Fitting into the prevailing teenage culture: A grounded theory on female adolescents with chronic arthritis

Sällfors, Christina; Hallberg, Lillemor R.‐M.

doi:10.1080/17482620802431862

Cited by 12 publications

(5 citation statements)

References 25 publications

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“…Probably this point is connected with their desire to obtain general information about JIA and support from their friends. Similar results have been found in other studies where adolescents also developed this need for information on how to manage their life, when and how to talk about JIA or social support [16,[20][21][22][23]. It is remarkable to consider that the adolescents interviewed stressed the need they would like to receive information at the beginning of the diagnosis, especially in relation to the consequences of the disease, such as what activities they would have to stop doing.…”

Section: Discussionsupporting

confidence: 84%

“…These are: disclosing to others that they have JIA, using communication skills, maintaining activities with friends, trying to minimize pain, and ignoring negative comments. Different studies have described similar strategies [13,20,22,23,59].…”

Section: Discussionmentioning

confidence: 99%

“…movement limitations) and can cause school and extracurricular activities absenteeism [10,[12][13][14][15]. Mentioned physical limitations and the fact that pain is invisible and also unpredictable can make adolescents with JIA feel different from others, not believed or judged [13,[16][17][18][19][20][21][22][23][24]. Studies have been considered the impact in their overall quality of life [7,15,[25][26][27][28].…”

Section: Introductionmentioning

confidence: 99%

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Adolescents’ social needs living with juvenile idiopathic arthritis and their views about digital resources

et al. 2020

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Background: Juvenile Idiopathic Arthritis (JIA) and its related symptoms (e.g. pain) have been associated with interference in the daily life of adolescents with JIA including their friendships. There is little research in that sense and in consequence, interventions designed to improve this area. The objectives of this study are 1) to gain knowledge about the needs of adolescents with JIA, particularly focused on their friendships; 2) to explore the potential of the Internet to help them, and 3) to determine what kind of online resource would be the best and what elements it should include. Methods: To achieve the proposed objectives we designed a qualitative study including two phases: the first one exploratory (semi-structured interviews) and the following, confirmatory (online focus group). Results: 14 adolescents were interviewed and 7 participated in the focus group. They reported some social challenges related to their illness: feeling different, criticized by peers, or not believed. Additionally, they specified some of the coping strategies they used, such as disclosing to others that they have JIA, using communication skills, maintaining activities with friends, trying to minimize pain, and ignoring negative comments. Adolescents considered an online resource useful and mentioned that they would like to find general information and to have the possibility to interact with others. They considered Instagram and WhatsApp as good platforms to implement the online resource. Conclusions: According to their perceptions, adolescents with JIA can benefit from an online resource which delivers information, strategies and facilitates interaction with others.

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Section: Discussionsupporting

confidence: 84%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Adolescents’ social needs living with juvenile idiopathic arthritis and their views about digital resources

et al. 2020

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“…Our main reason for choosing the Grounded Theory method with a prospective design and in-depth interview is that, according to Charmaz ( 2006 ), it provides a deeper understanding of the participants' lives compared to a structured and informal interview. Since we had a great interest in the inside perspective, we used an open interviewing technique, as described by Sällfors and Hallberg ( 2009 ), to explore the participants' subjectively experienced lifeworld. In order to collect as much open data as possible and avoid early saturation, we followed Hallberg's ( 2006 ) recommendation on late theoretical sampling and did not start theoretical coding until all interviewes had been performed 1 year after surgery.…”

Section: Discussionmentioning

confidence: 99%

Wishing for deburdening through a sustainable control after bariatric surgery

Engström

Forsberg

2011

International Journal of Qualitative Studies on Health and Well

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The aim of this study was an in-depth investigation of the change process experienced by patients undergoing bariatric surgery. A prospective interview study was performed prior to as well as 1 and 2 years after surgery. Data analyses of the transcribed interviews were performed by means of the Grounded Theory method. A core category was identified: Wishing for deburdening through a sustainable control over eating and weight, comprising three related categories: hoping for deburdening and control through surgery, feeling deburdened and practising control through physical restriction, and feeling deburdened and trying to maintain control by own willpower. Before surgery, the participants experienced little or no control in relation to food and eating and hoped that the bariatric procedure would be the first brick in the building of a foundation that would lead to control in this area. The control thus achieved in turn affected the participants' relationship to themselves, their roles in society, and the family as well as to health care. One year after surgery they reported established routines regarding eating as well as higher self-esteem due to weight loss. In family and society they set limits and in relation to health care staff they felt their concern and reported satisfaction with the surgery. After 2 years, fear of weight gain resurfaced and their self-image was modified to be more realistic. They were no longer totally self-confident about their condition, but realised that maintaining control was a matter of struggle to obtaining a foundation of sustainable control. Between 1 and 2 years after surgery, the physical control mechanism over eating habits started to more or less fade for all participants. An implication is that when this occurs, health care professionals need to provide interventions that help to maintain the weight loss in order to achieve a good long-term outcome.

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“…They should be encouraged to participate fully in the treatment of their condition (Hill & Reay, 2002 ) in accordance with Kjeken et al ( 2006 ), who revealed that patients' ability to influence medical decisions needs to be further developed. Participation is important for patients with a rheumatic disease, as it contributes to security and control in their striving for a normal life (Sällfors & Hallberg, 2009 ). The level of participation varies and implies the need for trust, understanding and knowledge of their bodies, disease and treatment as well as providing control over the management of everyday life.…”

Section: Discussionmentioning

confidence: 99%

Patients’ independence of a nurse for the administration of subcutaneous anti-TNF therapy: A phenomenographic study

Larsson

Bergman

Fridlund³

et al. 2010

International Journal of Qualitative Studies on Health and Well

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Rheumatology nursing supports patients to manage their lives and live as independently as possible without pain, stiffness and functional restrictions. When conventional drugs fail to delay the development of the rheumatic disease, the patient may require biological treatment such as self-administered subcutaneous anti-tumour necrosis factor (TNF) therapy. It is therefore important that the patient perspective focuses on the life-changing situation caused by the administration of regular subcutaneous injections. The aim of this study was to describe variations in how patients with rheumatic diseases experience their independence of a nurse for administration of subcutaneous anti-TNF therapy. The study had a descriptive, qualitative design with a phenomenographic approach and was carried out by means of 20 interviews. Four ways of understanding the patients' experience of their subcutaneous anti-TNF therapy and independence of a nurse emerged: the struggling patient; the learning patient; the participating patient; the independent patient. Achieving independence of a nurse for subcutaneous anti-TNF injections can be understood by the patients in different ways. In their strive for independence, patients progress by learning about and participating in drug treatment, after which they experience that the injections make them independent.

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Fitting into the prevailing teenage culture: A grounded theory on female adolescents with chronic arthritis

Cited by 12 publications

References 25 publications

Adolescents’ social needs living with juvenile idiopathic arthritis and their views about digital resources

Adolescents’ social needs living with juvenile idiopathic arthritis and their views about digital resources

Wishing for deburdening through a sustainable control after bariatric surgery

Patients’ independence of a nurse for the administration of subcutaneous anti-TNF therapy: A phenomenographic study

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