Family Caregiver's Perception of Alzheimer's Disease and Caregiving in Chinese Culture

Dai, Baozhen; Mao, Zongfu; Wu, Bei; Mei, Yongxia; Levkoff, Sue E.; Wang, Huali

doi:10.1080/19371918.2014.969858

Cited by 35 publications

(46 citation statements)

References 40 publications

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“…Perceiving that caring for PWD is morally justified, and religiously and spiritually fulfilling, aligns with the Iranian tradition and Islamic belief [2]. It encourages family support, respect for the elders, and altruistic respect for patients, which is ultimately self-satisfying [33, 34]. Religiosity has been linked to having an agreeable and conscientious attribute [35].…”

Section: Discussionmentioning

confidence: 99%

What motivates informal caregivers of people with dementia (PWD): a qualitative study

et al. 2019

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BackgroundThe burden of caring for People with Dementia (PWD) is heavy; identifying incentives that motivate them in providing care is essential in facilitating and optimizing care. This study aims to explore and describe these motivating factors.MethodsWe conducted this qualitative study between January 2016 and January 2017 in Isfahan, Iran. Data were extracted through in-depth, semi-structured interviews with 19 caregivers of PWD. These data were then examined through thematic content analysis.ResultsWe identified four categories of psychological motives based on the caregivers’ feedback and experience. These include 1) Moral-based motives, 2) Religious, and spiritual motives; 3) Financial motives, and 4) Wicked motives.ConclusionsOur results revealed several aspects of caregivers’ motives. They include moral, religious, and spiritual aspects; sharing housing accommodations, and the likelihood of inheriting a portion of the patient’s assets based on unspoken rules and informal arrangements in the family, and wicked and immoral aspects. These findings can inform future efforts in enhancing the experiences of caregivers of PWD, and subsequently, the quality of care these patients receive. It further suggests that family members, members of a religious and spiritual organization, as well as social media, could play important roles in setting the stage.

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Section: Discussionmentioning

confidence: 99%

What motivates informal caregivers of people with dementia (PWD): a qualitative study

et al. 2019

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“…This could be partly due to their misunderstanding of the nature of dementia. More than half of the respondents believed that “dementia is part of normal aging.” This belief was shared by Latino and African-American older adults as well as dementia caregivers in China (15, 25–30). In addition, biomarkers for early diagnosis of dementia are yet to be validated (31).…”

Section: Discussionmentioning

confidence: 99%

Dementia Literacy among Community-Dwelling Older Adults in Urban China: A Cross-sectional Study

Zhang

Loi

Zhou

et al. 2017

Front. Public Health

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ObjectiveDelay in seeking diagnosis of dementia is common in China. Misinformation and poor knowledge about dementia may contribute to it. The study was designed to explore the nationwide dementia literacy among older adults in urban China and to investigate the factors associated with overall dementia literacy.MethodsIn a cross-sectional study, a convenience sample of 3,439 community-dwelling old adults aged 60 and over was recruited from 34 cities in 20 provinces between June 20 and August 20, 2014. All participants were administered the face-to-face mental health literacy questionnaire, which included the prevalence, symptoms, intention, and options for treatment of dementia. Stepwise multivariate regression analysis was used to explore factors associated with overall dementia literacy.ResultsThe response rate was 87.4%. The overall dementia literacy was 55.5% (SD = 20.9%) among all respondents. The correct response rate was higher for questions on symptoms (58.7–89.6%), but lower for questions on the prevalence (22.2%) and choosing appropriate professional care personnel (22.2%). Being male [OR = 1.256, 95% CI (1.022–1.543)], having lower per capita annual income [OR = 1.314, 95% CI (1.064–1.623)], lower education [OR = 1.462, 95% CI (1.162–1.839)], and suspected depression [OR = 1.248, 95% CI (1.009–1.543)] were negatively associated with overall dementia literacy.ConclusionDementia literacy among community-dwelling older adults in urban China remains very low, in particular about the impact of dementia and appropriate treatment personnel. Community educational programs aiming to close this knowledge gap are encouraged to focus on those in the population at highest risk of low dementia literacy.

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“…Many Chinese older adults prefer to be taken care of by their families. 5 Dementia caregiving in Chinese culture is considered a family affair and family members are expected to take full responsibility for providing care for their aging parents. 6,7 Chinese caregivers have consistently reported burden and stress when caring for family members with dementia.…”

Section: Introductionmentioning

confidence: 99%

“…6,7 Chinese caregivers have consistently reported burden and stress when caring for family members with dementia. 5,8,9 Research has found that chronic exposure to high burdens of care leads to detrimental physical and mental health consequences, such as increased depressive and anxiety symptoms, as well as increased risks for cardiovascular disease and hypertension. 10,11 Early-stage dementia is seen by Chinese people as normal aging, but the behavioral disturbances and neuropsychiatric symptoms of late-stage dementia are stigmatized.…”

Section: Introductionmentioning

confidence: 99%

An international systematic review of dementia caregiving interventions for Chinese families

Saw

2020

Int J Geriat Psychiatry

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Older Asians and Chinese are among the least studied populations in the dementia caregiving literature. This review seeks to critically synthesize the literature on intervention characteristics, components and tailoring strategies for dementia family caregivers in Chinese communities globally. Methods: Five electronic databases (PsychINFO, PubMed, CINAHL, ScienceDirect and Google Scholar) were searched for articles published between 1980 and July 2018. The protocol of this review was registered with PROSPERO (CRD42019132800). Results: Twenty-nine unique interventions across 39 papers met inclusion criteria. Results from descriptive and thematic syntheses revealed that most interventions were psychoeducational, CBT-based, multicomponent, structured, and less than a year in duration. Disease education, management of behavioral and psychological symptoms of dementia, stress coping techniques, and referral to community resources were frequently included in interventions. Community-, culture-and language-focused strategies were used to tailor interventions. The most common tailoring strategies were: (a) using community networks and media for outreach and recruitment; (b) making translations and language adaptations to the intervention materials; and (c) focusing on trust and therapeutic alliance. Most interventions produced desired outcomes, particularly reducing caregiver burden and increasing self-efficacy. Conclusions: To our knowledge, this is the first review to date that systematically synthesized the characteristics and tailoring of dementia caregiving interventions for Chinese families globally. Current findings suggest that most interventions are effective, although many only superficially address Chinese culture. Future research should incorporate Chinese values and cross-cultural challenges into caregiving interventions for deep-level adaptations that could potentially be more effective to engage and support Chinese caregivers.

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Family Caregiver's Perception of Alzheimer's Disease and Caregiving in Chinese Culture

Cited by 35 publications

References 40 publications

What motivates informal caregivers of people with dementia (PWD): a qualitative study

What motivates informal caregivers of people with dementia (PWD): a qualitative study

Dementia Literacy among Community-Dwelling Older Adults in Urban China: A Cross-sectional Study

An international systematic review of dementia caregiving interventions for Chinese families

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