particular, while we feel comfortable with our sample’s age and gender breakdown, it was overwhelmingly Caucasian and well-educated. A number of studies have suggested that culture contributes a significant influence on the experience and consequences of care giving (40), and examination of caregiver/non-caregiver differences in other ethnic/cultural groups may yield different results than presented in this study.…”

Section: Discussionmentioning

confidence: 60%

A Comparison of Psychosocial Outcomes in Elderly Alzheimer Caregivers and Noncaregivers

Mausbach

Chattillion

Roepke

et al. 2013

The American Journal of Geriatric Psychiatry

Self Cite

124

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Objectives To conduct ananalysis of the stress, coping, and mood consequences of Alzheimer’s caregiving. Design Cross-sectional. Setting Community-based study. Participants Sample included 125 Alzheimer’s caregivers and 60 demographically similar older adults with non-demented spouses (i.e., non-caregivers). Measurements We compared caregivers and non-caregivers on stress, coping, and mood outcomes. We also examined anti-depressant use within the caregiver sample. An emphasis was placed upon effect size differences, including Cohen’s d as well as more clinically meaningful effect sizes. Results Caregivers were significantly more likely to endorse depressive symptoms and to meet clinically significant cutoff for depression (40% for caregivers; 5% for non-caregivers). Approximately 25% of caregivers reported taking anti-depressant medication, although 69% of these continued to experience significant symptoms of depression. Caregivers also utilized fewer positive coping and greater negative coping strategies relative to non-caregivers. Conclusions The number of caregivers will increase dramatically over the next two decades, and caregivers will likely seek care from primary care providers. We provide an overview of the psychological issues facing caregivers so that effective screening and treatment may be recommended.

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Section: Discussionmentioning

confidence: 60%

A Comparison of Psychosocial Outcomes in Elderly Alzheimer Caregivers and Noncaregivers

Mausbach

Chattillion

Roepke

et al. 2013

The American Journal of Geriatric Psychiatry

Self Cite

124

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“…Previous studies have highlighted the challenges of recruiting caregivers into research (Buss et al, 2008;Dilworth-Anderson & Williams, 2004;Gallagher-Thompson et al, 2003). We expected our study to be no different because Latino caregivers tend to use formal services less than other caregiver populations or have less awareness of available services (Crist, Kim, Pasvogel, & Velázquez, 2009;Mausbach et al, 2004), and caregivers in general may not readily identify themselves in this role (American Association of Retired Persons, 2001;O'Connor, 2007). We further expected our inclusion of Spanish-speaking immigrants in the research to further compound our recruitment challenges.…”

Section: Design and Methodsmentioning

confidence: 94%

Recruitment Strategies and Costs Associated With Community-Based Research in a Mexican-Origin Population

Mendez-Luck¹,

Trejo²,

Miranda³

et al. 2011

The Gerontologist

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S94Purpose: We describe the recruitment strategies and personnel and materials costs associated with two community-based research studies in a Mexicanorigin population. We also highlight the role that academic-community partnerships played in the outreach and recruitment process for our studies. We reviewed study documents using case study methodology to categorize recruitment methods, examine community partnerships, and calculate study costs. Results: We employed several recruitment methods to identify and solicit 154 female caregivers for participation in qualitative interviews and quantitative surveys. Recruitment approaches included using flyers and word of mouth, attending health fairs, and partnering with nonprofit communitybased organizations (CBOs) to sponsor targeted recruitment events. Face-to-face contact with community residents and partnerships with CBOs were most effective in enrolling caregivers into the studies. Almost 70% of participants attended a recruitment event sponsored or supported by CBOs. The least effective recruitment strategy was the use of flyers, which resulted in only 7 completed interviews or questionnaires. Time and costs related to carrying out the research varied by study, where personal interviews cost more on a per-participant basis ($1,081) than the questionnaires ($298). However, almost the same amount of time was spent in the community for both studies. Implications: Partnerships with CBOs were critical for reaching the target enrollment for our studies. The relationship between the University of California-Los Angeles (UCLA) Resource Center for Minority Aging Research/Center for Health Improvement for Minority Elderly and the Department of Aging provided the infrastructure for maintaining connections with academic-community partnerships. Nevertheless, building partnerships required time, effort, and resources for both researchers and local organizations.

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“…De otra parte se ratifica que la mayor proporción de cuidadores asisten a sus familiares en el hogar (34). Por el contrario, este estudio muestra diferencias en el tiempo y en especial en la experiencia de los primeros 18 meses de cuidado con respecto a reportes anteriores (7,10).…”

Section: Discussionunclassified

Evaluación de un programa para fortalecer a los cuidadores familiares de enfermos crónicos

Barrera-Ortiz¹,

Pinto-Afanador²,

Sánchez–Herrera³

2006

Rev. salud pública

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RESUMENObjetivo El estudio evaluó la efectividad del programa "Cuidando a los cuidadores", diseñado para fortalecer la habilidad de cuidado de los cuidadores familiares de personas con enfermedad crónica. Métodos Se utilizó un abordaje cuantitativo de tipo cuasiexperimental con grupos de estudio y control y medición de la habilidad de cuidado antes y después de la intervención. Se incluyeron en el estudio 250 cuidadores familiares. Resultados Los resultados incluyen la descripción de cada uno de los grupos de cuidadores estudiados en términos de sexo, edad, relación familiar, tiempo de cuidado y grado de dependencia de la persona cuidada. Presentan los niveles de habilidad de cuidado inicial y final de cada grupo y la comparación entre ellos. Se encontraron en los cuidadores similitudes de género y responsabilidad de cuidar a personas más jóvenes y diferencias en la procedencia, la funcionalidad de las personas cuidadas, la experiencia acumulada y la edad. La habilidad de cuidado fue homogénea en los grupos antes de la intervención, pero diferente en su totalidad y el componente paciencia al finalizar el programa. Discusión Los hallazgos ratifican lo señalado en la literatura sobre distribución de género, edad, asistencia en el hogar y baja habilidad de los cuidadores para responder a la tarea de cuidado de un familiar enfermo crónico. Los resultados permiten sugerir que el programa "Cuidando a los cuidadores" apoya el incremento de habilidades de cuidado y aporta con ello una opción 141

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Ethnicity and Time to Institutionalization of Dementia Patients: A Comparison of Latina and Caucasian Female Family Caregivers

Cited by 122 publications

References 40 publications

A Comparison of Psychosocial Outcomes in Elderly Alzheimer Caregivers and Noncaregivers

A Comparison of Psychosocial Outcomes in Elderly Alzheimer Caregivers and Noncaregivers

Recruitment Strategies and Costs Associated With Community-Based Research in a Mexican-Origin Population

Evaluación de un programa para fortalecer a los cuidadores familiares de enfermos crónicos

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