Familiar in the Unfamiliar – Children's, Parents', and Healthcare Professionals' Experiences of Procedure-Related Anesthesia in the Pediatric Oncological Ward

Haslund-Thomsen, Helle Lønstrup; Bauditz, Stinne Just; Kristensen, Helle Nygård

doi:10.1016/j.pedn.2021.03.008

Cited by 5 publications

(6 citation statements)

References 19 publications

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“…The physical and physiological needs play an important role in the fundamentals care (Bagnasco et al, 2020; Collier et al, 2020; Mudd et al, 2020) they are at the centre of the framework created by Feo, Donnelly, et al (2018). There is a connection between patient and the family's needs and fundamental care (Haslund‐Thomsen et al, 2021; Rey et al, 2020). Caring for patients and their families and solving their needs is important to develop an interactive process based on three dimensions named as the key to fundamental care: create a trusting relationship (Alderman et al, 2018; Bagnasco et al, 2020; Pene et al, 2021), integration of care (Mudd et al, 2020; Palese et al, 2021) and the context of care (Conroy, 2018; Kitson et al, 2010; Meehan et al, 2018; Pavedahl et al, 2021).…”

Section: Resultsmentioning

confidence: 99%

“…It is defined as a core of the Fundamentals of Care Framework (Kitson, 2018). Creating this type of relationship is not only the starting point but it is crucial for all nursing care: from the moment you meet the patient until a relationship of nursing care is necessary (Haslund‐Thomsen et al, 2021; Mudd et al, 2020; Pene et al, 2021). This is an ongoing process that allows to keep an interaction which continually builds and reinforces nurse and patient trust (Kitson, 2018).…”

Section: Resultsmentioning

confidence: 99%

“…There is a connection between patient and the family's needs and fundamental care (Haslund-Thomsen et al, 2021;Rey et al, 2020).…”

Section: Antecedentsmentioning

confidence: 99%

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Fundamental care: An evolutionary concept analysis

Ottonello

Napolitano

Musio

et al. 2022

Journal of Advanced Nursing

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Aim:To report an analysis of the concept of fundamental care in the literature.Design: An evolutionary concept analysis.Data sources: PubMed and CINAHL Complete databases were consulted using the key terms: fundamental care, fundamentals of care, essential care, basic nursing care and basic care revised. Articles published from 2008 to 2022, in English and Italian, in scholarly/peer-reviewed nursing journals were included.Methods: Rodgers's Evolutionary Method of concept analysis was used. Our thematic analysis yielded common themes related to the concept, antecedents, attributes and consequences of fundamental care.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Fundamental care: An evolutionary concept analysis

Ottonello

Napolitano

Musio

et al. 2022

Journal of Advanced Nursing

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“…Our findings reinforce previous literature regarding the positive impact of responsive interaction in children with cancer, enhancing coping across repeated procedures, 18 and engendering a feeling of safety. 19 Similarly, in a review of the experiences of acute pain in children, 20 it was concluded that actions by healthcare professionals which promote partnership with the children and their families, foster trusting relationships with a greater sense of security and positively influence their pain experiences. 20 Additionally, a model of compassion in paediatric oncology determined that attending to a person's needs and being present and responsive was especially important in young children, 21 such as our cohort.…”

Section: Discussionmentioning

confidence: 99%

Captains on call: A qualitative investigation of an intervention to support children with retinoblastoma undergoing regular eye examinations

