Factors that Underpin the Delivery of Effective Decision-making Support for People with Cognitive Disability

Providing support for decision making to adults with intellectual disability: Perspectives of family members and workers in disability support services

“…These findings illustrate the importance of orchestration, working collaboratively with other supporters, as a principle to inform decision-making support (Douglas, Bigby, Knox, & Browning, 2015). The underhand strategies alluded to by some support workers to circumvent the perspectives of families about some decisions of the people they supported are similar to those found in a study of relationships between siblings of older people with intellectual disability and service providers (Bigby, Webber, & Bower, 2015).…”

“I'm still here”: Exploring what matters to people with intellectual disability during advance care planning

“…It is likely that the real and perceived lack of clear information, limited guidance and limited experience around medico‐legal matters impacted on this. Decision making is a key topic in the current research related to intellectual disability (Douglas, Bigby, Knox, & Browning, ; Kohn & Blumenthal, ; National Resource Centre for Supported Decision Making, ), and it is therefore unsurprising to see it raised within the context of advance care planning. Although great strides have been made, there is still room to improve the way that people with intellectual are supported to make the “tough” or “big” decisions in their lives, including those that are part of advance care planning.…”

Conundrums of supported living: The experiences of people with intellectual disability

“…Participants knew what constituted "good" support: someone who listened, was not controlling, and had high expectations of their capacity to live independently. Reform in the sphere of support for financial and other types of decisionmaking is likely to occur in response to the rights imperatives for supported decision-making generated by the UNCRPD (United Nations, 2006;Douglas, Bigby, Knox, & Browning, 2015). For example, the state of New South Wales is currently trialling a new approach to support for financial decision-making for people with intellectual disability (http://www.…”