Experience of acute noninvasive ventilation—insights from ‘Behind the Mask’: a qualitative study

Abstract

Participants described balancing the benefits and burdens of NIV, with the goal of achieving another chance at life. Gaps in recall of their treatment with NIV were frequent, potentially suggesting underlying delirium. The findings of this study inform patient-centred care, have implications for the care of patients requiring NIV and for advance care planning discussions.

Patient Compliance to Non-Invasive Ventilation in Sub-Intensive Care Unit: An Observational Study

“…This study has attempted to favor an integrated doctor-nurse approach in order to reach the highest possible level of understanding for the specific case. According to literature, patients usually described a high level of trust in healthcare professionals and delegated decision-making to them regarding ongoing care (28).…”

“…7 U n C o r r e c t e d P r o o f 800 (82%) of the episodes of intolerance occurred while the caregiver was absent and, on average, patients lacking the support of a caregiver experienced more episodes than the general average. Communication with patients during treatment is inhibited because of the mask, the noise from the machine, and patient distress; for this reason, the presence of relatives could be reassuring (28).…”

“…Most patients in this study, according with literature, talked about anxiety: anxiety of being choked, being alone with new technology, lack of predictability (28).…”

Older patients with late‐stage COPD: Their illness experiences and involvement in decision‐making regarding mechanical ventilation and noninvasive ventilation

“…Even though the prognosis is about the same for COPD as it is for lung cancer, patients with COPD rarely receive planned palliative and end‐of‐life care (EOLC) (Janssen, Wouters, Schols, & Spruit, ; Lal & Case, ). Relatively few studies have examined patients' preferences with regard to care during the later stages of COPD (Bereza, Troelsgaard Nielsen, Valgardsson, Hemels, & Einarson, ; Momen, Hadfield, Kuhn, Smith, & Barclay, ), and little is actually known about how patients experience receiving NIV (Smith, Agar, Jenkins, Ingham, & Davidson, ; Smith, Davidson, Jenkins, & Ingham, ; Sorensen, Frederiksen, Groefte, & Lomborg, ). One area of concern therefore is whether patients have more interventions like NIV treatment and hospital admissions towards the end of their lives than they want or than are appropriate (Carlucci et al., ; Dretzke et al., ).…”

Development of non-invasive ventilation treatment practice for patients with chronic obstructive pulmonary disease:Results from a participatory research project

“…Studies by Torheim and Gjengedal, 11 Sørensen et al, 18 Beckert et al 19 and Smith et al 20 present patients’ experience with NIV, with a focus on describing the approaches which patients use to adapt to NIV such as feeling of regaining control and trusting skilled help from health professionals. Smith et al 20 conclude that more research is needed on patients’ daily lives with COPD versus their attitudes to acute exacerbation of COPD, which can give clinicians a better understanding of the patient’s perspective and thereby build up and qualify management strategies for NIV treatment. The studies don’t look further into the attitude towards receiving NIV considering how they relates to, and live their lives with a chronical illness COPD where hospitalization due to acute exacerbation of COPD is a progress of their illness.…”