Evaluation of PDQ-8 and its relationship with PDQ-39 in China: a three-year longitudinal study

Chen, Kui; Yang, Yujie; Liu, Feng‐Tao; Li, Dake; Bu, Lu-Lu; Yang, Ke; Wang, Ying; Shen, Bo; Guan, Rong-Yuan; Song, Jie; Wang, Jian; Wu, Jianjun

doi:10.1186/s12955-017-0742-5

Cited by 31 publications

(20 citation statements)

References 31 publications

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“…Nevertheless, a strength of our study is that the questionnaires PDQ-8 and EQ-5D-5L have been validated both in PD patients and in Greek language. Furthermore, the current study confirmed existing published data on PDQ-8 [ 12 , 16 , 18 , 20 , 21 , 72 , 83 – 85 ], thus adding to the credibility of the results for PDQoL7. Additionally, the conduct of the study by trained neurologists specialized in movement disorders encompasses an ascertainment of a high level of accuracy in the recognition and evaluation of the different clinical symptoms and signs of the disease.…”

Section: Discussionsupporting

confidence: 88%

“…The validity of grouping the items of PDQ-39 and its 8-item short form (PDQ-8) in 8 domains and the initially proposed unidimensionality of PDQ-39 have been questioned [ 70 , 71 ]. The available evidence suggests, though not confirming, that PDQ-39 may be multidimensional with 3 HRQoL domains, namely physical-functioning, cognition, and socioemotional [ 11 , 14 – 16 , 70 , 72 ]. PDQoL7 was also found to be multidimensional with 3 domains.…”

Section: Discussionmentioning

confidence: 99%

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Evaluation and validation of a patient-reported quality-of-life questionnaire for Parkinson’s disease

Stathis¹,

Papadopoulos²

2022

J Patient Rep Outcomes

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Background Parkinson’s disease (PD) is a chronic, progressive illness with a profound impact on the health-related quality of life (HRQoL). Disease-specific patient-reported HRQoL measures, such as PDQ-39 and its short version PDQ-8, are increasingly used in clinical practice to address the consequences of PD on everyday life. Due to limitations in the content, especially in non-motor symptoms and sleep disturbances of PDQ-8, PDQoL7, a 7-item, short-term, self-reported, PD-specific HRQoL questionnaire was developed. Methods A representative sample of 60 adults with idiopathic PD completed the PDQoL7 questionnaire and the existing validated PDQ-8 and EQ-5D-5L questionnaires (all in Greek). Results PDQoL7 summary index strongly correlated with PDQ-8 (rs = 0.833, P < 0.001) and EQ-5D-5L (rs = − 0.852, P < 0.001). The correlation between PDQoL7 and EQ-5D-5L was statistically significantly stronger compared to PDQ-8 and EQ-5D-5L (rs = − 0.852 vs rs = − 0.789 respectively, P < 0.001). The internal consistency of PDQoL7 was not affected by item deletion (positive item to total correlations: 0.29–0.63). No redundant items (with inter-item correlation coefficients greater than 0.80) were identified. Cronbach’s α for PDQoL7 was comparable to PDQ-8 (0.804 versus 0.799 respectively). As PDQoL7 had three-dimensional structure, omega coefficient analysis confirmed its reliability (omega total: 0.88; omega hierarchical: 0.58). Conclusions PDQoL7 is an acceptable, easy to use, valid and reliable tool for the determination of HRQoL in PD patients that is potentially more comprehensive than PDQ-8 based on the available evidence. PDQoL7 could allow for a more thorough evaluation of the impact of PD and contribute to guiding healthcare decisions. This will be confirmed in subsequent analysis on larger patient cohorts.

