Facteurs psychosociaux: impact sur l’indication de greffe de moelle osseuse

Poloméni, Alice; Rio, Bernard

doi:10.1007/s11839-010-0284-4

Cited by 5 publications

(3 citation statements)

References 30 publications

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“…Another factor involved in the decision seems to be a long distance from home to the specialized hospital, as observed in Canada 12 and Australia 13 . Geographical distance has also been mentioned by hematologists in France as a factor liable to influence patients' and physicians' decision‐making in the case of patients inhabiting French overseas regions 14,15 …”

Section: Introductionmentioning

confidence: 99%

“…13 Geographical distance has also been mentioned by hematologists in France as a factor liable to influence patients' and physicians' decision-making in the case of patients inhabiting French overseas regions. 14,15 However, the fact that some patients accept allo-HSCT while others do not, and how patients' decision may be affected by the long distances involved are two issues which have not yet been thoroughly investigated. To our knowledge, no data are available on the numbers eligible for allo-HSCT who refused the transplantation.…”

Section: Introductionmentioning

confidence: 99%

“… 13 Geographical distance has also been mentioned by hematologists in France as a factor liable to influence patients' and physicians' decision‐making in the case of patients inhabiting French overseas regions. 14 , 15…”

Section: Introductionmentioning

confidence: 99%

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Consenting rather than choosing. A qualitative study on overseas patients' decision to undergo hematopoietic stem cell transplantation

Sarradon‐Eck,

Franchina,

Arnault

et al. 2024

Cancer Medicine

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ObjectiveReasons for patients' acceptance of the allogeneic hematopoietic stem cell transplantation (allo‐HSCT) proposed and how their decision may be affected by the long distances involved have not been sufficiently investigated so far. We therefore conducted a qualitative study to identify the factors involved in overseas patients' decision to accept allo‐HSCT.MethodsIn‐depth semi‐directive interviews were conducted with overseas allo‐grafted patients (n = 22), as well as one non‐consenting patient and their caregivers (n = 24). Interviews were analyzed taking an inductive thematic approach.ResultsRespondents stated that their decision to undergo the transplantation was constrained by their feeling of being in a therapeutic impasse, the need for a survival strategy, the need to survive for their family's sake, family and doctors' pressures, and the feeling of being managed. The following factors favoring patients' acceptance were the medical information received, their faith, having a family donor, peer testimonies, and positive representations of the transplantation. Factors against patients' acceptance were geographical distance from home to the transplant center, apprehension of protective isolation, fear of dying, and representations of the graft.ConclusionsThese factors, such as patient's personal values and representations, need to be weighed up in order to adapt the information exchanged accordingly. Efforts are required to relieve patients' social isolation and improve the means of providing family support.

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Section: Introductionmentioning

confidence: 99%