Family caregiver burden of patients with osteoporotic fracture in Japan

Soen, Satoshi; Usuba, Koyo; Crawford, Bruce; Adachi, Kenji

doi:10.1007/s00774-020-01197-9

Cited by 11 publications

(5 citation statements)

References 30 publications

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“…The loss of work productivity due to caring for patients with RP was 6.6%; although there have been no published reports using the WPAI for caregivers of patients with other ophthalmological diseases, this loss is lower than has been previously reported for other diseases. For example, for caregivers of patients with chronic disease [ 18 ] and caregivers of patients with an osteoporotic fracture [ 19 ], loss of work productivity has previously been reported to be 40.7% and 61.4%, respectively. However, patients with osteoporotic fracture were older (mean age: 78 years) and more likely to be female [ 19 ], which may have contributed to the higher loss of work productivity experienced by their caregivers.…”

Section: Discussionmentioning

confidence: 99%

“…For example, for caregivers of patients with chronic disease [ 18 ] and caregivers of patients with an osteoporotic fracture [ 19 ], loss of work productivity has previously been reported to be 40.7% and 61.4%, respectively. However, patients with osteoporotic fracture were older (mean age: 78 years) and more likely to be female [ 19 ], which may have contributed to the higher loss of work productivity experienced by their caregivers. Furthermore, this discrepancy may reflect the lack of established treatment for RP, and, therefore, fewer caregiving activities associated with treatment (e.g., taking patients to hospital appointments, organizing medical appointments, and supporting patients with their medication).…”

Section: Discussionmentioning

confidence: 99%

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Economic Impacts and Quality of Life for Caregivers of Patients with Retinitis Pigmentosa: A Cross-Sectional Japanese Study

et al. 2023

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Retinitis pigmentosa (RP) is the second leading cause of visual impairment in Japan and causes progressive vision loss in affected patients. Caregiving for patients with RP is associated with socioeconomic impacts; however, data on the magnitude and scope of these impacts are lacking. This cross-sectional study surveyed informal caregivers of patients with RP in Japan. The questionnaire assessed the socioeconomic status of participants; work impacts through the Work Productivity and Activity Impairment Questionnaire adapted for caregivers; and quality of life impacts through the Japanese version of the Caregiver Reaction Assessment (CRA) and the 5-level EQ-5D version (EQ-5D-5L). Of the 37 participating caregivers, 28 (75.7%) were employed. Among those, the average annual income was 2,722,080 yen (n = 20) and the mean loss of work productivity was 6.6%. The mean EQ-5D-5L index score was 0.882, and the mean CRA total score was 2.1. A mild to very severe impact on family life, leisure and hobbies, social life, and mental health was experienced by 83.8%, 78.4%, 75.7%, and 70.3%, respectively. These results suggest that caregivers of patients with RP may be disadvantaged in terms of employment and income and may experience wide-ranging impacts on their quality of daily life.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Economic Impacts and Quality of Life for Caregivers of Patients with Retinitis Pigmentosa: A Cross-Sectional Japanese Study

et al. 2023

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“…Soen et al evaluated the caregiver burden of families of patients with osteoporotic fractures. Sixty-one percent of caregiver family members developed nancial problems such as not being able to continue their profession as before and they experienced economic stress [23].…”

Section: Discussionmentioning

confidence: 99%

Evaluation of caregiver burden, and quality of life in metastatic prostate cancer patients and caregivers; Effects of clinical and socioeconomic factors

