Family Relationships and Adaptation to Spinal Cord Injury: A Qualitative Study

Rintala, Diana H.; Young, Mary Ellen; Spencer, Jean; Bates, P. Sarah

doi:10.1002/j.2048-7940.1996.tb01679.x

Cited by 18 publications

(14 citation statements)

References 19 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Seven papers of potential relevance were omitted from the review because they did not explore the experience of rehabilitation from patients' perspectives (the focus of this review) but specific, researcher-prioritized issues of goal setting, 38 clinical reasoning, 39 the role of the family, 40 adaptation to wheelchair use, 41 perceived rehabilitation needs 42 and the experience of hope. 43,44 Only two papers had sought explicitly to explore patients' perspectives of the experience of rehabilitation following SCI per se.…”

Section: Resultsmentioning

confidence: 99%

Experience of rehabilitation following spinal cord injury: a meta-synthesis of qualitative findings

Hammell¹

2007

Spinal Cord

View full text Add to dashboard Cite

Study design: Meta-synthesis of qualitative research. Objectives: To identify, compare and synthesize published qualitative evidence concerning the experience of rehabilitation following spinal cord injury (SCI). Methods: Published articles were identified from the Medline, CINAHL and Sociological abstracts databases, a hand search through selected journals published since 1990, and from reference lists. These were assessed for their relevance to the focus of interest and appraised for rigour. The key themes that emerged from the data were summarized, compared and synthesized. Results: The search located 64 papers and four books, of which eight papers (describing seven studies) met the review criteria for relevance and rigour. Thematic comparison and synthesis resulted in the identification of seven concepts that encapsulate the important dimensions of rehabilitation from participants' perspectives: (1) the importance of specific staff qualities; (2) the need for a vision of future life possibilities; (3) the importance of peers; (4) the relevance of programme content; (5) the institutional context of rehabilitation; (6) the importance of reconnecting the past to the future; (7) the importance of meeting the needs of the real world. Conclusions: If rehabilitation services are to be evidence-based, relevant and effective in meeting the needs of people with SCI they must be informed by the perspectives of people with SCI. The findings of this review suggest that the most important dimension of rehabilitation for people with SCI is the calibre and vision of the rehabilitation staff.

show abstract

Section: Resultsmentioning

confidence: 99%

Experience of rehabilitation following spinal cord injury: a meta-synthesis of qualitative findings

Hammell¹

2007

Spinal Cord

View full text Add to dashboard Cite

show abstract

“…13 Several studies have shown negative effects of giving support on the quality of life of the caregivers of persons with SCI. 11,[14][15][16][17][18][19] Weitzenkamp et al studied stress and depression in 124 spouses of persons with SCI that had been injured more than 23 years ago. Spouses who were caregivers reported higher levels of stress, burnout, fatigue, resentment and depression compared to spouses who were not caregivers.…”

Section: Introductionmentioning

confidence: 99%

Burden of support for partners of persons with spinal cord injuries

Post

Bloemen

Witte³

2005

Spinal Cord

111

View full text Add to dashboard Cite

Study design: Cross-sectional survey. Objectives: (1) To describe the support given to persons with spinal cord injuries (SCI) by their partners, (2) to describe the perceived burden of support by partners and (3) to examine predictors of perceived burden of support. Setting: The Netherlands. Methods: All members of the Dutch patients organisation DON (N ¼ 1004) and their caregivers, if applicable, were invited. Physical disability of the person with SCI was measured using the Barthel Index (BI). A number of secondary conditions, other practical problems and psychosocial problems were recorded. Partner support was described using a list of ADLsupport, other practical support and emotional support. Burden of support was measured by a six-item measure (Cronbach's alpha 0.92), Nonparametric descriptive statistics and correlations were used. Linear regression was used to identify predictors of caregiver burden. Results: Responses were obtained from 461 persons with SCI. Of 265 couples, patient as well as partner data were available. Mean age of the partners was 49.4 years (SD 12.2) and 69.8% were women. Mean BI of the persons with SCI was12.3 (SD 4.7) on a 0-20 scale and 60.4% were seriously disabled (BIo15). Most partners provided various kinds of support. ADLsupport and other practical support were given much more often by partners of persons with serious disability, but less difference was seen regarding emotional support. Professional (paid) support was obtained by 45.3% of all couples. Perceived burden of support was high in 24.8% of partners of persons with serious disabilities against 3.9% of partners of persons with minor disabilities. Significant predictors of caregiver burden were (in order of importance) the amount of ADL support given, psychological problems of the patient, partner age, partner gender, BI score and time after injury (total explained variance 47%). Conclusion: A substantial proportion of partners of persons with SCI suffer from serious burden of support. Prevention of caregiver burnout should be part of the lifelong care for persons with SCI.

show abstract

“…1,2 The adjustment process can result in a significant psychological burden. 3,4 Leisure as an important mechanism of coping with stress 5,6 has been discussed in the literature. Studies have documented that reduction or abandonment of leisure can lead to increased psychological distress.…”

Section: Introductionmentioning

confidence: 99%

Leisure satisfaction and psychiatric morbidity among informal carers of people with spinal cord injury

2006

View full text Add to dashboard Cite

Study design: Cross sectional survey. Objective: To examine the nature and prevalence of common mental disorders among informal carers of people with Spinal Cord Injury (SCI) and the association with their leisure satisfaction. Setting: Christian Medical College, Vellore, Tamilnadu, India. Methods: A cross-sectional survey of informal carers of people SCI at the Department of Physical Medicine and Rehabilitation. Fifty-three informal carers of people with SCI were interviewed using the Revised Clinical Interview Schedule to assess psychiatric morbidity, and using the Leisure Satisfaction Scale to measure leisure and contentment. Data on carers with psychiatric morbidity were compared to those without common mental disorders using univariate and multivariate statistics. Results: Study reported a high morbidity (53%), with most consistent diagnoses of depression and anxiety. Carers who were spouses, women, currently married and those with lower education had greater psychiatric morbidity and lesser leisure satisfaction, even after adjusting for age and education using logistic/linear regression. Age, occupation, residence, socioeconomic status, type and duration of SCI were not associated with either morbidity or leisure satisfaction. Conclusion: Many carers of people with SCI suffer from psychiatric morbidity and also have low scores on leisure satisfaction.

show abstract

Family Relationships and Adaptation to Spinal Cord Injury: A Qualitative Study

Cited by 18 publications

References 19 publications

Experience of rehabilitation following spinal cord injury: a meta-synthesis of qualitative findings

Experience of rehabilitation following spinal cord injury: a meta-synthesis of qualitative findings

Burden of support for partners of persons with spinal cord injuries

Leisure satisfaction and psychiatric morbidity among informal carers of people with spinal cord injury

Contact Info

Product

Resources

About