Examination of a Psychoeducational Intervention and a Respite Grant in Relieving Psychosocial Stressors Associated with Being an Alzheimer's Caregiver

Tompkins, Sara Anne; Bell, Paul A.

doi:10.1080/01634370802561877

Cited by 29 publications

(31 citation statements)

References 25 publications

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“…This study fitted well with international findings, such as those of a recent US study (Tompkins & Bell, 2009) on caregivers for people with dementia, which found that psychoeducational interventions improved caregiver outcomes in the form of lower depression scores, increased support service use, and increased support group usage. These improvements were maintained over a 6‐month period despite the continued deterioration in the functional level of the person with dementia (Tompkins & Bell, 2009).…”

Section: Benefits Of Respitesupporting

confidence: 88%

The Psychology of Respite Care for People with Dementia in Australia

Tang¹,

Ryburn²,

Doyle³

et al. 2011

Australian Psychologist

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Australian health professional bodies promote the use of respite to ease carer burden, following well-established findings that carers often face physical, mental, social, and financial strain while providing informal care. This narrative review examined the use and impacts of respite for older clients, with a particular focus on Australian research and on dementia respite. It was found that despite reports of high satisfaction from caregivers with respite use, barriers, such as caregiver concerns for the well-being and safety of the care recipient during respite, limited flexibility for short-notice respite booking, and low provision of support and education post respite, impacted on the accessibility and efficacy of respite care. It was concluded that respite care needs to move away from a custodial model to a more psychological model of care, and that more natural and flexible models (e.g., host family respite), integrated with increased post-respite support and psychosocial education, are likely to be beneficial and need further evaluation.

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Section: Benefits Of Respitesupporting

confidence: 88%

The Psychology of Respite Care for People with Dementia in Australia

Tang¹,

Ryburn²,

Doyle³

et al. 2011

Australian Psychologist

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“…, Beisecker et al . , Evert & Kukulska , Tompkins & Bell , Phillipson & Jones ,b). Available respite programmes may also be unsuitable for younger persons with dementia and those from culturally and linguistically diverse backgrounds (Alzheimer's Australia's ).…”

Section: Literature Reviewmentioning

confidence: 99%

Literature review: use of respite by carers of people with dementia

Neville

Beattie

Fielding

et al. 2014

Health Soc Care Community

103

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Respite care is a cornerstone service for the home management of people with dementia. It is used by carers to mitigate the stress related to the demands of caring by allowing time for them to rest and do things for themselves, thus maintaining the caring relationship at home and perhaps forestalling long-term placement in a residential aged care facility. Despite numerous anecdotal reports in support of respite care, its uptake by carers of people with dementia remains relatively low. The aim of this paper was to examine the factors that constitute the use of respite by carers of people with dementia by reviewing quantitative and qualitative research predominantly from the years 1990 to 2012. Seventy-six international studies of different types of respite care were included for this review and their methods were critically appraised. The key topics identified were in relation to information access, the barriers to carers realising need for and seeking respite, satisfaction with respite services including the outcomes for carers and people with dementia, the characteristics of an effective respite service and the role of health workers in providing appropriate respite care. Finally, limitations with considering the literature as a whole were highlighted and recommendations made for future research.

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“…It will require improving access to interventions developed to support informal caregivers caring for AD patients and other chronically ill and disabled individuals. Specific strategies include facilitating access to requisite information and supports through expansion of adult day, respite and in-home support programs, caregiver education and training, case management, counseling and care coordination, consumer direction, service integration, chronic disease management, and importantly, evaluation and improvement of programs such as these (Pusey and Richards, 2001;Thompson et al, 2007;Martín-Carrasco et al, 2009;Miller et al, 2009a;Tompkins and Bell, 2009;Olazarán et al, 2010). This is the first study to examine the moderating effect of caregiver burden on the relationship between HUI-III score and institutional service use.…”

Section: Caregiver Distress Scalementioning

confidence: 99%

Caregiver burden, health utilities, and institutional service use in Alzheimer's disease

Miller

Rosenheck

Schneider

2011

Int J Geriat Psychiatry

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Objective This study examined the moderating effect of caregiver burden on the relationship between the health status of Alzheimer’s disease (AD) patients and their use of institutional services (i.e., hospitalization, nursing home, and residential care). Methods Data were obtained at baseline and 3-, 6-, and 9-months following study entry on 421 community-dwelling patients with AD in the CATIE-AD trial. The outcome variable includes use of any institutional services. Logistic regression was employed to estimate the interaction of Health Utility Index (HUI)-III score (a general health status measure) at outcome and four concurrent caregiver burden measures. Marginal effects were calculated and plotted using random effects models for observations at multiple time points per individual. Average effects were calculated across all observations using models without random effects. Results Random effects results suggest that caregiver burden weakens the inverse relationship between health utilities and institutional service use, leading to greater likelihood of institutional use than would be expected at a given level of health. This is indicated by positive, significant signs on the HUI-III*caregiver burden interaction when burden is measured using the Caregiver Distress Scale, Beck Depression Inventory (BDI), and Caregiver Assessment Survey (all p<.05). It is reinforced by positive, significant average effects deriving from Caregiver Distress and BDI models without random effects (both p<.10). Results deriving from the Burden Interview Scale, though positive, were non-significant and weak by comparison. Conclusion Caregiver support interventions should be offered to individuals caring for less advanced AD patients. Otherwise healthy patients may be at increased risk for institutionalization when caregivers experience high levels of burden.

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Examination of a Psychoeducational Intervention and a Respite Grant in Relieving Psychosocial Stressors Associated with Being an Alzheimer's Caregiver

Cited by 29 publications

References 25 publications

The Psychology of Respite Care for People with Dementia in Australia

The Psychology of Respite Care for People with Dementia in Australia

Literature review: use of respite by carers of people with dementia

Caregiver burden, health utilities, and institutional service use in Alzheimer's disease

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