Financial and Employment Problems in Families of Children With Special Health Care Needs: Implications for Research and Practice

Looman, Wendy S.; O’Conner-Von, Susan; Ferski, Gabriela; Hildenbrand, Debra A.

doi:10.1016/j.pedhc.2008.03.001

Cited by 53 publications

(42 citation statements)

References 19 publications

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“…The findings indicated that for most caregivers, the per capita income of the studied groups was low, which is similar to the result found by Raina et al 35 in a study with parents of children with Cerebral Palsy (CP). These results are consistent with the interpretation that caring for a child with disabilities reduces the possibility of engaging in paid work, particularly full-time work, and constitutes a risk to economic stability 36 .…”

supporting

confidence: 89%

Sobrecarga dos cuidadores de crianças e adolescentes com Síndrome de Down

Barros

et al. 2017

Ciênc. saúde coletiva

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supporting

confidence: 89%

Sobrecarga dos cuidadores de crianças e adolescentes com Síndrome de Down

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et al. 2017

Ciênc. saúde coletiva

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“…This picture increases the stress for the members and might be a factor for family conflict (8)(9) .…”

Section: Discussionmentioning

confidence: 99%

“…The social inequalities and the poverty are dynamic and multidimensional phenomena that can interfere due to the condition of the child (9) . Thus, the cost of the treatment is a significant concern and for a long term, increasing the stress levels of the parents (9,(18)(19) .…”

Section: Discussionmentioning

confidence: 99%

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Experiences from families of children with cerebral paralysis in context of social vulnerability

Baltor

Dupas

2013

Rev. Latino-Am. Enfermagem

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the social vulnerability influences how the family bears the chronic condition. Professionals and strategies of public health are a power to minimize impacts including those related to the family budget, but they have not been effective. They need to be sensitized to become supporting resources, to offer and to guide the access to the support networks and to spur the social service in action when necessary. This study adds knowledge to the already existing by pointing out peculiarities of the family experience in situations regarding two variables of difficult handling: chronicity and social vulnerability, evidencing the role of the professional in search of the solution for the confrontation of demands and sufferings together with the family.

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“…47 Although some innovative employers offer benefits that might support employees of children with disabilities, 48 having a child with a disability is still associated with reduced parental employment. Single parents of children with technology dependencies are 15 times more likely to quit employment secondary to care responsibilities at home than those in 2-parent families.…”

Section: Parents Of Children With Disabilities Need Financial Supportmentioning

confidence: 99%

Parent-Provider-Community Partnerships: Optimizing Outcomes for Children With Disabilities

Murphy¹,

Carbone²

2011

Pediatrics

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Children with disabilities and their families have multifaceted medical, developmental, educational, and habilitative needs that are best addressed through strong partnerships among parents, providers, and communities. However, traditional health care systems are designed to address acute rather than chronic conditions. Children with disabilities require high-quality medical homes that provide care coordination and transitional care, and their families require social and financial supports. Integrated community systems of care that promote participation of all children are needed. The purpose of this clinical report is to explore the challenges of developing effective communitybased systems of care and to offer suggestions to pediatricians and policy-makers regarding the development of partnerships among children with disabilities, their families, and health care and other providers to maximize health and well-being of these children and their families. Pediatrics 2011;128:795-802 INTRODUCTIONChildren with special health care needs are a group of 10 million US children with a wide variety of conditions, medical needs, and caregiving requirements. 1 However, children with disabilities, a subset of children with special health care needs, tend to have more complex conditions and functional impairments, often with technology dependencies and recurrent hospitalizations. In fact, 6.3% of US children between 5 and 15 years of age have 1 or more disabilities, and approximately 1%, or nearly one-half million children, are unable to care for themselves. 2 Over the past 50 years, the number of children living with disabilities has tripled, largely as the result of health care advances that have allowed the survival of children with conditions that were historically incompatible with life. 3 Children and adolescents have had the highest growth rate of disability of any age group during the past decade. 3 Despite these changing demographics, the current system of health care continues to use an outdated system that emphasizes acute illness and well-child care at the expense of long-term management of chronic conditions and disabilities.Historically, hospital-based or institutional care was the only option for most children with complex medical conditions, technology dependence, and significant behavioral and emotional needs. More recently, social policy has promoted community-based programs that provide care for children with disabilities in their homes and communities. 4

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Financial and Employment Problems in Families of Children With Special Health Care Needs: Implications for Research and Practice

Cited by 53 publications

References 19 publications

Sobrecarga dos cuidadores de crianças e adolescentes com Síndrome de Down

Sobrecarga dos cuidadores de crianças e adolescentes com Síndrome de Down

Experiences from families of children with cerebral paralysis in context of social vulnerability

Parent-Provider-Community Partnerships: Optimizing Outcomes for Children With Disabilities

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