‘Oncokompas’, a web-based self-management application to support patient activation and optimal supportive care: a feasibility study among breast cancer survivors

Melissant, Heleen C.; Leeuw, Irma M. Verdonck‐de; Lissenberg‐Witte, Birgit I.; Konings, Inge R.; Cuijpers, Pim; Uden–Kraan, Cornelia F. van

doi:10.1080/0284186x.2018.1438654

Cited by 60 publications

(101 citation statements)

References 56 publications

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“…There were three randomized controlled trials (RCTs) which were presented in five different studies [36][37][38][39][40] (with predominantly quantitative study designs [36,37,39,40] and one mixedmethods RCT and process evaluation study [38]), three feasibility studies, all with quantitative study designs [41][42][43], one qualitative early user testing study [44] and two evaluation studies [45,46] that had qualitative [45] and mixed-methods [46] study designs. The studies with quantitative designs that constituted the majority of all studies in this review (n = 7) used single-group feasibility design [43], an RCT [36,37,39], a pilot RCT [40], a pre-and post-test feasibility study [41] and a randomized parallel-group feasibility study [42]. The two studies with the entirely qualitative designs and -Level of education p = 0.004 -Health literacy skills p = 0.038 No significant association between satisfaction and:…”

Section: Resultsmentioning

confidence: 99%

Acceptability of online exercise-based interventions after breast cancer surgery: systematic review and narrative synthesis

et al. 2020

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Purpose eHealth and mHealth approaches are increasingly used to support cancer survivors. This review aimed to examine adherence, acceptability and satisfaction with Internet-based self-management programmes for post-surgical cancer rehabilitation and to identify common components of such interventions. Methods Nine electronic databases were searched from inception up to February 15, 2020, for relevant quantitative and qualitative studies evaluating Internet-based cancer rehabilitation interventions. Studies were required to include an exercise or physical activity–based self-management intervention and a measure of adherence, acceptability or user satisfaction with the programme. Two independent reviewers performed all data extraction and quality assessment procedures. Data were synthesized using a narrative approach. Results Six hundred ninety-six potential papers were identified and screened. Eleven met the inclusion criteria. Interventions had wide variations in levels of adherence, but the majority were reported as being acceptable to the users. Increased acceptability and user satisfaction were associated with interventions which were seen as time and cost-efficient, requiring acquisition of minimal or no new skills, which used coherent language, or which provided tailored information. The majority contained behaviour change components such as goal setting. Conclusions Despite high levels of heterogeneity between studies, Internet-based approaches may be an acceptable method for the delivery of self-management interventions in post-surgical cancer rehabilitation. Implications for Cancer Survivors There is a need for further studies exploring factors associated with increased user engagement and usage of digital interventions in cancer rehabilitation settings. These findings should be used to help develop interventions prior to testing their effectiveness in adequately powered randomized controlled trials.

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Section: Resultsmentioning

confidence: 99%

Acceptability of online exercise-based interventions after breast cancer surgery: systematic review and narrative synthesis

et al. 2020

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“…The literature search was part of a larger systematic review (Prospero ID 42017057237) [ 16 ], investigating the validity of 39 PROMs measuring HRQOL of cancer patients included in an eHealth self-management application “Oncokompas” [ 17 – 21 ]. We performed a systematic search of Embase, Medline, PsycINFO, and Web of Science, to identify studies investigating the measurement properties of these 39 PROMs, including the QLQ-CR29.…”

Section: Methodsmentioning

confidence: 99%

Measuring health-related quality of life in colorectal cancer patients: systematic review of measurement properties of the EORTC QLQ-CR29

