Family Achievements in the Battle with Schizophrenia: :Life Experiences in a Qualitative Content Analysis Study in IRAN

Darban, Fatemeh; Mehdipour‐Rabori, Roghayeh; Farokhzadian, Jamileh; Nouhi, Esmat; Sabzevari, Sakineh

doi:10.21203/rs.3.rs-29736/v1

Cited by 1 publication

(1 citation statement)

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“…Caregivers of patients with mental illness, who are often their own family members, have a high burden of care characterized by multiple responsibilities, which affects their ability to provide adequate care for their patients [31]. The burden increases with the severity of the patient's illness [32] but also leads to the stripping of almost all patient independence. Caregiving process is described as a process of caring for a patient with mental illness to be akin to caring for a small child (infantilization).…”

Section: Discussionmentioning

confidence: 99%

Patients’ Perspectives on the Experience of Absconding From a Psychiatric Hospital: a Qualitative Study

Kaggwa

Acai

Rukundo

et al. 2021

Preprint

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Background: Absconding (i.e., escaping) is common among patients with mental illness admitted to psychiatric hospitals. Patients use various strategies to make absconding successful due to the experiences faced during admission. We conducted a study to identify patients’ perspectives on the experience of absconding from the psychiatry facility. Methods: We conducted 10 in-depth interviews with patients with a history of absconding from the hospital who were accessing care at the Mbarara Regional Referral Hospital in Mbarara city Uganda. Interviews were audio-recorded, translated when required, transcribed into English, and analyzed thematically to identify relevant themes. Results: Participants ranged in age from 18 to 55 and the majority (n = 9) were male. Most had absconded at least twice from a psychiatric facility. We identified different experiences that influenced patients’ engagement in absconding from the psychiatry hospital ward. These included: (1) stigma, (2) experiences with caregivers: mixed emotions, (3) poor resources and services, and (4) the influence of mental illness symptoms. The loneliness of stigma, negative emotions associated with the loss of important roles given the nature and framework of caregiving on the psychiatric ward, as well as the stress of limited resources as a salient part of the patient experience as it relates to absconding.Conclusion: Our findings indicate that absconding is a symptom of a larger problem with a mental health system that perpetuates stigma in its design, isolates patients and makes them feel lonely, and forces patients to rely on caregivers who infantilize them and take away all their freedom in a facility with no basic services. For many patients, this makes absconding the only option. Within such a system, all stakeholders (Policymakers, health care providers, caregivers, and patients) should be involved in rethinking how psychiatric facilities should be operated to make the journey of patient recovery more positive.

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Section: Discussionmentioning

confidence: 99%