Fear-avoidance beliefs, exercise capacity, and activity-related dyspnea during pulmonary rehabilitation in patients with COPD

Janssens, Thomas; Moortel, Zora Van de; Geidl, Wolfgang; Pfeifer, Klaus; Stenzel, Nikola; Lehbert, Nicola; Wittman, Michael; Schultz, Konrad; Leupoldt, Andreas von

doi:10.1183/13993003.congress-2018.pa3635

Cited by 2 publications

(1 citation statement)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The typical disease manifestation of pneumoconiosis, particularly the breathless attacks, exceeded the coping ability of the pneumoconiosis patients, rendering them to perceive the loss of control over the disease, and then psychological distress and "dyspnea-related fear-avoidance belief" were elicited. Such belief has been identified as a major hindrance to effective self-care among patients with chronic obstructive pulmonary disease (COPD) (Janssens et al, 2018). Neuroimaging research has confirmed the role of emotional processing in the perception of dyspnea, and the use of environmental cues has been shown to trigger dyspnea in COPD patients even in the absence of physical activity (Herigstad et al, 2015(Herigstad et al, , 2016.…”

Section: Discussionmentioning

confidence: 99%

The Lived Experience of Patients and Family Caregivers in Managing Pneumoconiosis

Tam

2021

Qual Health Res

View full text Add to dashboard Cite

The daily challenges of patients with pneumoconiosis and their caregivers in living with and providing care for this disease remain unexplored. As guided by the interpretive description, we found that pneumoconiosis patients suffered from highly anxiety-provoking symptoms and physical debilitation, which evoked high levels of distress and sense of impending death. The reduced functional capacity disrupted patients’ role functioning and self-esteem. The perceived stigma of the embarrassing symptoms and treatments further disrupted their self-concept and social lives. Providing care for pneumoconiosis patients was demanding and burdensome, which jeopardized family caregivers’ physical, emotional, and social well-being, and the relationship strain with the patients added further frustration to them. The perceived caregiving gain supported them to fully engage in daily caregiving. To improve the well-being of pneumoconiosis patients, a comprehensive empowerment-based dyadic care model is required to optimize adaptive behavioral changes and self-esteem, and improve self-efficacy in disease management for this cohort.

show abstract

Section: Discussionmentioning

confidence: 99%