Evaluating a model of caregiving for people with psychosis

Joyce, John; Leese, Morven; Kuipers, Elizabeth; Szmukler, George; Harris, Tirril; Staples, E

doi:10.1007/s00127-003-0618-3

Cited by 52 publications

(40 citation statements)

References 20 publications

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“…A range of background factors may also shape adjustment to caregiving including carer, CR, and caregiving context variables. The few studies on mental health carers that have been guided by stress/coping theory have not closely linked their theoretical constructs with the original theory and/or have examined only relations between adjustment and one or two stress/coping components (e.g., Joyce et al, 2003). We could find no published longitudinal study that had examined all key components of the stress/coping framework in predicting variations in carer adjustment to mental health caregiving in both positive and negative adjustment domains.…”

Section: Stress and Coping Theorymentioning

confidence: 84%

Identification of stress and coping risk and protective factors associated with changes in adjustment to caring for an adult with mental illness

Mackay

Pakenham

2011

J Clin Psychol

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There is a paucity of theory guided longitudinal research into how carers of an adult with mental illness adapt to caregiving. This study examined changes in carer adjustment over 12 months and identified risk and protective factors using stress/coping theory. Eighty-seven carers completed questionnaires at Time 1 and 12 months later (Time 2). The risk/protective factors were background variables, coping resources, appraisals, and coping strategies. Adjustment outcomes were stable over 12 months. Stress/coping variables were associated with one or more Time 2 adjustment outcomes when controlling for initial adjustment and the direction of these associations were consistent with predictions. Findings support the application of stress/coping theory to guide identification of modifiable risk and protective factors associated with caregiver adjustment.

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Section: Stress and Coping Theorymentioning

confidence: 84%

Identification of stress and coping risk and protective factors associated with changes in adjustment to caring for an adult with mental illness

Mackay

Pakenham

2011

J Clin Psychol

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“…Currently, no eating disorder model takes into account informal social support (such as friends and family members) as a predictor of burden or distress. However, research examining schizophrenia carers has shown that informal social support predicts a positive caregiving experience [42] and those who lack social support use more ineffective coping strategies and have a more negative appraisal of the caring situation [43]. Further, satisfaction with social support significantly predicts distress, positive affect and satisfaction with life in young carers [30].…”

Section: Discussionmentioning

confidence: 99%

Coping strategies and social support as predictors and mediators of eating disorder carer burden and psychological distress

Coomber

King

2011

Soc Psychiatry Psychiatr Epidemiol

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“…4 Many other organizations provide excellent resources about mental health/illness, recovery, empowerment and advocacy although they are not focused on assisting family members specifically. These include Mental Health America (http://www.nmha.org, formerly the and Draine 1995; Noh and Turner 1987;Joyce et al 2003). These mediating conditions can include the individual's cognitive style, coping skills, and personality, plus other external stressors and resources (Kramer 1993).…”

Section: Family Members and Professional Helpmentioning

confidence: 97%

Benefits and Changes for Family to Family Graduates

Lucksted

Stewart

Forbes

2008

American J of Comm Psychol

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Family members of people with serious mental illnesses (SMI) need information and support to cope with the considerable stresses they experience. The Family to Family Education Program (FtF) is a structured, peer-led, 12-week information and support self-help class for such individuals. Previous research by Dixon et al. (2004) shows reduced subjective burden and increased empowerment among graduates. The present study sought to understand what processes take place during FtF participation that might lead to these benefits, as a first step in building a conceptual model of how FtF causes its effects, using semi-structured interviews with 31 FtF graduates. Qualitative data analysis suggested that new factual and emotional information from FtF shifts interviewees' understanding of their situation and that skills acquired through FtF then allow participants to incorporate these new perspectives into more adaptive behaviors. These changes led to both proximal and distal benefits for the FtF participants interviewed. The results are discussed in the context of self-help, stress-and-coping, and trauma recovery theories.

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Evaluating a model of caregiving for people with psychosis

Abstract: The findings provide some support for an interactive, stress-coping model of caregiving in psychosis. Effective coping in caregivers may improve with support from confidants. Carer distress may not change while caregiving continues.

Cited by 52 publications

References 20 publications

Identification of stress and coping risk and protective factors associated with changes in adjustment to caring for an adult with mental illness

Identification of stress and coping risk and protective factors associated with changes in adjustment to caring for an adult with mental illness

Coping strategies and social support as predictors and mediators of eating disorder carer burden and psychological distress

Benefits and Changes for Family to Family Graduates

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