Evaluation of Cancer 101: An Educational Program for Native Settings

Hill, Teresa Garrett; Briant, Katherine J.; Bowen, Deborah J.; Boerner, Verné; Vu, Thuy; Lopez, Kerri; Vinson, Éric

doi:10.1007/s13187-010-0046-5

Cited by 17 publications

(27 citation statements)

References 2 publications

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“…For instance, the Cancer 101 biospecimen banking module is currently being piloted tested at 11 CDRN sites. In addition, a communication tool intended to facilitate conversation between clinical trial recruiters and research is currently undergoing cognitive testing and will be pilot tested at several CDRN sites [25]. Moving forward, paradigm shifts are required to overcome the traditional barriers of funding, collaboration, and standardization.…”

Section: Discussionmentioning

confidence: 99%

Improving Diversity in Cancer Research Trials: The Story of the Cancer Disparities Research Network

et al. 2014

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The participation of racial and ethnic minorities and underserved populations in clinical trials is a critical link between scientific innovation and improvements in health care delivery and health outcomes. However, these population groups continue to be underrepresented in research. We describe the development of the Cancer Disparities Research Network (CDRN) to improve minority and underserved populations’ participation in biobanking research. Between February – October 2011, we conducted a regional assessment to identify challenges and opportunities for cancer trials and biobanking research across the CDRN. Representatives from ten CDRN biorepository facilities completed an online survey assessing their facilities’ minority biospecimen collection, biobanking practices, and education/outreach initiatives. Representatives of eight facilities also participated in stakeholder interviews. The majority (70%) of facilities reported that specimens were available for research, although only one-tenth of these specimens were from non-White patients. Most facilities collected a patient’s age, gender, race, medical history, and ethnicity with samples; however, less than half also collected family health history, education level, household income, or primary language spoken. In addition, few institutions collected Asian or Hispanic subgroup information. Only a few reported biospecimen collection outreach programs specifically targeting minority and underserved populations. Biospecimen directors and administrators indicated that funding, biospecimen sharing procedures, and standardization barriers limited their facilities from collaborating in biospecimen collection programs, despite their great interest. These findings suggest that the CDRN can provide opportunities for collaboration, resource sharing, and the fostering of research ideas to address cancer disparities in biospecimen research.

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Section: Discussionmentioning

confidence: 99%

Improving Diversity in Cancer Research Trials: The Story of the Cancer Disparities Research Network

et al. 2014

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“…Cancer 101 is an evidence-based, evaluated education tool that was created in 2002 through a collaboration between the Spirit of EAGLES Community Networks Program, the Northwest Portland Area Indian Health Board’s Northwest Tribal Cancer Control Project, and the former NCI’s Cancer Information Service – Northwest Region to increase understanding about cancer within Northwest tribal communities. (Hill et al, 2010) The Cancer 101 curriculum is based on Social Cognitive Theory. By providing trainings to community members, Cancer 101 trainers help participants build self-efficacy around cancer knowledge and attitudes, and then set behavioral goals to modify risk factors for cancer so that they can work to change behaviors.…”

Section: Methodsmentioning

confidence: 99%

Enhancing Biospecimen Knowledge Among Health Care Providers and Representatives From Community Organizations

Tham

Hohl

Copeland

et al. 2016

Health Promotion Practice

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In a personalized medicine environment, it is necessary to have access to a range of biospecimens to establish optimal plans for disease diagnosis and treatment for individual patients. Cancer research is especially dependent on biospecimens for determining ideal personalized treatment for patients. Unfortunately, the vast majority of biospecimens are collected from non-Hispanic white (NHW) individuals; thus, minority representation is lacking. This has negative implications for comprehensive cancer treatment. GMaP Region 6 implemented a series of biospecimen education seminars adapted from the Biospecimen and Biobanking module of an existing Cancer Education and Training Program. Regional GMaP partners participated in a train-the-trainer webinar to familiarize themselves with the training materials. Participants trained by the trainers completed pre- and post-tests to document changes in awareness, knowledge, and intention. Nine biospecimen education seminars were offered in 2013; 255 healthcare professionals and representatives from community organizations attended. Participants demonstrated a significant increase in knowledge, intention to donate samples, and intention to talk to patients about biospecimen sample donation. Representatives from community organizations had more improvement on knowledge scores than health care providers. Participation in a well-designed biospecimen education program may ameliorate some of the distrust of biomedical research experienced by racial/ethnic minorities and, in turn, increase needed minority representation in biospecimen collection.

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“…Needs expressed by CDRN researchers, clinicians, pathologists, administrators, recruiters, and community health educators, along with a community education program [20] and an exhaustive literature review of research literacy among the general public overall and underrepresented populations in particular, resulted in the decision to develop a research communication tool [18]. Objectives were identified for the tool and included: (1) increasing research literacy among potential participants, and (2) facilitating dialogue between clinical trial recruiters and potential research participants.…”

Section: Methodsmentioning

confidence: 99%

The Development of a Communication Tool to Facilitate the Cancer Trial Recruitment Process and Increase Research Literacy among Underrepresented Populations

et al. 2015

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Despite increasing need to boost the recruitment of underrepresented populations into cancer trials and biobanking research, few tools exist for facilitating dialogue between researchers and potential research participants during the recruitment process. In this paper, we describe the initial processes of a user-centered design cycle to create a standardized research communication tool prototype for enhancing research literacy among individuals from underrepresented populations considering enrollment in cancer research and biobanking studies. We present qualitative feedback and recommendations on the prototype's design and content from potential end users: five clinical trial recruiters and ten potential research participants recruited from an academic medical center. Participants were given the prototype (a set of laminated cards) and were asked to provide feedback about the tool's content, design elements, and word choices during semi-structured, in-person interviews. Results suggest that the prototype was well received by recruiters and patients alike. They favored the simplicity, lay language, and layout of the cards. They also noted areas for improvement, leading to card refinements that included: addressing additional topic areas, clarifying research processes, increasing the number of diverse images, and using alternative word choices. Our process for refining user interfaces and iterating content in early phases of design may inform future efforts to develop tools for use in clinical research or biobanking studies to increase research literacy.

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Evaluation of Cancer 101: An Educational Program for Native Settings

Cited by 17 publications

References 2 publications

Improving Diversity in Cancer Research Trials: The Story of the Cancer Disparities Research Network

Improving Diversity in Cancer Research Trials: The Story of the Cancer Disparities Research Network

Enhancing Biospecimen Knowledge Among Health Care Providers and Representatives From Community Organizations

The Development of a Communication Tool to Facilitate the Cancer Trial Recruitment Process and Increase Research Literacy among Underrepresented Populations

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