Experiencing rights within positive, person‐centred support networks of people with intellectual disability in Australia

Abstract

The maintenance of rights within a supportive environment remains a difficult task. It can be facilitated by a deep knowledge and respect for the person being supported, the promotion of his or her active participation in the planning and provision of support, and an experimental and reflective approach.

“Living the life I want”: A framework for planning engagement with people with intellectual disability and complex support needs

“…The shift towards a personalized system of resource allocation in disability service provision marks a positive step towards self‐determination for people with intellectual disability. However, there is growing evidence of the challenges involved in converting rights‐based principles to implementable plans (Devi, ; Hillman et al., ; Shogren, ; Slasberg & Beresford, ). Historically, people with more severe intellectual impairment were considered unable to make decisions directly impacting their lives and were excluded from the planning process.…”

Efectos y beneficios de la Planificación Centrada en la Persona (PCP) en las personas adultas con discapacidad intelectual, en las organizaciones y en la comunidad. Estado de la cuestión

“…Las redes de apoyo de la investigación elaborada por Hillman et al (2012) mostraron la importancia de formar a las personas con discapacidad en la defensa de sus derechos y de que sean el centro de todas las decisiones, deseando para ellos: felicidad y seguridad, ser respetados, que tengan buenas relaciones, una mayor autonomía, que sean miembros de la comunidad y, en general, que disfruten de la vida.…”

“…Gracias a él es posible que la persona consiga sus metas establecidas. En el apartado de resultados se expone cómo Whitney-Tomas y Timmons (1998) han proporcionado una serie de pautas para el correcto devenir de estos grupos, los cuales se complementan con un dato proporcionado por Hillman et al (2012), que reconocen que la escucha a la persona con discapacidad es un aspecto muy importante ya que muestra respeto y aprecio. A su vez, este grupo ha de ser capaz de guiar a la persona con discapacidad para que se fije unos objetivos reales acordes con su situación personal, no exagerados, sin llegar a ejercer un papel sobreprotector sobre él/ella.…”

An investigation of the role of social support on physical activity participation among adults with intellectual disability

“…The multiple methods used in the study were implemented over numerous sessions held across a 10-month period in 2015. The use of multiple contact points is strongly recommended for research with people with intellectual disability because it can enhance communication (e.g., Bernert & Ogletree, 2013;Forbat & Wilkinson, 2008;Hillman et al, 2012) and facilitate a richer and deeper conversation with the participants (Liamputtong, 2013). By spreading the data collection over a longer period, I was also able to engage with participants when they started new activities or completed an activity (e.g., finished swimming for the season), and it facilitated building relationships and rapport.…”

“…Engaging participants in data analysis through the process of member checking was a key inclusive research practice used by a small number of studies. This process was usually conducted through a focus group at the end of the data collection and analysis period (Beart, Hardy, & Buchan, 2004;Frawley & Bigby, 2011;Hillman et al, 2012).…”