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Section: Discussionsupporting

confidence: 88%

Section: Discussionmentioning

confidence: 99%

Evaluation and validation of a patient-reported quality-of-life questionnaire for Parkinson’s disease

Stathis¹,

Papadopoulos²

2022

J Patient Rep Outcomes

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“…Patients were asked to choose a number from 0 to 10 to represent their understanding of the disease; the higher score indicated that they knew more disease-related knowledge. The QoL of PD patients was evaluated using PD Questionnaire 8 (PDQ-8), which contained eight items: (1) mobility; (2) activities of daily living; (3) emotional well-being; (4) stigma; (5) social support; (6) cognitions; (7) communication; and (8) bodily discomfort (19)(20)(21)(22)(23), ranging from 0 (normal) to 100 (worst disability). The PDQ-8, developed by (24), is a specialized scale for evaluating the quality of life of PD patients (25).…”

Section: Covariatesmentioning

confidence: 99%

Current Status of Acceptance of Disability and the Correlation With the Life Quality in Parkinson's Disease in Southwest China

Liang

Chen

et al. 2022

Front. Med.

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BackgroundAcceptance of disability (AOD) is a process that a patient must undergo to cope with altered abilities, but its effect in Parkinson's disease (PD) remains unclear. The present study aimed to determine the level of AOD, examine the influence of sociodemographic variables and disease characteristics on the AOD level, and evaluate the relation between AOD level and quality of life in a cohort of PD patients from Southwest of China.MethodsA total of 336 PD patients were consecutively recruited from November 2018 to October 2020. At enrollment, demographic and clinical data were obtained using a questionnaire, and the Acceptance of Disability Scale-Revised (AODS-R) scale was used to measure the AOD level.ResultsThe mean total score of AOD is 87.28, indicating a moderate level of disability acceptance in PD patients. Statistical analysis showed that understanding of PD, family support, and UPDRS-II score were major factors affecting AOD level, and patients with low AOD levels were more likely to have poorer quality of life.ConclusionAOD is a serious problem in PD patients in Southwest China, especially among individuals with insufficient family support and a lack of recognition of the disease. AOD was also associated with motor function and daily living ability, thus suggesting that evaluation of the AOD and promotion of the awareness may be helpful to improve the quality of life in patients with PD.

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“…The sample size in the studies varied from 24 [28] to 537 [29]. The majority of the participants were in their mid to late 60s, and their mean age ranged from 47.9 years [30,31] to 72 years [32]. The most commonly used tools were the…”

Section: Study Characteristicsmentioning

confidence: 99%

Tools to assess the quality of life in patients with Parkinson’s disease: a systematic review

Berardi

Regoli

Tofani

et al. 2020

Expert Review of Pharmacoeconomics & Outcomes Research

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Introduction. The clinical, social, and economic implications of Parkinson's disease (PD) are significant; disability occurs leading to a low quality of life (QoL). Information on the QoL of patients with PD and studies on the relationship between QoL and motor and cognitive function are necessary for both research and clinical use to make informed decisions in healthcare and rehabilitation. The aim of this study was to determine which scales are most used to assess QoL in patients with PD. Area covered. A literature search was conducted in MEDLINE, Scopus, CINAHL, PsycINFO, and Web of Science. Two authors independently identified eligible studies based on predefined inclusion criteria and extracted the data. Study quality and the risk of bias were assessed using the COSMIN checklist. Expert opinion. 116 suitable studies were included, and 42 different instruments were identified.The most frequently used scales were the 39-items and 8-items Parkinson's Disease Questionnaire (PDQ-39) (PDQ-8). These findings suggest further investigation of existing PD outcome measures would benefit patients, researchers, and clinicians. Validated, universal outcome measures are required to allow comparisons across practice; therefore, we recommend that future researchers use a common set of outcome assessments based on the results of this review.

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Evaluation of PDQ-8 and its relationship with PDQ-39 in China: a three-year longitudinal study

Cited by 31 publications

References 31 publications

Evaluation and validation of a patient-reported quality-of-life questionnaire for Parkinson’s disease

Evaluation and validation of a patient-reported quality-of-life questionnaire for Parkinson’s disease

Current Status of Acceptance of Disability and the Correlation With the Life Quality in Parkinson's Disease in Southwest China

Tools to assess the quality of life in patients with Parkinson’s disease: a systematic review

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