Evaluation of a prenatal screening decision aid: A mixed methods pilot study

Agbadjé, Titilayo Tatiana; Rahimi, Samira Abbasgholizadeh; Côté, Mélissa; Tremblay, A.; Diallo, Mariama Penda; Elidor, Hélène; Herron, Alex Poulin; Djade, Codjo Djignefa

doi:10.1016/j.pec.2021.05.025

Cited by 8 publications

(4 citation statements)

References 42 publications

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“…Third, lack of information about options and confusion due to information overload were the most frequently reported obstacles for older adults and their caregivers facing difficult decisions. This apparent contradiction between lack of information and information overload has been noted in earlier studies (Agbadje et al, 2021) and points to the need for more refined decision aids, especially for older adults in home care, that will better meet their information needs and those of their caregivers. These findings add to the extensive body of literature on decision‐making needs (Hoefel et al, 2020, Poitras et al, 2020) that has been driving the recent rapid development of decision aids.…”

Section: Discussionmentioning

confidence: 86%

Home care providers' perceptions of shared decision‐making with older clients (and their caregivers): A cross‐sectional study

Lai

Holyoke²,

Plourde

et al. 2022

Nursing & Health Sciences

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Interprofessional care teams can play a key role in supporting older adults (and caregivers) in making informed health decisions, yet shared decision making is not widely practiced in home care. Based on an earlier needs assessment with older adults (and caregivers) with home care experience, we aimed to explore the perceptions of home care teams on the decisions facing their clients and their perceived involvement in shared decision making. A cross‐sectional study was conducted with 614 home care providers (nurses, personal support workers, rehabilitation professionals) in three Canadian provinces (Quebec, Ontario, and Alberta). Home care providers considered the decision “to stay at home or move” as the most difficult for older adults. Those most frequently involved in decision making with older adults were family members and least involved were physicians. Although all home care providers reported high levels of shared decision‐making, we detected an effect of respondent's discipline on self‐perceived shared decision‐making; nurses and rehabilitation professionals reported significantly higher levels of shared decision making than personal support workers. A more tailored approach is required to support shared decision making in interprofessional care teams.

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Section: Discussionmentioning

confidence: 86%

Home care providers' perceptions of shared decision‐making with older clients (and their caregivers): A cross‐sectional study

Lai

Holyoke²,

Plourde

et al. 2022

Nursing & Health Sciences

Self Cite

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“…The majority (69%) thought the amount of information was “just right,” yet some (7%) would have wanted more, and 24% would have wanted less. The amount of information included in a decision aid is challenging for developers, as users typically desire as much information as possible in a straightforward format [ 29 , 30 ]. Ninety-three (93) percent thought the decision aid was good or very good, and 100% were either likely or very likely to recommend it to others.…”

Section: Discussionmentioning

confidence: 99%

Evaluation of a French adaptation of a community-based advance serious illness planning decision aid

Plaisance

Mallmes

Kamateros³

et al. 2023

PEC Innovation

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“…Second, the study participants had difficulty in both using the values clarification questionnaire and interpreting the results. In a previous study evaluating an earlier, paper-based version of this DA [ 22 ], participants also had difficulty using a values clarification exercise with 5 rating stars, with 1 meaning “not important” and 5 meaning “very important” [ 40 ]. This suggests that we explore values clarification methods that simply offer users options without asking them to measure their importance to them on a scale (ie, users choose the elements they wish to consider before deciding whether to do the test).…”

Section: Discussionmentioning

confidence: 99%

“…On the basis of a validated paper-based DA [ 22 ], the computer-based DA was developed and tested by the project leader and 2 professionals from Greybox Solutions Inc. It is available on their platform [ 16 ].…”

Section: Methodsmentioning

confidence: 99%

User Experience of a Computer-Based Decision Aid for Prenatal Trisomy Screening: Mixed Methods Explanatory Study

Agbadjé¹,

Pilon²,

Bérubé³

et al. 2022

JMIR Pediatr Parent

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Background Mobile health tools can support shared decision-making. We developed a computer-based decision aid (DA) to help pregnant women and their partners make informed, value-congruent decisions regarding prenatal screening for trisomy. Objective This study aims to assess the usability and usefulness of computer-based DA among pregnant women, clinicians, and policy makers. Methods For this mixed methods sequential explanatory study, we planned to recruit a convenience sample of 45 pregnant women, 45 clinicians from 3 clinical sites, and 15 policy makers. Eligible women were aged >18 years and >16 weeks pregnant or had recently given birth. Eligible clinicians and policy makers were involved in prenatal care. We asked the participants to navigate a computer-based DA. We asked the women about the usefulness of the DA and their self-confidence in decision-making. We asked all participants about usability, quality, acceptability, satisfaction with the content of the DA, and collected sociodemographic data. We explored participants’ reactions to the computer-based DA and solicited suggestions. Our interview guide was based on the Mobile App Rating Scale. We performed descriptive analyses of the quantitative data and thematic deductive and inductive analyses of the qualitative data for each participant category. Results A total of 45 pregnant women, 14 clinicians, and 8 policy makers participated. Most pregnant women were aged between 25 and 34 years (34/45, 75%) and White (42/45, 94%). Most clinicians were aged between 35 and 44 years (5/14, 36%) and women (11/14, 79%), and all were White (14/14, 100%); the largest proportion of policy makers was aged between 45 and 54 years (4/8, 50%), women (5/8, 62%), and White (8/8, 100%). The mean usefulness score for preparing for decision-making for women was 80/100 (SD 13), and the mean self-efficacy score was 88/100 (SD 11). The mean usability score was 84/100 (SD 14) for pregnant women, 77/100 (SD 14) for clinicians, and 79/100 (SD 23) for policy makers. The mean global score for quality was 80/100 (SD 9) for pregnant women, 72/100 (SD 12) for clinicians, and 80/100 (SD 9) for policy makers. Regarding acceptability, participants found the amount of information just right (52/66, 79%), balanced (58/66, 88%), useful (38/66, 58%), and sufficient (50/66, 76%). The mean satisfaction score with the content was 84/100 (SD 13) for pregnant women, 73/100 (SD 16) for clinicians, and 73/100 (SD 20) for policy makers. Participants thought the DA could be more engaging (eg, more customizable) and suggested strategies for implementation, such as incorporating it into clinical guidelines. Conclusions Pregnant women, clinicians, and policy makers found the DA usable and useful. The next steps are to incorporate user suggestions for improving engagement and implementing the computer-based DA in clinical practice.

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Evaluation of a prenatal screening decision aid: A mixed methods pilot study

Cited by 8 publications

References 42 publications

Home care providers' perceptions of shared decision‐making with older clients (and their caregivers): A cross‐sectional study

Home care providers' perceptions of shared decision‐making with older clients (and their caregivers): A cross‐sectional study

Evaluation of a French adaptation of a community-based advance serious illness planning decision aid

User Experience of a Computer-Based Decision Aid for Prenatal Trisomy Screening: Mixed Methods Explanatory Study

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