Exploiting Loss?: Ethical Considerations, Boundaries, and Opportunities for the Study of Death and Grief Online

Carmack, Heather J.; DeGroot, Jocelyn M.

doi:10.2190/om.68.4.b

Cited by 15 publications

(13 citation statements)

References 56 publications

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“…The most significant area of doubt related to concerns pertaining to issues of privacy and confidentiality of the information published. However, according to some authors (e.g., Carmack and DeGroot ; Walther ) the Internet can be justly considered a public sphere. Thus, texts published online should be viewed as public discourse “written with the specific purpose of being consumed by the general public” (Carmack and DeGroot :318).…”

Section: Method Data Sources and Ethical Considerationsmentioning

confidence: 99%

“…However, according to some authors (e.g., Carmack and DeGroot ; Walther ) the Internet can be justly considered a public sphere. Thus, texts published online should be viewed as public discourse “written with the specific purpose of being consumed by the general public” (Carmack and DeGroot :318). This applies to the data sources utilized in this study—I retrieved the threads from completely public websites with no barriers to access such as obligatory registration.…”

Section: Method Data Sources and Ethical Considerationsmentioning

confidence: 99%

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Searching for a Narrative of Loss: Interactional Ordering of Ambiguous Grief

Sawicka

2016

Symbolic Interaction

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In this article I analyze the collective management of ambiguous emotions in the case of grief arising from perinatal loss/stillbirth. Based on a content analysis of selected Polish discussion lists for bereaved parents and interviews with moderators of these lists, I conceptualize the experience of grief arising from miscarriage/stillbirth as both culturally “disembedded”—not regulated by a coherent set of feeling and display rules, and interactionally “disenfranchised”—framed by the immediate social surrounding of the bereaved as illegitimate. This study then focuses on subsequent social processes surrounding the collective management of such emotions through interactions within online bereavement communities, leading to the creation of local definitions of the situation of loss and formation of subcultural feeling and display rules of grief. I posit that in a wider perspective these community processes can be seen as grassroots mechanisms that agents use to transform the existing emotional culture of grief.

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Section: Method Data Sources and Ethical Considerationsmentioning

confidence: 99%

Section: Method Data Sources and Ethical Considerationsmentioning

confidence: 99%

Searching for a Narrative of Loss: Interactional Ordering of Ambiguous Grief

Sawicka

2016

Symbolic Interaction

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“…This reflects a limited interest in quantitative methods amongst the abstracts received. Secondly, the papers do not address ethical and practical issues involved in using online methods when doing death research (see Giaxoglou, 2016;Carmack and Degroot, 2014). Whilst thirdly, the 'sensory' turn evident particularly in the social sciences (Mason and Davies, 2009) is only partly attended to in Scott Bray's paper focusing on the visual.…”

Section: Background To the Special Issuementioning

confidence: 99%

Introduction: researching death, dying and bereavement

Borgstrom¹,

Ellis²

2018

Researching Death, Dying and Bereavement

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“…This reflects a limited interest in quantitative methods amongst the abstracts received. Secondly, the papers do not address ethical and practical issues involved in using online methods when doing death research (see Carmack & Degroot, 2014;Giaxoglou, 2016). Whilst thirdly, the 'sensory' turn evident particularly in the social sciences (Mason & Davies, 2009) is only partly attended to in Scott Bray's paper focusing on the visual.…”

Section: Background To the Special Issuementioning

confidence: 99%

Introduction: researching death, dying and bereavement

Borgstrom

Ellis

2017

Mortality

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IntroductionAs early career researchers studying the end of life, we recognise that scholarly activity in the field of death studies -an umbrella term for research spanning all aspects of death, dying and bereavement, including end-of-life care -is growing in popularity. Since we completed our PhDs (less than 7 years ago), the number of UK universities offering courses on death-related topics has increased, mailing lists and online chat groups have multiplied, and the range of international seminars and conferences addressing topics in the field is expanding. This mounting interest in death studies makes this an opportune time to consider the methodological issues that doing research on death, dying and bereavement present.Mortality is a flagship journal in this interdisciplinary field. Read by both academics and practitioners, and with an increasingly international authorship and audience, it is an ideal space to consider contemporary methodological issues and challenges. As editors of this special issue, we have brought together a range of articles written by researchers which foreground and explore in detail matters pertaining to the study of death. As a collection, the articles seek to generate discussion about techniques, practices and sociocultural contexts of death research, and the implications that these have for knowledge production. Moreover, they intend to stimulate reflection on what is particular about engaging in death-related research specifically -teasing out key issues from more generic ongoing discussions about doing 'sensitive' (usually qualitative) research. In doing so, they offer practical tips and guidance -with the authors including key points and summary boxes at the end of each article. By placing these articles together and in dialogue with one another, we hope to encourage further substantive publications that deal with methodological aspects of death research, and that can continue these conversations.If we look at the genealogy of death studies (in English-speaking nations at least), there is a history of key periods of academic reflection and activity. For example, in the late 1960s and early 1970s (in the United States in particular), we saw a plethora of research in the field which produced seminal works that are still regularly cited in research, teaching and professional education today (e.

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Exploiting Loss?: Ethical Considerations, Boundaries, and Opportunities for the Study of Death and Grief Online

Cited by 15 publications

References 56 publications

Searching for a Narrative of Loss: Interactional Ordering of Ambiguous Grief

Searching for a Narrative of Loss: Interactional Ordering of Ambiguous Grief

Introduction: researching death, dying and bereavement

Introduction: researching death, dying and bereavement

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