Rich,

Plummer,

Padhy

et al. 2024

Psycho-Oncology

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BackgroundRetinoblastoma is a rare childhood ophthalmic cancer that requires frequent eye examinations under anaesthesia and painful or distressing procedures. This can cause significant anxiety for children and their families.ObjectiveWe evaluated a Starlight Children's Foundation programme, ‘Captains on Call’, at the Queensland Children's Hospital, which aims to provide positive distraction and reduce stress, anxiety and pain during the perioperative journey for children in the retinoblastoma treatment pathway. This study examined the impact of the programme on the perioperative experience of the children and their families, using a qualitative design.MethodsThis study was conducted in a paediatric operating suite at a tertiary‐level children's hospital in Australia. We interviewed a parent from 20 families (from a cohort of 40 families, including 44 children), whose children received treatment or screening for retinoblastoma, focusing on the programme's impact on the child and family at various stages during the perioperative journey. We undertook a thematic analysis of transcribed interviews.ResultsWe identified two themes, each with two sub‐themes: (1) the programme positively contributed to the overall treatment journey, by addressing different needs at different times, and helping to reframe a traumatic medical experience, and (2), the programme supported the whole family unit by empowering children through play, and adopting a family systems approach which recognised the impact of cancer treatment on the whole family.ConclusionThis study highlights the value of the Captains on Call programme in supporting children with retinoblastoma and their families during perioperative visits. The Captains, particularly as non‐medicalised professionals in a healthcare setting, built trust and rapport with the children through play over repeated episodes of care. The interprofessional collaborative approach with a reflective cycle of practice extended it beyond a programme providing simple distraction. Other retinoblastoma services may benefit from implementing a similar approach.

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“…As these factors might impact collaboration of the child during the examination, they should be considered regularly. It has been shown that trusting relationships with healthcare staff und familiarity with the processes can moderate parental burden in the context of medical procedures (Haslund‐Thomsen et al, 2021). Hence, organizing MRI procedures in a child‐ and family‐centred manner, is a relevant parameter besides work flow and quality of MRI examinations (Pua et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

Child‐centredness in paediatric magnetic resonance imaging: Information needs and experiences of children requiring magnetic resonance imaging and their parents

Inhestern

Herrmann

et al. 2023

Child

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BackgroundAssessing patient experiences is essential to provide high quality health‐care. The objectives of this study were to examine (1) child‐ and parent‐reported information status before magnetic resonance imaging (MRI), (2) experiences during an MRI and (3) needs and suggestions for improvement.MethodsChildren (≥8 years) and parents answered questionnaires (before and after planned MRI examination) covering mental condition, information status/needs, preparation for MRI, and potential stressors. Before MRI n = 132 accompanying parents and n = 91 children provided data (after MRI: n = 93 parents; n = 71 children). The mean age of the children undergoing MRI was 10.5 years (SD = 4.9). Children had on average seven previous MRIs before our survey (Range: 1–33). Twenty‐three percent of the children were to be sedated during the examination.ResultsParents and children reported low to medium levels of burden, high knowledge and high information status. For the children, most stressful factors during the MRI were boredom and noise. Main information resources were the radiologists or self‐searches. Parents of children with their first MRI reported higher anxiety levels in their children and stated a worse information status (main information source: self‐searches/internet).Parents reported needs regarding organization of the MRI (e.g., reduction of waiting times), age‐appropriate information and communication during the MRI. Children wished to visit the MRI room prior the examination (44%) and to get more information (44%). Children suggested improvements such as better sound quality of films/music, more transparency about the procedure, being in contact with a parent and shorter examinations.ConclusionResults suggest that preparation, information provision and care is perceived positively by families. Needs and suggestions for improvement were, for example, higher transparency of procedures, better communication and reduction of stress. Findings indicate that preparation in routine‐care should follow an individualized child‐focused approach, should focus on families without previous MRIs and should address children with high anxiety levels.

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Familiar in the Unfamiliar – Children's, Parents', and Healthcare Professionals' Experiences of Procedure-Related Anesthesia in the Pediatric Oncological Ward

Cited by 5 publications

References 19 publications

Fundamental care: An evolutionary concept analysis

Fundamental care: An evolutionary concept analysis

Captains on call: A qualitative investigation of an intervention to support children with retinoblastoma undergoing regular eye examinations

Child‐centredness in paediatric magnetic resonance imaging: Information needs and experiences of children requiring magnetic resonance imaging and their parents

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