Factors that Influence the Acceptability of Collecting In-Home Finger Stick Blood Samples in an Urban, Low-Income Population

Borders, Ann; Grobman, William A.; Amsden, Laura; Collins, Emily T.; Holl, Jane L.

doi:10.1353/hpu.2007.0004

Cited by 12 publications

(5 citation statements)

References 21 publications

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“…43 Relevance of the research topic (6.4%) due to its familiarity for potential participants or their personal or communal concerns about the issue motivates participation, 44 as do participant-centered study schedules and procedures (5.1%) that work around the time and transportation needs of participants. 45 Several unique factors encouraged participation depending on the type of research and the subject populations. Patients and those at high risk for a disorder were motivated to participate due to possible disease prevention for themselves or society in general, but not necessarily an explicit concern for helping others.…”

Section: Motives For Participationmentioning

confidence: 99%

“…27 Other suggested solutions focus on matters of study design and implementation, including designing research in a culturally competent fashion (20.5%) through use of ethnographic methods, which study human cultural behavior 53 and give attention to beliefs about disease, illness, and socially appropriate recruitment methods. 14,41,54 Ensuring that study schedules and procedures are participant-centered (14.1%) and are compatible with individuals' needs, values, beliefs, and resources, including scheduling study activities during non-work hours and providing home visits for disabled patients, 28,45 may also increase participation. Increasing physician engagement and participation in projects (7.6%) by encouraging otherwise uninvolved physicians to participate in the research process or making research projects geographically mobile so as to incorporate medical facilities and institutions that are unconnected to the institution or practice housing the program is also a recommended solution to problems of recruiting underserved populations.…”

Section: Motives For Participationmentioning

confidence: 99%

See 1 more Smart Citation

Recruiting underserved populations to dermatologic research: a systematic review

Spears¹,

Nolan²,

O’Neill³

et al. 2011

Int J Dermatology

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Recruitment of participants to dermatologic research studies can be challenging, particularly with historically underserved populations. Recruitment of these groups is essential to ethical, valid, and useful dermatologic research. This article discusses findings from a review of 78 studies that examined factors influencing participation in health research studies with an emphasis on underserved populations, particularly women and ethnic minorities. The most commonly encountered barriers to research participation are mistrust of research, lack of access to research programs, and culturally incompetent research design. Motives to participate in research include receipt of benefit from participation, perceived opportunities to help others, and culturally competent research design. Practical methods for addressing barriers and enhancing research participation include culturally competent research design, community-based recruitment, and easily understandable informed consent. These factors should be considered when recruiting subjects for dermatologic research, especially when recruitment of underserved populations is desired. In addition, the literature demonstrates a paucity of research among rural residents, infants, and children, as well as within clinical dermatologic research.

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Section: Motives For Participationmentioning

confidence: 99%

Section: Motives For Participationmentioning

confidence: 99%

Recruiting underserved populations to dermatologic research: a systematic review

Spears¹,

Nolan²,

O’Neill³

et al. 2011

Int J Dermatology

View full text Add to dashboard Cite

show abstract

“…3 Specifically, desires for personal health benefits and to improve the health of others are frequently cited motivators for participation. 5,21,44 As in the literature, financial incentives were less commonly cited motives for participation among the women interviewed for the project described here. 45–46 Nonetheless, among low-socioeconomic status persons, financial concerns are justifiable, especially if data collection procedures are not participant-centered and participants are forced to take time from paid employment to engage in research activities.…”

Section: Discussionmentioning

confidence: 87%

Recruiting Underserved Mothers to Medical Research: Findings from North Carolina

Spears¹,

Sandberg²,

O’Neill³

et al. 2013

hpu

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Representative samples are required for ethical, valid, and useful health research. Yet, recruiting participants, especially from historically underserved communities, can be challenging. This paper presents findings from in-depth interviews with 40 mothers about factors that might influence their willingness to participate or allow their children to participate in medical research. Saliency analysis organizes the findings. Frequent and important salient themes about research participation included concerns that it might cause participants harm, hope that participants might gain a health benefit, and recognition that time and transportation resources could limit participation. Ultimately, we propose that a theoretical model, such as the Theory of Planned Behavior (TPB), will facilitate more systematic evaluation of effective methods for recruitment and retention of participants in medical research. Future research should explore the utility of such a model for development of effective recruitment and retention strategies.

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“…Serosurveys may require additional resources for social mobilization because biological specimens, often blood, are collected from participants (7). Refusal rates may be higher for surveys that collect blood specimens than surveys that collect only questionnaire data due to potential discomfort, added time for specimen collection, or participants not trusting what is done with their blood (8).…”

Section: Introductionmentioning

confidence: 99%

Acceptability of serosurveys in southern Zambia: surveyor and community perspectives

Carcelen

Limaye

Mutembo

et al. 2022

Preprint

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Background: Factors associated with whether individuals choose to participate in serosurveys are not well understood. Understanding perceptions from multiple perspectives, including the perspectives of both data collectors and participants through a holistic model such as the socio-ecological model contextualizes individual, interpersonal, and structural level influences on survey research participation. We used a multiple methods approach to characterize reasons for serosurvey participation in communities in Southern Province, Zambia where a serosurvey was conducted in 2016. Methods: The first phase conducted focus group discussions and in-depth interviews with 24 data collectors who participated in a measles-rubella serosurvey in 2016. The second phase surveyed 34 caregivers at health facilities to identify barriers and facilitators to serosurvey participation. Emergent themes were then classified into a socio-ecological model using individual, interpersonal, and structural level constructs. Results: Common themes emerged from data collectors as well as caregivers surveyed. At the individual level, providing incentives was a motivator, and some religious beliefs were described as a barrier to serosurvey participation. At the interpersonal level, family dynamics and community influences could help or hinder serosurvey participation. Community health workers were consistently named as facilitators of participation. At the structural level, concerns about specimen collection, who was selected for serosurveys, and not receiving test results arose as potential barriers. The most frequently reported facilitator was provision of information about the purpose of the serosurvey (85% of respondents). The most frequently reported barrier was lack of clarity regarding use of their blood specimen (53% of respondents). For specimen collection type, caregivers consistently preferred finger prick blood collection over both venous blood draw and oral swabs. Conclusion: Serosurvey participation was deemed acceptable to most study participants. The socioecological model revealed barriers and facilitators for participation to guide strategies to improve participation which can be applied to ongoing serosurveys for SARS-CoV-2. Serosurveys should develop an engagement plan to provide information about blood collection ahead of the serosurvey and communicate the objectives of the study through a trusted source such as community health workers.

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Factors that Influence the Acceptability of Collecting In-Home Finger Stick Blood Samples in an Urban, Low-Income Population

Abstract: Proper training of interviewers, organization of supplies, and communication with participants can be combined to maximize acceptance of in-home, finger stick blood sample collection by community-based interviewers among a low-income population.

Cited by 12 publications

References 21 publications

Recruiting underserved populations to dermatologic research: a systematic review

Recruiting underserved populations to dermatologic research: a systematic review

Recruiting Underserved Mothers to Medical Research: Findings from North Carolina

Acceptability of serosurveys in southern Zambia: surveyor and community perspectives

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