Family quality of life: perceptions of parents of children with developmental disabilities in Bosnia and Herzegovina

Dizdarevic, Alma; Memišević, Haris; Osmanovic, Armin; Mujezinovic, Amila

doi:10.1080/20473869.2020.1756114

Cited by 18 publications

(8 citation statements)

References 60 publications

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“…This is consistent with the findings of Wang et al [15] when examining mothers' and fathers' perceptions of family quality of life. In addition, this study shares similarities with many studies [15,[31][32][33] in emphasizing the significant roles both fathers and mothers play in the family dynamics surrounding children with disabilities.…”

Section: Discussionmentioning

confidence: 56%

Variations in Perceptions of Well-Being within Families of Youths with Intellectual Disabilities in Saudi Arabia

Alnahdi

2024

Children

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This study investigates the family well-being among Saudi Arabian families with youth who have an intellectual disability. A sample of 148 family members, including parents and other relatives, was surveyed on emotional well-being, family interactions, and parenting. This study aimed to explore the unique challenges and dynamics within these families, providing insights into how an intellectual disability in a youth affects the family unit. The research highlights a gap in understanding the specific impacts of intellectual disability on family life in the Saudi context. Key findings include variations in family quality of life perceptions among different family members, with fathers showing distinct levels of satisfaction. This study contributes to the development of culturally sensitive support strategies and policies, emphasizing the need for targeted interventions to enhance the well-being of these families in Saudi Arabia.

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Section: Discussionmentioning

confidence: 56%

Variations in Perceptions of Well-Being within Families of Youths with Intellectual Disabilities in Saudi Arabia

Alnahdi

2024

Children

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“…Molnárová Letovancová and Slaná / KONTAKT 155 However, research in several countries around the world does not differ significantly when it comes to knowledge of the quality of life of parents who have children with a disability, depending on the type of the child's disability. Regardless of whether it concerns physical (Chalipat et al, 2016;Pousada et al, 2013;Shivers and Resor, 2020), intelectual (Čolić et al, 2019;Dizdarevic et al, 2020;Misura and Memisevic, 2017;Singh et al, 2016;Staunton et al, 2020) or combined disability (Kolcic, 2018;Leung and Li-Tsang, 2003), the results confirm the negative impact of children's disability on the quality of life of their parents. Variations in the quality of parents' life related to the type of disability are caused by the degree and extent of the child's disability (Dizdarevic et The above-mentioned studies jointly claim that the birth of a child with a disability is a stressful situation, both emotionally and in terms of the organisation of family life.…”

Section: Kontakt / Journal Of Nursing and Social Sciences Related To ...mentioning

confidence: 63%

Factors influencing the quality of life of parents raising a child with a disability

Letovancová¹,

Slaná²

2022

Kontakt

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The aim of the paper is to present the results of research aimed at determining the quality of life of parents of a child with a disability. Theoretical base: Quality of life, as a multidimensional and multidisciplinary concept, is an important research area in social work. In Slovakia, at least 2,500 children are born with a disability every year. This situation is a long-term burden for parents and the extended family that significantly affects their quality of life. Methods: To reach our goal, we have chosen a quantitative research strategy using a valid research tool, the standardized Family Quality of Life Scale. Results: Results of the research indicate a higher level of quality of life of the respondents than we expected. However, a reduced quality of life of the respondents was found in the dimensions of the scale "Parenting", "Family interaction" and "Emotional well-being". The research also confirmed that there are statistically significant differences in the quality of life of respondents depending on marital status, selfgoverning region, and education.

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“…There is limited literature regarding parental experiences of raising children with autism in Bosnia and Herzegovina. Existing studies have examined parental perspectives regarding the educational opportunities for their children (Mujkanovic et al, 2016;Mujkanovic et al, 2017) and the family quality of life (Disdarevic et al, 2022). In relation to education, parents feel there should be more treatment options for their children, and they should be made more widely available to children with autism.…”

Section: This Studymentioning

confidence: 99%

Exploring the Parental Experiences in the Media: A Qualitative Analysis of Articles Written by Parents of Children with Autism in Bosnia and Herzegovina

Celebic¹,

Memišević

2023

J. Heal. Rehab. Sci.

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Aim: This paper presents a qualitative study of the experiences of parents raising children with autism, as reflected in the media. The study aimed to explore the lived experiences of parents of children with autism and the challenges they face in Bosnia and Herzegovina. Methods: A content analysis of 20 media articles featuring parents of autistic children was conducted. The articles were selected from a range of sources, including newspapers, magazines, and online news portals. Results: We identified four major themes: supports, education, spousal relationships, and future. It should be noted that these themes are often intertwined. Conclusion: The findings highlight the importance of providing support and resources to parents of children with autism, as well as the need for greater awareness and understanding of the challenges they face. The implications of these findings for policy and practice are discussed, and suggestions for future research are presented.

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Family quality of life: perceptions of parents of children with developmental disabilities in Bosnia and Herzegovina

Cited by 18 publications

References 60 publications

Variations in Perceptions of Well-Being within Families of Youths with Intellectual Disabilities in Saudi Arabia

Variations in Perceptions of Well-Being within Families of Youths with Intellectual Disabilities in Saudi Arabia

Factors influencing the quality of life of parents raising a child with a disability

Exploring the Parental Experiences in the Media: A Qualitative Analysis of Articles Written by Parents of Children with Autism in Bosnia and Herzegovina

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