Experiential Knowledge: A New Concept for the Analysis of Self-Help Groups

Borkman, Thomasina

doi:10.1086/643401

Cited by 429 publications

(271 citation statements)

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“…The traditional scientific, philosophical stance favors professional and "expert" knowledge over people's own experiential knowledge (Borkman, 1976) and implies that it is only the expert professionals who can be trusted to tell us what is really best for people.…”

Section: Discussionmentioning

confidence: 99%

Outcome Evaluation of a Group Education and Support Program for Family Caregivers

Gallagher

Hagen

1996

Gerontology & Geriatrics Education

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Section: Discussionmentioning

confidence: 99%

Outcome Evaluation of a Group Education and Support Program for Family Caregivers

Gallagher

Hagen

1996

Gerontology & Geriatrics Education

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“…Given the mentor's experiential knowledge, the mentor is able to provide support that matches the needs of the recipient, along with role modeling, and an opportunity for believable hope [23]. Thus, the essence of peer mentorship is mutual identification (i.e., between the mentor and the support recipient) and the sharing of experiential knowledge [26].…”

Section: Peer Mentors and Health Intervention Deliverymentioning

confidence: 99%

Peer-delivered physical activity interventions: an overlooked opportunity for physical activity promotion

Ginis

Nigg

Smith

2013

Behav. Med. Pract. Policy Res.

203

176

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The purpose of this systematic review was to catalogue and synthesize published studies that have examined the effects of peer-delivered physical activity interventions on physical activity behavior. Ten published studies were identified that met the inclusion criteria. The following information was extracted from each study: study design and duration; characteristics of the sample, peers, and interventions; and physical activity outcomes. In all articles reporting within-groups analyses, peer-delivered interventions led to increases in physical activity behavior. When compared to alternatives, peer-delivered interventions were just as effective as professionally delivered interventions and more effective than control conditions for increasing physical activity. Only three studies included measures of social cognitive variables, yielding some evidence that peers may enhance self-efficacy and self-determined forms of motivation. Based on these findings, interventionists are encouraged to include peer mentors in their intervention delivery models. Investigators are encouraged to pursue a more comprehensive understanding of factors that can explain and maximize the impact of peer-delivered activity interventions. KeywordsExercise, Fitness, Peer mentors, Social influence, Social cognitive theory, Self-determination theory BACKGROUND Previous research has shown that regular physical activity (PA) contributes to the prevention of overweight/obesity [1-3], decreases risk for obesity-related illnesses [4,5], and is associated with decreased risk for coronary heart disease [6], hypertension, type 2 diabetes mellitus [1,2], and cancer at several sites [7]. These benefits have also been reported in subpopulations such as older adults [8] and persons with disabilities [9]. Unfortunately, most adults do not perform PA at the recommended level to experience such health benefits [10,11]. Indeed, 39 % of adults are completely sedentary [11], and the rate of inactivity increases with age [8,12] and physical impairment (e.g., [13]).Although health care professionals often hold a role of trusted counselor or health mentor for their

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“…79 However, not all PEx was considered equally useful or relevant. Interviewees often spoke about how they were particularly interested in and affected by PEx from people they could relate to.…”

Section: Identification Mediation and Visualisation In Online Patienmentioning

confidence: 99%

Examining the role of patients’ experiences as a resource for choice and decision-making in health care: a creative, interdisciplinary mixed-method study in digital health

Ziébland

Powell

Briggs

et al. 2016

Programme Grants Appl Res

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BackgroundTraditional health information has been based on facts and figures and not on patient experience (PEx). Websites featuring people’s accounts of their experiences of health and illness are popular as a source of information, support and much else. However, there are concerns that experiential information on the internet might have adverse effects on health.AimsTo find out whether, when and how the NHS should incorporate PEx into online health information and elucidate the mechanisms through which PEx might influence health, develop a tool to measure the effects of online PEx, explore how PEx is used, and investigate the feasibility and acceptability of a randomised controlled trial of online PEx.MethodsMixed methods, including a conceptual literature review, qualitative secondary data analysis, the development of a new questionnaire, online ethnography, observational and experimental studies in an internet café environment, and finally feasibility trials to compare new websites based on PEx with those based on facts and figures.ResultsThe review concluded that online PEx could affect health outcomes through seven domains (information, support, affecting relationships, providing ideas on how to use health services, influencing behaviour change, learning to tell the story and visualising illness). We developed the e-Health Impact Questionnaire, which demonstrates good psychometric properties and is suitable for use across different health groups and various styles of online information. Online ethnographic studies found three types of PEx on multiple sclerosis (MS) platforms: accounts of ‘living with MS’, self-expression and creativity, and experiences of health care and treatment. Observational and laboratory-based methods included studies of how people find and use PEx to inform health choices. We developed a three-stage model (gating, the engagement loop and outcomes) which guided the development of six prototype multimedia websites featuring either experiential information (intervention) or factual information (comparator) for three exemplar health issues. We evaluated the feasibility and acceptability of a trial of the prototype PEx websites, comparing self-report and process measures with a comparator. In the three conditions we randomised 87 (smoking cessation), 148 (asthma), and 42 (caring for someone with MS) participants. At final (2-week) follow-up, retention rates were 75%, 82% and 86%, for smoking cessation, asthma and MS carers, respectively. Usage of the allocated websites was low. The median number of logins to the websites over the 2-week period was two, two and four; the median number of page views was 10, 15 and 27.5, respectively, with a median total duration on site of 9 minutes, 17 minutes and 31.5 minutes respectively. There were no reported adverse events or harms. The qualitative interviews with 30 trial participants found that the trial methods were acceptable and not burdensome and that preferences for combinations of different types of information were both idiosyncratic and dependent on timing and need.LimitationsThis programme used a pragmatic, mixed-methods approach, in which we adapted some standard approaches (e.g. realist review). The conceptual review provided a framework for the whole programme but did not draw on a single overarching theoretically informed approach. Instead, we used relevant theory and methods from the work package leads, who represented a range of disciplines.ConclusionsOnline PEx is not seen as an alternative to facts, or to care from a health professional, but is used in addition to other sources of information, support and expression. This programme of work indicates how the sharing of online PEx may benefit people, and how this can be measured. A randomised controlled trial is feasible but an allocated ‘exposure’ to a ‘dose of information’ is far from from how online experiences are shared in everyday life. Future work evaluating online health interventions which incorporate personal experiences should aim to reflect ‘natural’ use of the internet and might include online ethnography and offline interviews. Studies might explore how and why people use online sources of experience-based health information, and the effects on subsequent behaviour and health and social outcomes in different conditions. Future intervention research evaluating online health interventions should examine and explain issues of engagement and use, and seek to identify how to increase engagement.Trial registrationCurrent Controlled Trials ISRCTN29549695.FundingThis project was funded by the Programme Grants for Applied Research programme and will be published in full inProgramme Grants for Applied Research; Vol. 4, No. 17. See the NIHR Journals Library website for further project information.

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Experiential Knowledge: A New Concept for the Analysis of Self-Help Groups

Cited by 429 publications

References 0 publications

Outcome Evaluation of a Group Education and Support Program for Family Caregivers

Outcome Evaluation of a Group Education and Support Program for Family Caregivers

Peer-delivered physical activity interventions: an overlooked opportunity for physical activity promotion

Examining the role of patients’ experiences as a resource for choice and decision-making in health care: a creative, interdisciplinary mixed-method study in digital health

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