Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder

Navot, Noa; Jorgenson, Alicia Grattan; Stoep, Ann Vander; Toth, Karen

doi:10.1177/1362361315602134

Cited by 19 publications

(14 citation statements)

References 57 publications

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“…Pada orang tua, stres dapat menyebabkan permasalahan psikologis seperti munculnya psikopatologi dan depresi (Bromley, Hare, Davison, & Emerson, 2004). Ibu yang mengalami stres dilaporkan memiliki kualitas interaksi yang rendah dengan anak-anaknya (Doussard-Roosevelt, Joe, Bazhenova, & Porges, 2003), hubungan yang kurang baik di dalam keluarga (Rao & Beidel, 2009), dan ketidakpuasan di dalam perkawinan (Gau et al, 2012;Navot, Jorgenson, Stoep, Toth, & Webb, 2015). Pada anak dengan GSA, stres yang dialami orang tua dapat memicu penurunan perkembangan (Pruitt, Willis, Timmons, & Ekas, 2016) yang berdampak kepada memburuknya karakter dan kompetensi anak (Baumrind & Thompson, 2002).…”

Section: Pendahuluanunclassified

“…Dalam kondisi sulit ini, beberapa beban psikologis dirasakan oleh ibu, seperti rasa sedih, marah, kecewa, menyalahkan diri sendiri, dan malu. Hal ini sesuai dengan penelitian sebelumnya (Navot et al, 2015) bahwa ibu mengalami penurunan harga diri, perasaan tidak berdaya, dan depresi. Kuhn dan Carter (2006) juga melaporkan adanya rasa sedih (grief) pada ibu yang memiliki anak GSA menunjukkan adanya penyangkalan, kecemasan, ketakutan, rasa bersalah, kemarahan, kepanikan, keterasingan, kebingungan, ketidakberdayaan, dan rasa malu.…”

Section: Faktor-faktor Yang Memengaruhi Ibu Bertahan Mengasuh Anak Deunclassified

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Proses Menjadi Tangguh Bagi Ibu yang Memiliki Anak dengan Gangguan Spektrum Autis

Daulay

Ramdhani²,

Hadjam³

2018

HUMANITAS

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The deficiencies of children with autism cause various difficulties resulting in maternal stress. Therefore, the ability of mothers to manage stress as the reflection of the functioning of self and hardiness personality is needed. The purpose of this study was to examine the experiences which could emerge hardiness personality in caring children with autism spectrum disorders. This research used phenomenology approach and involved five respondents selected by purposive sampling technique. The results show six themes demonstrating the experience of mother-caring children with autism spectrum disorder. The themes were: 1) difficulty, pressing, and surviving conditions; 2) social support; 3) appropriate knowledge and information related to caring children with autism; 4) religious coping; 5) the meaningfulness of life by having children with special need; 6) optimism. In conclusion, internal resources such as the ability of mother to control themselves, sense of competence, and religious coping, then external resources such as perceived social support, are the main factors influencing mother to remain in parenting.

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Section: Pendahuluanunclassified

Section: Faktor-faktor Yang Memengaruhi Ibu Bertahan Mengasuh Anak Deunclassified

Proses Menjadi Tangguh Bagi Ibu yang Memiliki Anak dengan Gangguan Spektrum Autis

Daulay

Ramdhani²,

Hadjam³

2018

HUMANITAS

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“…However, parents still report that receiving a diagnosis can be a difficult and stressful experience [31]. Once a child receives a diagnosis of ASD, parents may experience a myriad of negative emotions characterized by guilt, blame, and fear [32]. Many parents also report feelings of grief and loss as they adjust to not having a typically developing child [33].…”

Section: Autism and Parent Stressmentioning

confidence: 99%

Mindfulness and Autism Spectrum Disorder

Cachia¹

2017

Autism - Paradigms, Recent Research and Clinical Applications

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The use of mindfulness interventions for individuals with autism spectrum disorder (ASD) is a relatively new research area, which has followed a more established body of research investigating the efficacy of mindfulness interventions for parents of children with ASD. Given the chronic stress levels experienced by parents and high anxiety and stress levels in individuals with ASD, such research is well justified. The utility of mindfulness in clinical practice for individuals with ASD and their parents will be discussed. This chapter aims to evaluate the research literature, identify important limitations, and propose crucial directions for future research. Acknowledgment of the impact of attitudes, social bias, and a generational shift that may be accelerating the salience of mindfulness is discussed. The author aims to emphasize the importance of high-quality future research with robust methodological designs to clearly identify the potential role for mindfulness in this population. Despite having a solid foundation of preliminary findings, it is important that researchers refine current procedures and evaluation of mindfulness interventions for individuals with ASD and their parents while carefully selecting measures that are not solely self-report or parent report.

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“…Finding common variations among autism probands helps to subtype the disease population and allows prescribing specific treatment strategies. Early detection of ASD helps therapists to guide and inform families about the chances of pervasiveness of the disease in next siblings (99). Increased genetic understanding of ASD has tried to answer the cause of ASD associated comorbidities.…”

Section: Conclusion and Future Prospectivementioning

confidence: 99%

Towards understanding the genetics of Autism

Ouhtit¹

2016

Front Biosci

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Autism spectrum disorder (ASD) includes a group of neurodevelopmental disorders that affect communication skills, social interaction and intellectual ability. Despite evidence suggesting a strong genetic link with ASD, the genetic determinant remains unclear. Early studies focusing on candidate genes have shown that several genes associated with neuronal synaptic function are involved in development of ASD. Linkage studies have identified several single nucleotide polymorphisms (SNPs) associated with ASD, and genome-wide association studies have implicated several loci, but failed to recognize a single specific locus with strong significance, indicating heterogeneity in ASD genetic determinants. Detection of de novo copy number variations and single nucleotide variants in several ASD probands has confirmed the genetic heterogeneity of the disease. More interestingly, next generation sequencing approaches have recently identified novel candidate genes and several point mutations in sporadic ASDs, thus increasing our knowledge of ASD etiology. The current review summarizes the findings of recent studies using genetic and genomic approaches to understand the underlying molecular mechanisms of ASD. INTRODUCTIONAutism spectrum disorder is a group of heterogeneous disorders that usually develop during childhood, characterized by a wide range of symptoms, such as difficulties in communication and social interaction, restricted and repetitive behavior. ASDs often exhibit atypical behaviors such as hyperactivity,

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Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder

Cited by 19 publications

References 57 publications

Proses Menjadi Tangguh Bagi Ibu yang Memiliki Anak dengan Gangguan Spektrum Autis

Proses Menjadi Tangguh Bagi Ibu yang Memiliki Anak dengan Gangguan Spektrum Autis

Mindfulness and Autism Spectrum Disorder

Towards understanding the genetics of Autism

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