Family quality of life and psychological well‐being in parents of children with autism spectrum disorders: a double <scp>ABCX</scp> model

Pozo, Pilar; Sarriá, Encarnación; Brioso, Antonio Pérez

doi:10.1111/jir.12042

Cited by 199 publications

(196 citation statements)

References 63 publications

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“…En relación con nuestros resultados, estos parecen indicar que los estudios que analizan las diferentes estrategias de afrontamiento familiar se centran principalmente sobre acontecimientos estresantes negativos para la familia y que suelen desencadenar algún tipo de crisis familiar, como son la aparición de una enfermedad crónica (16,18,24,29,35,37) , accidentes (17) , discapacidades (8) , pérdida del trabajo y problemas financieros derivados de este (19) , entre otros, y en la mayoría de los casos, son los niños los que las padecen (16,18,20,23,24,29,30,(32)(33)(34)37) .…”

Section: Discussionunclassified

“…Estas fueron: 6 estudios sobre estrategias de afrontamiento familiar en las enfermedades crónicas (16,18,24,29,35,37) , 6 sobre el Trastorno del Espectro Autista (TEA) (20,23,30,(32)(33)(34) , 4 sobre enfermedades mentales (25,27,31,36) , 2 sobre adicciones (22,26) , 2 sobre accidentes y discapacidad (8,17) , 2 sobre reajuste familiar (21,28) , y el restante, sobre la pérdida del trabajo y las dificultades financieras (19) .…”

Section: Dussel Et Al 2011 (19)unclassified

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Estrategias de afrontamiento familiar y repercusiones en la salud familiar: Una revisión de la literatura

Martínez-Montilla

Amador-Marín

Guerra-Martín

2017

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Introducción: La salud familiar ha constituido una preocupación para todos aquellos que trabajan con la familia. La forma que tiene la familia de enfrentarse a los acontecimientos y proceso vitales estresantes es conocida como afrontamiento familiar y tiene repercusión en la salud familiar. El objetivo del estudio fue conocer las estrategias de afrontamiento familiar y su relación con la salud familiar. Metodología: Se realizó una revisión de la literatura científica a través de las siguientes bases de datos: PubMed/Medline, SCOPUS, PsycINFO y Dialnet, desde 2010 hasta 2016. Resultados: Las estrategias iniciales de búsqueda identificaron un total de 1074 resultados, siendo finalmente seleccionados 23 estudios. En cuanto a las principales situaciones familiares estresantes fueron: enfermedades crónicas, Trastornos del Espectro Autista (TEA), enfermedades mentales y adicciones, accidentes y discapacidad, reajuste familiar, problemas laborales y financieros. Y las principales estrategias de afrontamiento familiar fueron: positivas como búsqueda de información, búsqueda de apoyo familiar, social o espiritual, aceptación y mejora de la autoestima. Y las negativas fueron negación, ocultación, desconexión, auto-culpa, distanciamiento emocional, consumo de sustancia, entre otros. Conclusiones: Los acontecimientos estresantes alteran el equilibrio dinámico familiar, de ahí la importancia de que la unidad familiar posea buenas estrategias de afrontamiento. Por otro lado, es importante que los profesionales de la salud conozcan los principales estresores, así como las estrategias de afrontamiento familiar positivas, para mediante la promoción de la salud, poder prevenir los problemas derivados de un inadecuado afrontamiento familiar.Palabras clave: Salud de la familia; Estrategias de Afrontamiento; Ajuste psicológico; Salud. ABSTRACT:Introduction: Family health has been a concern for all those working with the family. The way how the family has to face the stressful events and vital process is known as family coping and has impact on family health. The objective of the study was to find family coping strategies and their relationship to family health.

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Section: Discussionunclassified

Section: Dussel Et Al 2011 (19)unclassified

Estrategias de afrontamiento familiar y repercusiones en la salud familiar: Una revisión de la literatura

Martínez-Montilla

Amador-Marín

Guerra-Martín

2017

eglobal

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“…Another interesting result is that parents who experienced a decreased impact on their QoL were more likely to be affiliated to a parental association, which is a substantial form of social support. Many studies yielded the importance of social support in parental QoL (Cappe et al 2011;Pozo et al 2014), and because of the difficulties they encounter in their daily life, parents who report an impact of their child's disorders on their QoL are probably more likely to look for social support.…”

Section: Discussionmentioning

confidence: 99%

Quality of Life in Parents of Young Adults with ASD: EpiTED Cohort

Rattaz

Michelon

Roeyers

et al. 2017

J Autism Dev Disord

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The impact of ASD on parental QOL was evaluated in the EpiTED cohort study at early adulthood. Two third of parents of young adults with ASD (66.7%) reported that their QoL was at least moderately altered. The perceived impact of ASD on parental QoL was related to the young adults' level of adaptive skills, as well as to symptom severity and the presence of challenging behaviors, which appeared to be the main risk factor. The study of change between adolescence and early adulthood showed that parents whose children had a decrease in challenging behaviors perceived a decreased impact on their QoL. These results argue for the importance to propose specific interventions to target associated challenging behaviors in ASD.

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“…Various factors are associated with parents of children with ASD reporting lower QoL. These factors include increased challenging behaviours of the child with ASD (Dardas & Ahmad, 2014a;McStay et al, 2014;Tung et al, 2014), severity of ASD (Pozo, Sarria, & Brioso, 2014), lower household income (Dardas & Ahmad, 2014a), decreased levels of social support (Pozo et al, 2014), parental distress (Dardas & Ahmad, 2014a), and parental coping style (Dardas & Ahmad, 2014a;Pozo et al, 2014). The complex interplay between these factors should, therefore, be considered when describing the QoL among parents of children with ASD.…”

Section: Mothers' Experiences When There Is a Child With Asd In Theirmentioning

confidence: 99%

Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households

McAuliffe

Cordier

Vaz

et al. 2017

J Autism Dev Disord

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This study aimed to examine the influence of differences in household status on the parental stress, coping, time use and quality of life (QoL) among mothers of children with autism spectrum disorders. Forty-three single and 164 coupled mothers completed the survey. Data were analysed using multivariate logistic regression. We found that single mothers were 1.05 times more likely to report lower levels of environmental QoL. Whilst they were 1.73 times more likely to use acceptance coping style, this association did not persist after adjusting for total number of children, household income and employment status. There was no difference in time use and stress between these mothers. Possible environmental issues for single mothers and implications for future research are discussed.

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Family quality of life and psychological well‐being in parents of children with autism spectrum disorders: a double ABCX model

Abstract: The results of this study highlight the value of the multidimensional approach. The specific patterns of results for mothers and fathers contribute to comprehension of the psychological adaptation of parents. Findings could be taken into account in interventions with families.

Cited by 199 publications

References 63 publications

Estrategias de afrontamiento familiar y repercusiones en la salud familiar: Una revisión de la literatura

Estrategias de afrontamiento familiar y repercusiones en la salud familiar: Una revisión de la literatura

Quality of Life in Parents of Young Adults with ASD: EpiTED Cohort

Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households

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