Exploring the Topics Discussed During a Conversation Card Game About Death and Dying: A Content Analysis

Scoy, Lauren Jodi Van; Reading, Jean M.; Scott, Allison M.; Chuang, Cynthia H.; Levi, Benjamin H.; Green, Michael J.

doi:10.1016/j.jpainsymman.2016.03.021

Cited by 23 publications

(24 citation statements)

References 27 publications

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“…The present study used 20 of the questions that were found effective at eliciting meaningful, clinically relevant discussions. 32 An initial coin toss, whose outcome is not revealed until the end of the game, determines whether the player with the most or the least game chips wins. Games were stopped after 2 hours or when participants finished discussing all 20 questions (whichever came first).…”

Section: Methodsmentioning

confidence: 99%

Can Playing an End-of-Life Conversation Game Motivate People to Engage in Advance Care Planning?

Scoy

Green

Reading

et al. 2016

Am J Hosp Palliat Care

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Background Advance care planning (ACP) involves several behaviors that individuals undertake to prepare for future medical care should they lose decision-making capacity. The goal of this study was to assess whether playing a conversation game could motivate participants to engage in ACP. Methods: Sixty-eight English speaking, adult volunteers (n=17 games) from communities around Hershey, Pennsylvania and Lexington, Kentucky played a conversation card game about end-of-life issues. Readiness to engage in four ACP behaviors were measured by a validated questionnaire (based on the trans-theoretical model) immediately before and 3 months post-game and a semi-structured phone interview. These behaviors were: 1) completing a living will; 2) completing a health-care proxy; 3) discussing end-of-life wishes with loved ones; and 4) discussing quality versus quantity of life with loved ones. Results: Participants’ (n=68) mean age was 51.3 years (SD=0.7, range 22–88); 94% of participants were Caucasian and 67% were female. 78% of participants engaged in ACP behaviors within 3 months of playing the game (e.g. updating documents, discussing end-of-life issues). Furthermore, 73% of participants progressed in Stage of Change (ie. readiness) to perform at least one of the four behaviors. Scores on measures of Decisional Balance and Processes of Change increased significantly by 3 months post-intervention. Conclusions: This pilot study found that individuals who played a conversation game had high rates of performing ACP behaviors within three months. These findings suggest that using a game format may be a useful way to motivate people to perform important ACP behaviors.

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Section: Methodsmentioning

confidence: 99%

Can Playing an End-of-Life Conversation Game Motivate People to Engage in Advance Care Planning?

Scoy

Green

Reading

et al. 2016

Am J Hosp Palliat Care

Self Cite

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“…18,24e28 We have previously shown that an end-of-life conversation game ''Hello'' (previously named ''My Gift of Grace'') results in satisfying, realistic, and clinically meaningful conversations. 29,30 Additionally, 70% of participants (with unknown health status) engaged in subsequent ACP behaviors after playing the game. 31 The game has been used successfully in several research settings, including populations of participants with unknown health status in both PA and KY, 29e31 South Asian Indians living in Texas, 32 and chaplainsin-training.…”

Section: Introductionmentioning

confidence: 99%

Community Game Day: Using an End-of-Life Conversation Game to Encourage Advance Care Planning

Scoy

Reading

Hopkins

et al. 2017

Journal of Pain and Symptom Management

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“…However, there are many diverse factors affecting EoL decision-making, such as culture and ethnicity (Duffy et al, 2006;Barnato et al, 2009;Wicher and Meeker, 2012), spiritual beliefs (Shah et al, 2008;Wicher and Meeker, 2012;Delgado-Guay et al, 2016), sexual orientation (Harding et al, 2012;Elk, 2015) and personality (Lattie et al, 2016) and sometimes there is discordance between an individual's values and their stated preferences for EoL care (Heyland et al, 2016). Nevertheless, despite these variances, research into EoL priorities of the general population reveals a number of common priorities, such as: physical comfort and freedom f r o m p a i n ; t h e p r e s e n c e o f f a m i l y a n d strengthening of family relationships; peaceful acceptance of EoL and spiritual concerns being met; relieving stress or burden on the family; avoiding a prolonged period of dying; and achieving a sense of control at a time of great uncertainty (Singer et al, 1999;Heyland et al, 2006;Bausewein et al, 2013;Khan et al, 2013;Van Scoy et al, 2016).…”

Section: End-of-life Priorities and Preferences Within The General (Hmentioning

confidence: 99%

Life's hard and then you die: the end-of-life priorities of people experiencing homelessness in the UK

et al. 2020

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Background: People experiencing homelessness often die young and without adequate support. In the UK, they fail to access palliative care services and their end-of-life priorities remain poorly understood. Aims: To explore the end-of-life concerns, fears, preferences and priorities of a sample of people experiencing homelessness in the UK. Methods: This is an interpretive phenomenology. Data collected through semi-structured, audio-recorded, face-to-face interviews with 21 homeless participants in the UK were analysed iteratively using thematic analysis. Findings have been interpreted through the lens of Merleau-Ponty's philosophy. Results: Eight themes are reported: spiritual concerns; practical concerns; fear of needing care; fear of being forgotten; preference for dying suddenly; preference for being somewhere comfortable where people know me; prioritising autonomy and self-determination; and prioritising authenticity. Conclusion: A strengths-based, trauma-informed, person-centred, collaborative ‘compassionate community’ approach to care is recommended for people experiencing homelessness at end of life.

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Exploring the Topics Discussed During a Conversation Card Game About Death and Dying: A Content Analysis

Abstract: Topics discussed during a nonfacilitated end-of-life conversation game are substantive and address important issues for advance care planning.

Cited by 23 publications

References 27 publications

Can Playing an End-of-Life Conversation Game Motivate People to Engage in Advance Care Planning?

Can Playing an End-of-Life Conversation Game Motivate People to Engage in Advance Care Planning?

Community Game Day: Using an End-of-Life Conversation Game to Encourage Advance Care Planning

Life's hard and then you die: the end-of-life priorities of people experiencing homelessness in the UK

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