Exploring perceptions of using preference elicitation methods to inform clinical trial design in rheumatology: A qualitative study and OMERACT collaboration

Thomas, Megan; Marshall, Deborah; Sanchez, Adalberto Loyola; Bartlett, Susan J.; Boonen, Annelies; Fraenkel, Liana; Proulx, Laurie; Voshaar, Marieke; Bansback, Nick; Buchbinder, Rachelle; Guillemin, Françis; Hiligsmann, Mickaël; Richards, Dawn P.; Richards, Pamela; Shea, Beverley; Tugwell, Peter; Falahee, Marie; Hazlewood, Glen

doi:10.1016/j.semarthrit.2022.152112

Cited by 1 publication

(1 citation statement)

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“… 3 Regarding the latter, a shared decision-making process allows an additional opportunity for persons living with SLE to discuss the modalities, expected benefits and potential contraindications of physical activity and exercise in SLE with their healthcare providers. Therefore, shared decision-making may result in better adherence to physical activity programmes 12 by offering the opportunity to address barriers for persons living with SLE to be physically active.…”

Section: Resultsmentioning

confidence: 99%

Recommendations for physical activity and exercise in persons living with Systemic Lupus Erythematosus (SLE): consensus by an international task force

Blaess,

Geneton,

Goepfert

et al. 2024

RMD Open

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ObjectiveThis international task force aimed to provide healthcare professionals and persons living with systemic lupus erythematosus (SLE) with consensus-based recommendations for physical activity and exercise in SLE.MethodsBased on evidence from a systematic literature review and expert opinion, 3 overarching principles and 15 recommendations were agreed on by Delphi consensus.ResultsThe overarching principles highlight the importance of shared decision-making and the need to explain the benefits of physical activity to persons living with SLE and other healthcare providers. The 15 specific recommendations state that physical activity is generally recommended for all people with SLE, but in some instances, a medical evaluation may be needed to rule out contraindications. Pertaining to outdoor activity, photoprotection is necessary. Both aerobic and resistance training programmes are recommended, with a gradual increase in frequency and intensity, which should be adapted for each individual, and ideally supervised by qualified professionals.ConclusionIn summary, the consensus reached by the international task force provides a valuable framework for the integration of physical activity and exercise into the management of SLE, offering a tailored evidence-based and eminence-based approach to enhance the well-being of individuals living with this challenging autoimmune condition.

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Section: Resultsmentioning

confidence: 99%