Facilitating patient participation by embracing patients' preferences—A discussion

Assessing and reporting patient participation by means of patient preferences and experiences

“…The 4Ps applies 12 attributes that have been found to illustrate and exhaust patient participation as a concept [18]. These attributes are framed as items, echoed in the tool's two sections: a section for depicting one's preferences, i.e.…”

“…The two sections of the 4Ps employ four response options each: For patient preferences, the response options for each item are that it is: 1) unimportant; 2) somewhat important; 3) very important, or; 4) crucial (for patient participation). For patient experiences, response options are that the attribute (of patient participation) presented in the item has been experienced: 1) not at all; 2) to some extent; 3) to a large extent, or; 4) entirely [ 18 ]. …”

Interactions between persons—Knowledge, decision making, and the co‐production of practice

“…These important critical papers are followed by contributions describing and discussing numerous attempts and models to implement SDM and associated ideas in a range of practice contexts. Ann‐Catrine Eldh's analysis of “patient participation” notes that stakeholders have “diverging understandings and expectations as to what patient participation is” and that “procedures for patient participation are not inevitably person‐centred”. Eldh discusses a tool designed to facilitate greater mutual understanding of patient participation but notes that “further studies are needed to operationalize patient preferences in clinical practice, in order to facilitate patient participation in healthcare.” Chirk Jenn Ng et al propose a dual‐layered model of SDM that helps to establish priorities for patients with complex multimorbities.…”

“…It includes papers on the nature of reasoning and evidence, the on‐going problems of how to “integrate” different forms of scientific knowledge with each other, and with broader, humanistic understandings of reasoning and judgement, patient and community perspectives . Discussions of the epistemological contribution of patient perspectives to the nature of care, and the crucial and still under‐developed role of phenomenology in medical epistemology, are followed by a broad range of papers focussing on SDM, analysing its proper meaning, its role in policy, methods for realizing it and its limitations in real‐world contexts …”

Nurses' perceptions of patient participation in the myocardial infarction pathway

“…An acute setting, short and fragmented hospital stay can hinder patient participation (Eldh, Ehnfors, & Ekman, 2004;Thompson, 2007;Valaker et al, 2017), and it has been identified that patients and healthcare professionals often have different perceptions of patient participation (Eldh, 2019;Höglund et al, 2010). Patients have reported lack of information and participation in different phases of the MI pathway (Bårdsgjerde et al, 2019).…”