Family stress and its coping strategies related to children with cerebral palsy at Azadi Teaching Hospital in Kirkuk City

“God gave you a special child because you are special”: difficulties, coping strategies, and parental burnout of Jewish mothers – a qualitative study

“…Regarding practical coping strategies , most mothers with low PB were more willing to receive help for caring for their child from their spouse or close family members, compared to mothers with high PB, who preferred taking care of the child by themselves, mainly due to feeling guilty, the perception that caring for the child is solely their role, and an inability to trust others as caregivers. This is supported by previous studies where the feeling of guilt and exclusive responsibility for the child is explained by the mother’s recognition that only she has the necessary skills and knowledge to manage the child’s condition according to the severity of the disability, and their fear that other caregivers might harm or worsen the child’s clinical condition ( Ahmed and Al-Mosawi, 2018 ; Tsibidaki, 2022 ). Our findings indicate that mothers’ willingness to accept practical assistance to help with their childcare may contribute to reducing their PB.…”

“…The results of the first quantitative phase of the research indicated that PB of mothers of children W-SND (non-orthodox and ultra-orthodox) was significantly higher than that of mothers of children WO-SN. Following these results, in order to identify the mothers’ level of PB, the risk levels were calculated according to the suggestion of Roskam et al’s “A step forward in the conceptualization and measurement of Parental Burnout,” ( Roskam et al, 2018 ) as follows: the sum of the responses (range 23–161 [23 × 1 through 23 × 7]) to all the items was categorized into a five-rank scale of risk of PB: 0 = no PB (< 35), 1 = low risk ( Tix and Frazier, 1998 ; Tarakeshwar and Pargament, 2001 ; Green, 2007 ; Broberg, 2011 ; Neely-Barnes et al, 2011 ; Pisula, 2011 ; Pillay et al, 2012 ; Ahles et al, 2016 ; Gonen, 2016 ; Singal, 2016 ; Tsai et al, 2016 ; Vanegas and Abdelrahim, 2016 ; Ahmed and Al-Mosawi, 2018 ; Fusch et al, 2018 ; Mitter et al, 2019 ; Noble and Heale, 2019 ; Enea and Rusu, 2020 ; Tsibidaki, 2022 ), 2 = medium risk (54–70), 3 = high risk (71–88), and 4 = has PB (89+). Following this classification, 22 mothers of children W-SND who agreed to be interviewed in the quantitative questionnaire, were invited to participate in the study [12 with low risk for PB ( Nelson et al, 2014 )] and ten with high risk ( Bristow et al, 2018 ) or have PB ( Masefield et al, 2020 ).…”