Family Experience as Caregivers in the Rehabilitation of Stroke Patients: A Literature Review

Abstract

This study aims to summarize the research results on family experiences as caregivers in post-stroke patients’ rehabilitation processes. The method of this study used a literature review. Google Scholar and PubMed were used to find Bahasa and English articles examining families as caregivers of stroke patients. These studies were assessed using the JBI critical appraisal tools for Qualitative Study with a total of 8 factors used to the quality of the selected articles. Nine articles were reviewed with JBI scores of about 90-100%. This study found 327 articles, and after quality assessment of these studies, nine articles came to review process. The review process generated six general aspects that have been summarized by researchers representing all emerging themes, namely physical, psychological, spiritual, economic, social, and family effort aspects. The results of this literature review hope can be a reference or provision related to families as caregivers.
 
 Keywords: caregiver, family, experience, stroke

Beban Caregiver Terhadap Kualitas Hidup Keluarga Dengan Pasien Stroke

“…Penelitian yang dilakukan oleh Kumar et al (2015) menunjukkan bahwa mayoritas caregiver adalah perempuan, sehingga memperjelas peranan perempuan yang memang sejak dulu sebagai pemberi perhatian. Tingkat pendidikan menentukan seseorang untuk memiliki pengetahuan yang lebih luas, kemampuan dan keterampilan serta ketika petugas kesehatan menyampaikan pendidikan kesehatan terkait masalah kesehatan pasien, keluarga dapat memahami informasi yang diberikan yang nantinya bermanfaat untuk perawatan (Nurrandi & Putri, 2021;Putri et al, 2022;Zahra & Sutejo, 2019).…”

“…Penelitian terdahulu menyebutkan bahwa burden pada family caregiver pasien stroke dikarenakan beratnya tugas ketika merawat pasien (Agusthia, 2018;Putri et al, 2022). Keluarga sebagai orang terdekat pasien memiliki berbagai ekspektasi dalam proses perawatan (family hopes) agar pasien dapat pulih secepatnya dan diberikan berbagai bekal yang cukup oleh tenaga kesehatan (Chiang et al, 2012;Damawiyah & Ainiyah, 2018;Nurrandi & Putri, 2021). Meskipun banyaknya beban yang dipikul oleh keluarga dalam merawat pasien stroke, studi kualitatif yang melibatkan informal caregivers, dalam hal ini keluarga, menunjukan tiga tema positif yang disampaikan oleh caregiver diantaranya love and acceptance, sense of achievement fulfillment and personal growth, dan caring can be enjoyable (Greenwood et al, 2019).…”

The Effect of Bilateral Arm Training on Daily Activity in Stroke Patients

“…ADL is a collective word that refers to the basic skills required to care for oneself, such as eating, bathing, and mobility, when impaired, such as in stroke patients, can lead to an adverse quality of life [9,10]. This loss of function and independence in stroke patients can also put a burden on the family, as the family is responsible for meeting the patient's basic needs, such as eating, eliminating, and personal hygiene, all of which are included in stroke patients' daily activities [11].…”