Experience of epilepsy: Coping strategies and health outcomes among Ghanaians living with epilepsy

Deegbe, David Atsu; Aziato, Lydia; Attiogbe, Alexander

doi:10.1016/j.yebeh.2020.106900

Cited by 6 publications

(6 citation statements)

References 22 publications

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“…Keeping spirituality might be a protective factor against stress. This is similar to a study done in Ghana [ 40 ] but this finding might not be found in previous reports of western similar studies [ 30 , 31 , 41 , 42 ]. This might be because of cultural differences in western countries in which the function of religious institutions as a social connection bond and spiritual organization is weak.…”

Section: Discussionsupporting

confidence: 90%

“…This is in harmony with the findings in Tanzania [ 43 ] and Sudan [ 44 ] in which young people with epilepsy used two or more treatment options for epilepsy, including faith healers and traditional healers, in addition to taking AEDs. Such types of findings were a reflection of their beliefs about the causes of epilepsy among the participants [ 40 ]. This might reduce their adherence to biomedical or modern medicine.…”

Section: Discussionmentioning

confidence: 99%

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Lived experience of young people with epilepsy in Bahir Dar city government hospitals, Ethiopia, a qualitative interview study

2023

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Background Epilepsy is the most common neurological disorder, which is characterized by persistent derangement of the nervous system due to an abrupt excessive discharge of the group of neurons from the cerebrum. For developing young people with epilepsy coping with the challenges of living with epilepsy and adjusting normative tasks associated with adolescence is stressful in all domains of the lives of young people with epilepsy. But in Ethiopia, published literature regarding the lived experience of young people with epilepsy is lacking. Objectives This study aims to explore lived experience of young people with epilepsy. Methods A qualitative interview study was conducted in Bahir Dar city government specialized and referral Hospitals, from February to April, 2021. Using the rule of saturation, a total of 11 study participants (age 12–24) were selected using hetrogenious types of purposive sampling technique. The data were collected through semi structured interviews technique with the aid of audio recorder. Semi-structured interview guide and observation checklist for care context in health facilities were used. The collected data was transcribed word by word and translated conceptually. The Data were analyzed using thematic approach. The credibility, dependability, Conformability and transferability of the study were assured using different techniques such as peer debriefing, member checking; audit Trail, thick description and purposeful sampling. Atlas- ti version7 software was used to facilitate data analysis. Results The participants’ narratives revealed two main themes: ‘experiences due epilepsy’ and ‘coping strategies to wards epilepsy’. Experience due to epilepsy’ was described by young people with epilepsy in terms of psychosocial, physical, economical and health care related experiences. They described coping strategies towards epilepsy in terms of finding support from family and society as well as religious institutions and other traditions as copping strategy. Conclusion Even though young people with epilepsy had suffered a lot of hurtful experiences, they reported coping strategies towards epilepsy that include support from various sources. These types of findings have implications for social work interventions for young people living with epilepsy.

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Section: Discussionsupporting

confidence: 90%

Section: Discussionmentioning

confidence: 99%

Lived experience of young people with epilepsy in Bahir Dar city government hospitals, Ethiopia, a qualitative interview study

2023

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“…Selecting appropriate adaptation strategies is very effective. Deegbe et al introduced positive coping strategies in PWE, including problem-solving, belief in God, social support, and lifestyle changes (27), which align with the current study's results. In another study, adaptation strategies are divided into the three categories of cognitive, behavioral, and emotional skills used in managing stressful situations (16).…”

Section: Discussionsupporting

confidence: 88%

Explaining the Process of Adaptation to the Disease in Patients with Epilepsy: A Qualitative Study

Asadizaker,

Gheibizadeh,

Azizi-Fini

et al. 2023

Journal of Qualitative Research in Health Sciences

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Background: The concept of adaptation has gained central importance in research on chronic diseases. However, this process is not clear in adult epileptic patients. This study aimed to explain the process of adaptation to disease in patients with epilepsy. Methods: This study was conducted using the grounded theory approach from December 2018 to January 2020 in Isfahan, Iran. Data were collected by semi-structured interviews with 18 patients with epilepsy. Participants were selected by purposeful or theoretical sampling method. Data collection was performed by the first author through conducting semi-structured interviews. Data analysis was performed by Strauss and Corbin’s (1998) method. Results: Four main categories with ten sub-themes were obtained from the data analysis. The main themes include "Perceived disorder," "Scrimmage with the disease," "Moving towards adaptation," and "Balancing life." The Core category achieved was "Trying to balance life." Conclusion: Based on the results, the process of adapting to epilepsy has four stages: "Perceived disorder," "Scrimmage with the disease," "Moving towards adaptation," and "Balancing life." The health providers’ awareness of these stages can provide a framework that can be used to help epilepsy patients achieve positive adaptation. Achievement of adaptation can help epileptic patients control the disease and improve their quality of life.

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“…PWE shaped their overall narrative around the stem narrative [28]. They interpreted their life with epilepsy through the stem narrative.…”

Section: Discussionmentioning

confidence: 99%

Psychosocial Factors in the Experience of Epilepsy: A Qualitative Analysis of Narratives

Mlinar

Primec

Petek

2021

Behavioural Neurology

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Introduction. Epilepsy is a complex disease. The consequences of epilepsy are varied and manifested in all aspects of people with epilepsy’s (PWE) lives. The purpose of this study was to define individual experiences of epilepsy, expressed in narratives, and to find the stem of each narrative—a core event in the PWE’s experience of the disease around which they structure their overall narrative. Method. A qualitative, phenomenological research method was used. We conducted semistructured interviews with 22 PWE and analysed the content using a combination of inductive and deductive methods, based on which we determined the stem narratives. Results. The stem narrative of the epilepsy narrative is an important life experience of PWE. We divided the stem narratives into four groups: lifestyle changes, relationship changes, the consequences of the inciting incident, and the limitations of the disease. In our study, we found that the stem narrative was, in all but one case, a secondary (psychosocial) factor resulting from epilepsy, but not its symptom (epileptic seizure). The stem narrative, where aspects of life with epilepsy are exposed, points to a fundamental loss felt by PWE. Conclusion. The narrative of the experience of epilepsy has proven to be an important source of information about the disease and life of PWE and also about the aspects at the forefront of life with epilepsy. The secondary epilepsy factors that we identified in the stem narratives were the greatest burden for PWE in all cases but one.

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Experience of epilepsy: Coping strategies and health outcomes among Ghanaians living with epilepsy

Cited by 6 publications

References 22 publications

Lived experience of young people with epilepsy in Bahir Dar city government hospitals, Ethiopia, a qualitative interview study

Lived experience of young people with epilepsy in Bahir Dar city government hospitals, Ethiopia, a qualitative interview study

Explaining the Process of Adaptation to the Disease in Patients with Epilepsy: A Qualitative Study

Psychosocial Factors in the Experience of Epilepsy: A Qualitative Analysis of Narratives

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