Evaluation of function, disability and participation of patients with motor neuron disease

Abstract

Aims: To objective the symptoms and estimate the necessity of technical or social aid as well as to receive parameters for treatment, this evaluation was carried out. The aim is the preparation of core sets for patients with motor neuron diseases. Methods: Data sources were found in PubMed: published in the last 50 years; Languages: German and English. After a systematic literature review, two independent reviewers scored the significance of the published studies by 14 criteria including study design, outcome measures, follow-up, data analysis and presentation. Results: 36 significant studies with control group: self-estimated life quality and emotion are the most frequent items which were investigated. In contrast to this frequency, the studies with reference to mobility, emotion and activities of daily life are most significant. The result is a proposal of ICF core set by the use of different specific and general items. Conclusion: In literature, there does not exist any assessment or setting which distinguish the function and disability of the polio patients on the whole. So the developed ICF core set may be a possibility to objectify the motor neuron disease after its multidisciplinary confirmation.

Effects of muscle strengthening and cardiovascular fitness activities for poliomyelitis survivors: A systematic review and meta-analysis

“…Combining these latter 2 domains can provide context for potential positive outcomes and prognosis for social independence ( 40 ). The Core Set for PPS proposed by Bocker et al (2016) helped to narrow the ICF categories, providing clearer directions for assessment and documentation in clinical practice and research ( 17 ). This was an overall strength of this review outlining the effectiveness of muscular strengthening and aerobic fitness activities across a range of domains (e.g.…”

“…The following data were extracted from included studies: author, study population, diagnosis criteria used, study design, followup time, type of exercise intervention, outcome measures, statistical analysis, and effects of the intervention. The International Classification of Functioning, Disability and Health (ICF) codes provide a framework for understanding the interactions of environment, conditions and personal factors on influencing body function and structure, activities and participation ( 17 ). Table SIII 1 outlines second-level domain coding of the ICF for study outcome measures.…”

“…Table SIII 1 outlines second-level domain coding of the ICF for study outcome measures. Based on a proposed ICF Core Set for PPS ( 17 ), outcomes were grouped into the following ICF domains: ( 3 ) mental and sensory; and as a dual component domain ( 4 ) activity and participation.…”