Feasibility of an eHealth application “OncoKompas” to improve personalized survivorship cancer care

Abstract

PurposeThe purpose of this study was to investigate the feasibility of an online self-management application (OncoKompas) among cancer survivors. In OncoKompas, cancer survivors can monitor their quality of life (QOL) via participant reported outcomes (PROs) (“Measure”), which is followed by automatically generated individually tailored feedback (“Learn”) and personalized advice on supportive care services (“Act”).MethodsA pretest–posttest design was used, conducting a survey before providing access to OncoKompas, and 2 weeks after, followed by an interview by a nurse. Adoption was defined as the percentage of cancer survivors that agreed to participate in the study and returned the T0 questionnaire. Implementation was defined as the percentage of participants that actually used OncoKompas as intended (T1). General satisfaction was assessed based on the mean score of three study-specific questions: (1) general impression of OncoKompas, (2) the user-friendliness, and (3) the ability to use OncoKompas without assistance (10-point Likert scales). Furthermore, satisfaction was measured with the Net Promotor Scale (NPS).ResultsOncoKompas was feasible with an adoption grade of 64 %, an implementation grade of 75–91 %, a mean satisfaction score of 7.3, and a positive NPS (1.9). Sociodemographic and clinical factors and QOL were not associated with satisfaction. Several facilitators and barriers related to the feasibility of OncoKompas were identified.ConclusionOncoKompas is considered feasible, but has to be further improved. In order to enhance feasibility and increase satisfaction, we have to balance the time it takes to use OncoKompas, measurement precision, and tailoring towards personalized advices.

‘Oncokompas’, a web-based self-management application to support patient activation and optimal supportive care: a feasibility study among breast cancer survivors

“…To ensure sustainable usage, Oncokompas is developed following an iterative participatory design [12,23,25,26], meaning that we strive for constant optimization of Oncokompas while involving cancer survivors and healthcare professionals (HCPs) in each step of the development process. First, a needs assessment was conducted among BC and head-and neck cancer (HNC) survivors and HCPs [12,25].…”

“…Next, usability of a prototype of Oncokompas was tested by HNC survivors in two iterative cycles and HCPs participated in cognitive walkthroughs [27]. Subsequently, HNC survivors participated in a multi-center study to assess feasibility of this prototype [23]. In response to the results of this feasibility study, Oncokompas was optimized.…”

“…To stimulate patient activation in cancer survivors, we developed the eHealth self-management application 'Oncokompas' [23]. Oncokompas aims to increase the knowledge of cancer survivors on the impact of cancer and its treatment on various aspects of their personal HRQOL, and to facilitate access to supportive care.…”

A systematic review of the measurement properties of the European Organisation for Research and Treatment of Cancer In-patient Satisfaction with Care Questionnaire, the EORTC IN-PATSAT32

“…The literature search was part of a larger systematic review (Prospero ID 42017057237 [14]) investigating the validity of 39 different PROMs measuring quality of life of cancer survivors included in an eHealth application called “Oncokompas” (Amsterdam, the Netherlands) [15–18]. The databases Embase, Medline, PsycINFO, and Web of Science were searched for publications that investigated measurement properties of these 39 PROMs including the EORTC IN-PATSAT32.…”

Adherence to a Mindfulness and Relaxation Self-Care App for Cancer Patients: Mixed-Methods Feasibility Study (Preprint)

“…This result is in line with a study by Ruland et al [49], in which an analysis of use patterns in an eHealth intervention to support cancer patients' illness management revealed that female patients used the system almost twice as often as male patients. However, a study by Duman-Lubberding et al [50] investigated the feasibility of an online self-management application and did not find a gender difference in adherence. Therefore, it seems likely that the type of intervention (e.g.…”