European Society of Cardiology quality indicators for the care and outcomes of adults with heart failure. Developed by the Working Group for Heart Failure Quality Indicators in collaboration with the Heart Failure Association of the European Society of Cardiology

Aktaa, Suleman; Polovina, Marija; Rosano, Giuseppe; Abdin, Amr; Anguita, Manuel; Lainščak, Mitja; Lund, Lars H.; McDonagh, Theresa A.; Metra, Marco; Mindham, Richard; Piepoli, Massimo F; Störk, Stefan; Tokmakova, Mariya; Seferović, Petar; Gale, Chris P; Coats, Andrew J.S.

doi:10.1002/ejhf.2371

Cited by 41 publications

(54 citation statements)

References 41 publications

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“…In another study, the education levels of HF patients and caregivers were not correlated with readmission or mortality rates [ 14 ]. In the self-care measures evaluated, we only observed differences in relation to water restriction, which were in favor of patients with HF with caregivers, but we did not evaluate other measures recommended by clinical practice guidelines, such as self-adjustment of diuretics and monitoring of alarm signs [ 15 ].…”

Section: Discussionmentioning

confidence: 99%

Clinical Characteristics and Prognostic Relevance of Different Types of Caregivers for Elderly Patients with Acute Heart Failure—Analysis from the RICA Registry

Méndez‐Bailón

Lorenzo-Villalba

Rubio-Garcia

et al. 2022

JCM

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Background: Patients with heart failure encompass a heterogeneous group, but they are mostly elderly patients with a large burden of comorbid conditions. Objective: The aim of this study was to compare the clinical characteristics and the prognostic impact on hospital admissions and mortality in a population of patients with HF with different types of caregivers (family members, professionals, and the patient himself). Methods: We conducted an observational study from a prospective registry. Patients from the National Registry of Heart Failure (RICA), which belongs to the Working Group on Heart Failure and Atrial Fibrillation of the Spanish Society of Internal Medicine (SEMI), were included. Patients with heart failure were classified, according to the type of main caregiver, into four groups: the patient himself/herself, a partner, children, or a professional caregiver. A bivariable analysis was performed between the clinical, analytical, therapeutic, and prognostic characteristics of the different groups. The endpoints of the study were all-cause mortality at 1 year; mortality at 120 days; and the readmission rate for HF at 30 days, 120 days, and 1 year of follow-up. In all cases, the level of statistical significance was set at p < 0.05. Results: A total of 2147 patients were enrolled in this study; women represented 52.4%, and the mean age was 81 years. The partner was the caregiver for 703 patients, children were caregivers for 1097 patients, 199 patients had a professional caregiver, and only 148 patients were their own caregivers. Women were more frequently cared for by their children (65.8%) or a professional caregiver (61.8%); men were more frequently cared for by their spouses (68.7%) and more frequently served as their own caregivers (59.5%) (p < 0.001). No statistically significant differences were observed in relation to readmissions or mortality at one year of follow-up between the different groups. A lower probability of readmission and death was observed for patients who received care from a partner or children/relative, with log-rank scores of 11.2 with p= 0.010 and 10.8 with p = 0.013. Conclusions: Our study showed that the presence of a family caregiver for elderly patients with heart failure was associated with a lower readmission rate and a lower mortality rate at 120 days of follow-up. Our study also demonstrated that elderly patients with good cognitive and functional status can be their own caregivers, as they obtained good health outcomes in terms of readmission and mortality. More prospective studies and clinical trials are needed to evaluate the impact of different types of caregivers on the outcomes of patients with heart failure.

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Section: Discussionmentioning

confidence: 99%

Clinical Characteristics and Prognostic Relevance of Different Types of Caregivers for Elderly Patients with Acute Heart Failure—Analysis from the RICA Registry

Méndez‐Bailón

Lorenzo-Villalba

Rubio-Garcia

et al. 2022

JCM

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“…In addition, the Registry Technology group integrated the specifications that are needed for the calculation of the ESC quality indicators for HF on the EuroHeart IT platform. 9…”

Section: Methodsmentioning

confidence: 99%

“…We also reviewed the data dictionaries of existing HF registries, as well as HF quality indicators and guidelines. [8][9][10] Following the literature search, a 'long-list' of candidate HF variables was identified for potential inclusion in the EuroHeart-HF dataset.…”

Section: Systematic Literature Reviewmentioning

confidence: 99%

“…cardiac rehabilitation, HF clinics) in the management of HF and, after hospital discharge, early follow-up with a healthcare professional. 8,27 Recently, these aspects of care have been proposed as ESC quality indicators for HF 9 and are thus included as Level 1 variables (see Supplementary material online, Table S1). Less well-established assessments (e.g.…”

