Fatores relacionados à qualidade de vida de pais de crianças com deficiência auditiva

Abstract

Hearing loss among children, particularly those with severe and profound hearing impairment, has an effect on their communication and development, which in turn can have a significant impact on their parents. This study aimed to evaluate the quality of life of parents of children with hearing loss and identify the associated factors. A cross-sectional study was carried out involving parents of children that went through phonoaudiological therapy at a public university clinic in the city of São Paulo. The research instruments used were: the World Health Organization Quality of Life Instrument, Short Form (WHOQOL-bref), the Social Support Questionnaire 6 (SSQ-6) and the General Health Questionnaire (GHQ-12). Inferential statistical analysis was performed using the Student's t-test. The study included 29 parents, 26 mothers and 3 fathers, of 27 children with severe and profound hearing impairment. The mean of the domain scores of the WHOQOL-bref, on a scale of 0-100, ranged between 40-60 and the overall score was 53. The best performance was achieved in the physical domain (60.3) and the worst in the environment domain (40.5). The main factor associated with all domains of the WHOQOL-bref, as well as overall score was being satisfied with social support.

Quality of Life in Mothers of Children with Microcephaly in the Northeast of Brazil

“…protection, home environment, financial resources, health and social care, including availability and quality, opportunity to acquire new information and skills, participation and recreation/leisure opportunities, and the physical environment including pollution, noise, traffic, weather and transportation.Another study with parents of hearing-impaired children, using the same questionnaire tool, also verified that the environmental domain of WHOQOL-bref was the most compromised[6]. This aspect is related to the housing and health conditions of the G1 group, especially the availability of transportation to take the child to the appointments.…”

“…Our study evaluated the QL of the mothers of children with microcephaly due to the increasing number of cases in Brazil and in other countries, and the impact that the disease causes on the life of these mothers. Previous studies have evaluated the QL of parents or caretakers of children with developmental disabilities or disorders such as autism, Down's syndrome and cerebral palsy [6,10,11], but no studies on the QL of the mothers of children with microcephaly were found.…”

“…For this reason, when the mother is informed about the existence of a congenital malformation, her concerns for the future can increase considerably. These concerns accompany the mother throughout her life, with greater or lesser intensity, since such a disability is invariably associated with suffering, discomfort, and doubts, and requires a longterm investment, impacting the mother's quality of life [6].…”

O Que Diz a Literatura Sobre Os Achados Audiológicos Em Crianças Com Microcefalia Por Zika Vírus Congênito: Uma Revisão Integrativa

“…A literatura apresenta alguns estudos que versam sobre as consequências dessas concentrações de profissionais e também de serviços (JARDIM et al, 2017;TEIXEIRA, 2007;ALVARENGA et al, 2011;RAMIRES;BRANCO-BARREIRO;PELUSO, 2016). A conclusão desses autores é que apesar da qualidade considerada positiva dos serviços prestados, ainda sim existe a dificuldade de acesso.…”

O Efeito De Diferentes Frequências De Treinamento De Força E Suas Influências Nas Adaptações De Força E Área De Secção Transversa Muscular

“…Um estudo realizado por Ramires et al (2016) visando avaliar a qualidade de vida de pais de crianças com deficiência auditiva e verificar os fatores associados, concluiu que a qualidade de vida dos pais de crianças com deficiência auditiva bilateral de grau severo e/ou profundo foi comprometida com aspectos relacionados ao meio ambiente e psicológicos.…”