Yıldırım¹,

Poyraz²,

Erdur³

et al. 2021

Preprint

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Purpose: To investigate the caregiver burden and quality of life (QoL) of patients with metastatic prostate cancer. The relationship between questionnaire results and medical, socioeconomic, disease and treatment related factors of the patients were evaluated. Methods: One hundred twenty one metastatic prostate cancer patients and caregivers were enrolled in this cross-sectional study. Short Form 36 (SF-36) questionnaires and Zarit caregiver burden interviews (ZCBI) were conducted with patients and their caregivers seperately. Patients’ comorbidities, presence of bone and visceral metastases, bone related events, palliative radiotherapy needs, ECOG scores, being under active chemotherapy, socioeconomic factors such as public transportation need, residential factors and caregiver related factors such as comorbidities and kinships were recorded respectively. Results: Patients’ comorbidities, ECOG score, presence and quantity of bone or visceral metastasis, bone related events, receiving palliative radiotherapy and chemotherapy, using public transportation resulted in lower SF-36 and higher ZCBI results (p < 0.001– p = 0.049). Obligation to live in rented houses were correlated with lower SF-36 physical function results (p = 0.043). Condition of the caregiver being from distant relatives resulted in a lower SF-36 score (p = 0.01 - p= 0.043). Moderate to strong negative correlation was detected between ZCBI and all SF-36 results (p < 0.001, r: -646 to -749). In ZCBI, score over 47 resulted with % 69.57 sensitivity and % 65.52 specificity (AUC = 0.671, p = 0.008). Conclusion: QoL was directly related to caregiver burden. Factors such as patient comorbidities, bone metastasis and related situations, ECOG score, presence of visceral metastasis, actively undergoing chemotherapy, low socioeconomic status and poor family support negatively affect both the quality of life of patients and caregiver burden. If a social assistance system can be implemented in which these factors can be monitored systematically, objective and cost-effective benefits related to the care of these patients and the maintenance of their quality of life can be achieved.

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“…Soen et al evaluated the caregiver burden of families of patients with osteoporotic fractures. Sixty-one percent of caregiver family members developed financial problems such as not being able to continue their profession as before and they experienced economic stress 23 .…”

Section: Agementioning

confidence: 99%

Evaluation of caregiver burden and quality of life in metastatic prostate cancer patients; Effects of clinical and socioeconomic factors

et al. 2021

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Objective: To investigate the caregiver burden and quality of life (QoL) of patients with metastatic prostate cancer and, to evaluate the relationship between questionnaire results and medical, socioeconomic, disease and treatment related factors of the patients. Methods:One hundred twenty one metastatic prostate cancer patients, and caregivers were enrolled in this cross-sectional study. Patients with metastatic prostate cancer who had at least one bone, lymph node or visceral metastasis who had undergone androgen deprivation or chemotherapy treatments for at least 3 months were included. Short Form 36 (SF-36) questionnaires and Zarit caregiver burden interviews (ZCBI) were conducted with patients and their caregivers seperately. Patients' disease, treatment, socioeconomic and caregiver related factors were recorded respectively.Results: Patients' comorbidities, ECOG score, presence and quantity of bone or visceral metastasis, bone related events, receiving palliative radiotherapy and chemotherapy, using public transportation resulted in lower SF-36 and higher ZCBI results (p<0.001-p=0.049). Obligation to live in rented houses were correlated with lower SF-36 physical function results (p=0.043). Condition of the caregiver being from distant relatives resulted in a lower SF-36 score (p=0.01 -p=0.043). Moderate to strong negative correlation was detected between ZCBI and all SF-36 results (p<0.001, r:-646 to-749). In ZCBI, score over 47 resulted with 69.57% sensitivity and 65.52% specificity (AUC =0.671, p =0.008). Conclusion:QoL was directly related to caregiver burden. Factors such as patient comorbidities, bone metastasis and related situations, ECOG score, presence of visceral metastasis, undergoing chemotherapy, low socioeconomic status negatively affect the quality of life of patients and caregiver burden. If these factors can be monitored, the care and quality of life of these patients can be improved.

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Family caregiver burden of patients with osteoporotic fracture in Japan

Cited by 11 publications

References 30 publications

Economic Impacts and Quality of Life for Caregivers of Patients with Retinitis Pigmentosa: A Cross-Sectional Japanese Study

Economic Impacts and Quality of Life for Caregivers of Patients with Retinitis Pigmentosa: A Cross-Sectional Japanese Study

Evaluation of caregiver burden, and quality of life in metastatic prostate cancer patients and caregivers; Effects of clinical and socioeconomic factors

Evaluation of caregiver burden and quality of life in metastatic prostate cancer patients; Effects of clinical and socioeconomic factors

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