Hout

Neijenhuijs

Jansen

et al. 2019

Support Care Cancer

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Introduction The EORTC QLQ-CR29 is a patient-reported outcome measure to evaluate health-related quality of life among colorectal cancer patients in research and clinical practice. The aim of this systematic review was to investigate whether the initial positive results regarding the measurement properties of the QLQ-CR29 are confirmed in subsequent studies. Methods A systematic search of Embase, Medline, PsycINFO, and Web of Science was conducted to identify studies investigating the measurement properties of the QLQ-CR29 published up to January 2019. For the 11 included studies, data were extracted, methodological quality was assessed, results were synthesized, and evidence was graded according to the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) methodology on the measurement properties: structural validity, internal consistency, reliability, measurement error, construct validity (hypothesis testing, including known-group comparison, convergent and divergent validity), cross-cultural validity, and responsiveness. Results Internal consistency was rated as “sufficient,” with low evidence. Reliability was rated as “insufficient,” with moderate evidence. Construct validity (hypothesis testing; known-group comparison, convergent and divergent validity) was rated as “inconsistent,” with moderate evidence. Structural validity, measurement error, and responsiveness were rated as “indeterminate” and could therefore not be graded. Conclusion This review indicates that current evidence supporting the measurement properties of the QLQ-CR29 is limited. Additionally, better quality research is needed, taking into account the COSMIN methodology. Electronic supplementary material The online version of this article (10.1007/s00520-019-04764-7) contains supplementary material, which is available to authorized users.

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“…22,55 Electronic collections of PROs also provide the possibility of immediate feedback to the patient and could be combined with some kind of web-based self-management application to support patient education, activation, and empowerment. 56 However, electronic questionnaires may not be feasible for all patients due to language or skill barriers, particularly older people who lack computer experience or those with multiple morbidities. 57 The technical feasibility of integrating PRO data into the electronic medical record has been provided in some settings and makes the collection of PRO measurements more cost-effective.…”

Section: Discussionmentioning

confidence: 99%

<p>Are patient-reported outcomes useful in post-treatment follow-up care for women with early breast cancer? A scoping review</p>

Riis¹,

Bechmann²,

Jensen³

et al. 2019

PROM

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Background: Patient-reported outcomes (PROs) are frequently used to evaluate treatment effects and quality of life in clinical trials. The application of PROs in breast cancer clinics is evolving but their use to generate real-time information for use in follow-up care is uncommon. This proactive use might help to shift healthcare delivery toward a more patient-centered approach by acting as a screening tool for unmet needs or a dialogue tool to discuss issues proposed by the patient. Aims: This review aims to determine the effects and feasibility of using PROs proactively during follow-up care in early breast cancer. Materials and methods: A systematic search was conducted in January 2019 in PubMed, Cochrane Library, Embase, and CINAHL. Studies that exclusively concerned women treated for early breast cancer where PROs were used as a proactive tool during follow-up were included. Results: The search revealed a total of 653 records and four eligible studies were identified; three of which concerned the use of PROs both as a screening tool and as a dialogue tool, and one study in which PROs were used solely as a screening tool. The studies explored the feasibility of collecting and integrating PROs in the clinic and their ability to detect otherwise unrecognized problems. All of the included studies were prone to bias, but they point to potential benefits in respect of better symptom management in follow-up care. Conclusion: Our search identified a small number of low to moderate quality studies of the proactive use of PROs during follow-up after treatment for early stage breast cancer. The limited evidence available suggests that PROs may be useful for providing a more complete picture of the patient's symptoms and problems, possibly leading to improvements in symptom management.

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‘Oncokompas’, a web-based self-management application to support patient activation and optimal supportive care: a feasibility study among breast cancer survivors

Cited by 60 publications

References 56 publications

Acceptability of online exercise-based interventions after breast cancer surgery: systematic review and narrative synthesis

Acceptability of online exercise-based interventions after breast cancer surgery: systematic review and narrative synthesis

Measuring health-related quality of life in colorectal cancer patients: systematic review of measurement properties of the EORTC QLQ-CR29

<p>Are patient-reported outcomes useful in post-treatment follow-up care for women with early breast cancer? A scoping review</p>

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