Family asthma management routines: Connections to medical adherence and quality of life

Fiese, Barbara H.; Wamboldt, Frederick S.; Anbar, Ran D.

doi:10.1016/j.jpeds.2004.08.083

Cited by 170 publications

(168 citation statements)

References 23 publications

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“…Family routines may serve to support consistent management behaviors (Fiese, Wamboldt, & Anbar, 2005). We propose that the difficulties in attention, concentration, and impulsivity that typically characterize ADHD pose particular problems for asthma management and, consequently, lead to increased asthma morbidity.…”

mentioning

confidence: 99%

Pediatric asthma and problems in attention, concentration, and impulsivity: Disruption of the family management system.

McQuaid¹,

Weiss‐Laxer²,

Kopel³

et al. 2008

Families, Systems, & Health

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Rationale-This study assesses the relationships between ADHD symptoms, specific family asthma management domains, and pediatric asthma morbidity.Methods-Participants were 110 children with asthma and a respective parent (ages 7-17, X = 11.6 years, 25% ethnic/racial minority). Parents completed measures of asthma morbidity and report of child ADHD symptoms. Children completed measures of attention, concentration, and impulsivity. Families participated in the Family Asthma Management System Scale (FAMSS) interview to assess the effectiveness of eight features of asthma management.Results-Parent report of ADHD symptoms and poor child performance on a computerized task of sustained visual attention were associated with asthma morbidity. Paper and pencil tasks of visual attention, and an index of auditory attention, were not related to asthma morbidity. Modest associations were found between parent report of ADHD symptoms, child performance-based indicators of attention and concentration, and features of family asthma management, although not across all measures. The family response to asthma partially mediated the relationship between ADHD symptoms and morbidity.

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mentioning

confidence: 99%

Pediatric asthma and problems in attention, concentration, and impulsivity: Disruption of the family management system.

McQuaid¹,

Weiss‐Laxer²,

Kopel³

et al. 2008

Families, Systems, & Health

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“…18,19 Family factors are also relevant; organization surrounding medication routines has been associated with higher medication adherence. 20 Similarly, lower levels of family stress have been associated with higher adherence. 4 Ethnic group differences in adherence rates may also be related to financial resources.…”

Section: Resultsmentioning

confidence: 99%

Medication Adherence Among Latino and Non-Latino White Children With Asthma

2012

PEDIATRICS

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WHAT'S KNOWN ON THIS SUBJECT: Asthma disparities exist, with Latino children of Caribbean descent at risk for poor disease control. Controller medications reduce symptoms; however, medication adherence remains suboptimal. Identifying what factors predict poor medication adherence in at-risk groups could identify important treatment targets. WHAT THIS STUDY ADDS:This study is the first to assess objective rates of medication use among children with asthma in Puerto Rico. Findings suggest that interventions incorporating family resources and addressing parental beliefs about medications may be of benefit across cultural groups. abstract OBJECTIVE: Latino children of Caribbean descent remain at high risk for poorly controlled asthma. Controller medications improve asthma control; however, medication adherence remains suboptimal, particularly among minorities. This study assessed socioeconomic, familybased, and parent factors in medication adherence among children with asthma from Rhode Island (RI; Latino and non-Latino white [NLW]) and Puerto Rico. METHODS:Data collection occurred as part of a multicenter study of asthma disparities. Our sample included children (ages 7-16) prescribed objectively monitored controller medications (n = 277; 80 island Puerto Rico, 114 RI Latino, 83 RI NLW). Parents completed questionnaires regarding family background and beliefs about medications. Families participated in an interview regarding asthma management. Multilevel analyses (maximum likelihood estimates) accounting for children being nested within site and ethnic group assessed the contribution of social context, family, and parent variables to medication adherence. RESULTS:Medication adherence differed by ethnic group (F 2, 271 = 7.46, P , .01), with NLW families demonstrating the highest levels of adherence. Multilevel models indicated that parental beliefs about medication necessity and family organization regarding medication use were significant predictors of adherence, even for families below the poverty threshold. With family factors in the model, a substantial improvement in model fit occurred (Akaike Information Criterion change of 103.45).CONCLUSIONS: Adherence to controller medications was lower among Latino children in our sample. Targeted interventions that capitalize on existing family resources, emphasize structure, and address parental beliefs about the importance of medications may be of benefit to families from different cultural backgrounds.

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“…found that when caregivers perceived these routines as burdensome, they reported having lower QoL. This finding suggests that the negative effect associated with the daily management of a health condition is an important factor explaining parents' QoL (Fiese, Wamboldt, & Anbar, 2005).…”

Section: Factors Influencing Qol Of Parents Of Children With Asthmamentioning

confidence: 94%

Parents with Asthmatic Children, Quality of Life

Crespo¹,

Silva²

2014

Encyclopedia of Quality of Life and Well-Being Research

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SynonymsCaregivers' health-related quality of life with asthmatic children; Caregivers' quality of life with asthmatic children; Parents' health-related quality of life with asthmatic children; Parental quality of life with asthmatic children. DefinitionAsthma is the most prevalent chronic health condition in childhood. The quality of life (QoL) of asthmatic children and their parents/caregivers has been increasingly acknowledged as an important outcome in pediatric asthma health care. Although children's QoL has been the main focus of research, scholars and clinicians in the field of pediatric chronic conditions have also started to take an interest in how parents perceive their own QoL. In this relatively new area of inquiry, research has conceptualized and assessed parents' QoL in diverse ways. Consequently, scientific literature on parents' QoL is heterogeneous, and a clear or consensual definition for this construct is still elusive.Two main approaches have been developed to study the QoL of parents with children who have chronic conditions, including asthma. A generic approach has examined parents' QoL according to the universal definition provided by the World Health Organization, which is that QoL is a multidimensional construct covering the physical health, level of independence, psychological state, social relationships and interactions with the environment, as subjectively perceived by the individual embedded in a cultural context (The WHOQOL Group, 1998). A specific approach, which is applied in the majority of studies, has looked at the perceived impact of a child's disease and treatments on

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Family asthma management routines: Connections to medical adherence and quality of life

Cited by 170 publications

References 23 publications

Pediatric asthma and problems in attention, concentration, and impulsivity: Disruption of the family management system.

Pediatric asthma and problems in attention, concentration, and impulsivity: Disruption of the family management system.

Medication Adherence Among Latino and Non-Latino White Children With Asthma

Parents with Asthmatic Children, Quality of Life

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