Focus on family care givers for individuals with dementia: implications for occupational therapy practice

Chung, Jenny C. C.

doi:10.1002/oti.48

Cited by 14 publications

(16 citation statements)

References 32 publications

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“…12,13 Likewise, acknowledging and involving family carers as "lay practitioners" in the caring process are means of empowering carers and facilitating them to derive meaning in the caring occupation. 14 Last, this study increases the understanding of needs and challenges faced by individuals with early dementia and family carers. However, these needs and challenges keep changing when the people concerned move along the course of dementia.…”

Section: Discussionmentioning

confidence: 97%

Empowering individuals with early dementia and their carers: An exploratory study in the Chinese context

Chung

2001

Am J Alzheimers Dis Other Demen

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This article discusses an early dementia program developed for sufferers and family carers in a Chinese context. Instead of replicating formats of similar programs developed in Western countries, this program considered cultural issues and caring values that are unique to Chinese people. Its main objective was to empower sufferers and carers through educational activities and support programs. Observations and interviews were used for program evaluation. The program creates a "win-win" situation in which both parties experienced pleasurable feelings and developed a close relationship. It also highlights the values of "meaningful occupation" in dementia care. Furthermore, the program broadens our understanding of needs and concerns of sufferers and carers at early stages, which are deemed important to develop continuous dementia programs along the disease course.

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Section: Discussionmentioning

confidence: 97%

Empowering individuals with early dementia and their carers: An exploratory study in the Chinese context

Chung

2001

Am J Alzheimers Dis Other Demen

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“…The importance of promoting caregivers' occupational performances has been emphasized (35). ChingChing Chung (36) highlighted the need to support caregivers in becoming aware of their own health status and needs. She proposed that the role of the occupational therapist should be as an enabler.…”

Section: Occupational Therapy Intervention In Families With Dementiamentioning

confidence: 99%

Living with a person with Alzheimer's disease: Experiences related to everyday occupations

Persson¹,

Zingmark

2006

Scandinavian Journal of Occupational Therapy

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The aim of this study was to illuminate experiences of daily occupations among spouses living with a person with Alzheimer's disease (AD). The study contains phenomenological-hermeneutic interpretation of interviews with eight spouses. The analysis revealed the participants as being in the process of a changing occupational situation. They come to live an occupational life intertwined with their partners' needs. An ongoing process of occupational adjustment is taking place as a response to the changing situation. The spouses were occupied with consequences of their partner's disease. They were striving for occupational meaning and at the same time living with threats to meaningful occupations. It can be concluded that living with a partner with AD is a complex dealing with occupational meaning. This complexity should be considered in interventions.

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“…blocking, restricting access, and locking). Such strategies provided peace of mind for the carer, reduced uncertainty and prevented risks (Nygård, 2002); however they also minimised the autonomy and ability of their relatives to move freely at home Chung, 1997;Dodds, 1994;Olsen, 1996;Olsson, 2011). In some cases, because these strategies were either not easily acceptable to the person with dementia or challenging their independence and thus upsetting them, carers valued the independence of their relatives higher than the risk and chose not to implement the strategies (Cott, 2013).…”

Section: Tension Between Risks Versus Independence: Findings Revealedmentioning

confidence: 99%

“…For example, many publications gave examples of how carers transformed household goods into safety features and/or technological objects, like coming up with their own safety alarms, i.e. adding door chimes Chung, 1997;Olsen, 1996;Olsson, 2011;.…”

Section: Improvising Strategies Studies Highlighted That Carers Had mentioning

confidence: 99%

The Role of the Home Environment in Dementia Care and Support: Systematic review of Qualitative Research

et al. 2017

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Background The domestic home is the preferred site for care provision for people with dementia and their families, therefore creating a dementia and caring friendly home environment is crucial. This systematic review synthesised qualitative studies to explore the role of the home environment and identify potential barriers and facilitators in home dementia care and support to inform future practice and research. Methods A systematic search in 12 databases identified international qualitative literature on perceptions and experiences of community-dwelling people with dementia, family and formal carers regarding the role of the home environment and ways to tackle daily challenges. Results Forty qualitative studies were included and analysed using thematic synthesis. The main three themes were: 'home as a paradox', 'there is no magic formula' and 'adapting the physical space, objects and behaviour'. Findings indicate that home is an important setting and is likely to change significantly responding to the changing nature of dementia. Themes were later validated by family carers of people with dementia. Conclusions The home environment is an important setting for care and needs to remain flexible to accommodate changes and challenges. Family carers and people with dementia implement and often improvise, various environmental strategies. Continuous and tailor-made support at home is required.

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Focus on family care givers for individuals with dementia: implications for occupational therapy practice

Abstract: Although family carers assume a pivotal role in caring for relatives with dementia, few occupational therapy studies are directed towards them (Gitlin, Corcoran & Leinmiller-Eckhardt, 1995

Cited by 14 publications

References 32 publications

Empowering individuals with early dementia and their carers: An exploratory study in the Chinese context

Empowering individuals with early dementia and their carers: An exploratory study in the Chinese context

Living with a person with Alzheimer's disease: Experiences related to everyday occupations

The Role of the Home Environment in Dementia Care and Support: Systematic review of Qualitative Research

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