Evaluation of an instrument to assess the needs of men diagnosed with prostate carcinoma

Abstract

BACKGROUNDThis study was conducted to evaluate a self‐administered questionnaire developed to measure the needs experienced by men diagnosed with prostate carcinoma (the Prostate Cancer Needs Questionnaire [PCNQv1.1]). The PCNQv1.1 was constructed in two parts. Part 1 measures the needs at diagnosis and initial treatment and Part 2 measures current needs.METHODSA random sample of 650 men diagnosed with prostate carcinoma who were being treated by a urologist of the Hunter Urology Group in Newcastle, New South Wales, Australia, were invited to participate in the study. They were sent by post the self‐administered PCNQv1.1. Completed questionnaires were received from 385 men. Information provided on 100 additional men was considered ineligible.RESULTSThe principal components method of factor analysis with varimax orthogonal rotation identified eight factors with eigenvalues greater than 1, which accounted for 61.7% of the variance in Part 1 of the PCNQv1.1. Likewise, six factors were identified in Part 2, which accounted for 63.5% of the variance. Internal reliability coefficients (Cronbach alpha) were adequate for identified factors with values ranging from 0.70 to 0.88 for Part 1 and from 0.71 to 0.87 for Part 2. Test‐retest reliability was acceptable with intraclass correlation coefficients ranging from 0.61 to 0.78 for Part 1 and from 0.60 to 0.82 for Part 2.CONCLUSIONSThese results suggest that the PCNQv1.1 is a valid and reliable instrument to assess the needs experienced by men diagnosed with prostate carcinoma. Cancer 2003;97:993–1001. © 2003 American Cancer Society.DOI 10.1002/cncr.11156

Assessing unmet needs in advanced cancer patients: a systematic review of the development, content, and quality of available instruments

“…Eight were 'advanced cancer' instruments (Needs Assessment for Advanced Cancer Patients (NA-ACP) [17]; Needs Assessment for Advanced Lung Cancer Patients (NA-ALCP) [20]; Problems and Needs in Palliative Care Questionnaire (PNPC) [21]; Problems and Needs in Palliative Care Questionnaire-short version (PNPC-sv) [22]; Screen for Palliative and End-of-Life Care Needs in the Emergency Department (SPEED) [23]; Three Levels of Needs Questionnaire (3LNQ) [24]; name not given (Ndiok) [25]; Palliative Care Needs Assessment-English/Arabic Versions (PCNA-EAV) [26]). Fourteen were 'all stage cancer' instruments validated in a sample that included people with advanced cancer (Cancer Needs Distress Inventory (CaNDI) [27]; Comprehensive Needs Assessment Tool in Cancer (CNAT) [28,29]; Psychosocial Needs Inventory (PNI) [30]; Electronic Holistic Needs Assessment (eHNA) [31]; 34-item Supportive Care Needs Survey (SCNS-SF34) [32]; Supportive Care Needs Assessment Tool for Indigenous People (SCNAT-IP) [33,34]; Supportive Care Needs Survey-9-item Screening Tool (SCNS-ST9) [35]; 59-item Supportive Care Needs Survey (SCNS-LF59) [36]; Needs Evaluation Questionnaire (NEQ) [37][38][39]; Cancer Needs Q u e s t i o n n a i r e -S h o r t F o r m ( C N Q -s f ) [ 4 0 ] ; CancerSupportSource (CSS-25) [41,42]; Bladder Cancer Needs Assessment Survey (BCNAS-32) [43]; Prostate Cancer Needs Questionnaire Version 2 (PCNQ V2) [44,45]; You, Your family, and City of Hope are a team (YYFcore03) [46]). From these 14, 12 instruments were developed in a mixed sample of cancers, while the BCNAS-32 [43] and PCNQ V2 [45] were specifically developed for bladder and prostate cancer, respectively (Online Resource 6).…”

“…Fourteen were 'all stage cancer' instruments validated in a sample that included people with advanced cancer (Cancer Needs Distress Inventory (CaNDI) [27]; Comprehensive Needs Assessment Tool in Cancer (CNAT) [28,29]; Psychosocial Needs Inventory (PNI) [30]; Electronic Holistic Needs Assessment (eHNA) [31]; 34-item Supportive Care Needs Survey (SCNS-SF34) [32]; Supportive Care Needs Assessment Tool for Indigenous People (SCNAT-IP) [33,34]; Supportive Care Needs Survey-9-item Screening Tool (SCNS-ST9) [35]; 59-item Supportive Care Needs Survey (SCNS-LF59) [36]; Needs Evaluation Questionnaire (NEQ) [37][38][39]; Cancer Needs Q u e s t i o n n a i r e -S h o r t F o r m ( C N Q -s f ) [ 4 0 ] ; CancerSupportSource (CSS-25) [41,42]; Bladder Cancer Needs Assessment Survey (BCNAS-32) [43]; Prostate Cancer Needs Questionnaire Version 2 (PCNQ V2) [44,45]; You, Your family, and City of Hope are a team (YYFcore03) [46]). From these 14, 12 instruments were developed in a mixed sample of cancers, while the BCNAS-32 [43] and PCNQ V2 [45] were specifically developed for bladder and prostate cancer, respectively (Online Resource 6). Eight instruments were developed in Australia [17,20,32,33,35,36,40,44], five in the USA [23,27,41,43,46], three in the UK [19,30,31], two in Netherlands [21,…”

The Development and Validation of the Psychological Needs of Cancer Patients Scale

“…Since then, a range of tools have been developed to assess the needs of patients with cancer. The purpose and population of these studies vary a lot: some were proposed as specific to advanced stage of disease, clinical setting, or survivors, and some were targeted particular diagnoses (e.g., lung cancers) ( Duke et al, 2003 ; Hodgkinson et al, 2007 ; Ahmed et al, 2011 ; Richards et al, 2011 ). Among then, a number of instruments were developed to assess multiple needs of general population, such as the Supportive Care Needs Survey (SCNS) and its short form (SCNS-SF34), the Cancer Rehabilitation Evaluation System (CARES), the Supportive Needs Screening Tool (SNST) ( Bonevski et al, 2000 ; Boyes et al, 2009 ; Pigott et al, 2009 ; Johnsen et al, 2011 ).…”

Factors affecting supportive needs in hemodialysis patients: A literature review

“…[ 8 ] Also, the assessment of the patient's need, allowing direct indication of resources, is required. [ 9 ]…”

“…There are numerous studies on the explanation of supportive needs in chronic patients but most of them are focusing on cancer. [ 9 10 ]…”