Family Adjustment and Parenting Stress When an Infant Has Serious Liver Disease

Bowden, Michael; Stormon, Michael; Hardikar, Winita; Ee, Looi C.; Krishnan, Usha; Carmody, Diana; Jermyn, Vicki; Lee, Mee-Mee; O’Loughlin, Edward; Sawyer, Janine; Beyerle, Kathe; Lemberg, Daniel A.; Day, Andrew S.; Paul, Campbell; Hazell, Philip

doi:10.1097/mpg.0000000000000742

Cited by 12 publications

(31 citation statements)

References 21 publications

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“…Over a decade ago, mothers reported that their own mental health symptoms affect their ability to care for their children (Grupp-Phelan et al, 2003). Routine assessments of stress levels and changes in family roles and routines may be an important step in determining if caregivers could benefit from a referral to psychological services (Bowden et al, 2015). Screening questions to assess depressive symptoms in EDs or primary care practices have been recommended since 2008 by the American Academy of Pediatrics Task Force and the Bright Futures practice guidelines (Pak & Allen, 2012).…”

Section: Discussionmentioning

confidence: 99%

The Chronicity of Depressive Symptoms in Mothers of Children With Asthma

et al. 2017

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Depression can disproportionately affect low-income women. The purpose of this study was to explore the chronicity of depressive symptoms in a sample of 276 low-income inner-city mothers of children with high-risk asthma. The aims were to identify factors (asthma health status, stress, social support) associated with change in depressive symptomatology over 12 months as well as to ascertain what factors are most consistently associated with depressive symptoms. Using latent growth curve analysis, demographic variables, asthma severity, stress, and social support failed to explain changes in depressive symptomatology. The growth curve models, however, were predictive of Center for Epidemiologic Studies-Depression Scale (CES-D) scores at distinct time points indicating that higher daily stress and lower social support were associated with increased depressive symptoms. Our data highlight the chronic nature of depressive symptoms in low-income mothers of children with poorly controlled asthma. Integrating questions about caregiver psychological state across all clinical encounters with the family may be indicated.

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Section: Discussionmentioning

confidence: 99%

The Chronicity of Depressive Symptoms in Mothers of Children With Asthma

et al. 2017

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“…Because only parents with the most contact with the child were asked to participate, it is possible that the fathers in this study were more engaged than the typical father. In a small study of parents of infants with liver disease, fathers who reported being highly engaged with the child expressed more anxiety about the child than did mothers [36]. Having more adults in the household to share the responsibilities of taking care of a child with RS may help the primary caregiver to adapt more successfully, possibly explaining that finding.…”

Section: Discussionmentioning

confidence: 99%

Family functioning mediates adaptation in caregivers of individuals with Rett syndrome

Lamb

Biesecker

Umstead

et al. 2016

Patient Education and Counseling

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Objective The objective of this study was to investigate factors related to family functioning and adaptation in caregivers of individuals with Rett syndrome (RS). Methods A cross-sectional quantitative survey explored the relationships between demographics, parental self-efficacy, coping methods, family functioning and adaptation. A forward-backward, step-wise model selection procedure was used to evaluate variables associated with both family functioning and adaptation. Analyses also explored family functioning as a mediator of the relationship between other variables and adaptation. Results Bivariate analyses (N=400) revealed that greater parental self-efficacy, a greater proportion of problem-focused coping, and a lesser proportion of emotion-focused coping were associated with more effective family functioning. In addition, these key variables were significantly associated with greater adaptation, as was family functioning, while controlling for confounders. Finally, regression analyses suggest family functioning as a mediator of the relationships between three variables (parental self-efficacy, problem-focused coping, and emotion-focused coping) with adaptation. Conclusion This study demonstrates the potentially predictive roles of expectations and coping methods and the mediator role of family functioning in adaptation among caregivers of individuals with RS, a chronic developmental disorder. Practice Implications Practice Implications: A potential target for intervention is strengthening of caregiver competence in the parenting role to enhance caregiver adaptation.

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“…In line with our results, Bowden et al reported comparable levels of psychological symptoms in parents of children with serious liver disease as in the general population. (27) However, Cabizuca et al described, in a systematic review with meta-analysis, that almost one in four parents of children with chronic diseasesuffer from post-traumatic stress disorder. (28) In our cohort, parents of school-aged children with BA reported comparable stress levels as the general population, whereas other studies reported elevated parental distress in parents of LTx recipients.…”

Section: Discussionmentioning

confidence: 99%