Section: Domain 8: Discharge Detailsmentioning

confidence: 99%

“…This domain forms the basis for the evaluation of performance and the assessment of adherence to the 2021 ESC Clinical Practice Guidelines and 2021 ESC quality indicators for HF. 8,9 As such, for medications known to improve outcomes in patients with HF of any clinical type, data are collected not only about the class of the drug prescribed, but also about the generic name and the dose, recognizing that titration of medication may be incomplete at the time of discharge (from clinic or hospital) (see Supplementary material online, Table S1). 8,9 These variables may also be of an importance for evaluating the changes in care and outcomes over time.…”

Section: Domain 9: Discharge/post-encounter Medicationsmentioning

confidence: 99%

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Data standards for heart failure: the European Unified Registries for Heart Care Evaluation and Randomized Trials (EuroHeart)

Aktaa

Batra

Cleland

et al. 2022

European Heart Journal

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Standardized data definitions are essential for assessing the quality of care and patient outcomes in observational studies and randomized controlled trials. The European Unified Registries for Heart Care Evaluation and Randomized Trials (EuroHeart) project of the European Society of Cardiology (ESC) aims to create contemporary pan-European data standards for cardiovascular diseases, including heart failure (HF). We followed the EuroHeart methodology for cardiovascular data standard development. A Working Group including experts in HF registries, representatives from the Heart Failure Association of the ESC, and the EuroHeart was formed. Using Embase and Medline (2016–21), we conducted a systematic review of the literature on data standards, registries, and trials to identify variables pertinent to HF. A modified Delphi method was used to reach a consensus on the final set of variables. For each variable, the Working Group developed data definitions and agreed on whether it was mandatory (Level 1) or additional (Level 2). In total, 84 Level 1 and 79 Level 2 variables were selected for nine domains of HF care. These variables were reviewed by an international Reference Group with the Level 1 variables providing the dataset for registration of patients with HF on the EuroHeart IT platform. By means of a structured process and interaction with international stakeholders, harmonized data standards for HF have been developed. In the context of the EuroHeart, this will facilitate quality improvement, international observational research, registry-based randomized trials, and post-marketing surveillance of devices and pharmacotherapies across Europe.

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Randomized Pilot Trial of Pre‐ and Postoperative Heart Failure Nurse‐Supported Care in Heart Failure Patients Requiring Noncardiac Surgery—Feasibility and Results

Herrmann,

Raghavan,

Tekeste

et al. 2024

Clinical Cardiology

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IntroductionThe perioperative cardiovascular management of patients undergoing noncardiac surgery is particularly challenging in those with pre‐existing heart failure (HF). This study was designed to evaluate the effectiveness of nurse‐based pre‐ and postoperative specialized HF management in reducing postoperative HF‐associated complications in patients with known HF undergoing noncardiac surgery.MethodsThis prospective, randomized pilot study included patients with established HF requiring intermediate‐ to high‐risk noncardiac surgery. Patients received postoperatively either standard care (control group, CG) or nurse‐supported HF management (intervention group, IG). The primary endpoint was a composite of HF‐related postoperative complications at 30 days. Secondary endpoints included length on intensive care unit, length of hospital stay, death, hospitalization for HF, and quality of life assessment using the SF‐12 questionnaire.ResultsThe trial was halted prematurely for futility. A total of 34 patients (median age 70.5 [IQR 67–75] years; with 15 HfpEF, 9 HfmrEF,10 HfrEF), with an average NT‐proBNP of 1.413 [463–2.832] pg/mL were included. The IG had a lower rate of postoperative primary events (25%; n = 4) compared with the CG (33%; n = 6). There were no differences in secondary endpoints between the groups. Quality‐of‐life scores improved slightly in both groups (δ 5.6 ± 0.9 [CG] and 3.1 ± 1.2 [IG]).ConclusionNurse‐based pre‐ and postoperative HF care appears to be feasible and may reduce HF‐associated complications in patients undergoing noncardiac surgery. Larger clinical trials are needed to further evaluate the effectiveness of this approach in reducing postoperative complications in this high‐risk patient population.

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European Society of Cardiology quality indicators for the care and outcomes of adults with heart failure. Developed by the Working Group for Heart Failure Quality Indicators in collaboration with the Heart Failure Association of the European Society of Cardiology

Abstract: To develop a suite of quality indicators (QIs) for the evaluation of the quality of care for adults with heart failure (HF).

Cited by 41 publications

References 41 publications

Clinical Characteristics and Prognostic Relevance of Different Types of Caregivers for Elderly Patients with Acute Heart Failure—Analysis from the RICA Registry

Clinical Characteristics and Prognostic Relevance of Different Types of Caregivers for Elderly Patients with Acute Heart Failure—Analysis from the RICA Registry

Data standards for heart failure: the European Unified Registries for Heart Care Evaluation and Randomized Trials (EuroHeart)

Randomized Pilot Trial of Pre‐ and Postoperative Heart Failure Nurse‐Supported Care in Heart Failure Patients Requiring Noncardiac Surgery—Feasibility and Results

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