Follow-up Adherence and Barriers to Care for Pediatric Glaucomas at a Tertiary Care Center

Mikolajczyk, Brian; Greenberg, Ethan; Fuher, Hannah; Berres, Michael; May, Laura; Areaux, Raymond G.

doi:10.1016/j.ajo.2020.08.033

Cited by 16 publications

(18 citation statements)

References 21 publications

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“…The influence of distance on LTFU may be due to long travel time in addition to appointment time and increased expenses from fuel, food, or lodging. Distance has been noted as an important factor contributing to LTFU in other contexts including bariatric surgery, glaucoma surgery, and HIV 21,22,36,37 . Clinicians should be aware of the challenges in attending appointments for patients who live far away, prioritize open and honest communication, and offer potential resources that may help.…”

Section: Discussionmentioning

confidence: 99%

“…As seen in the correlation matrix, race and marital status were positively associated ( p = 0.002) while income and distance from clinic were positively associated ( p < 0.001) (Table 3). Socioeconomic status and race have previously been shown to impact LTFU in other contexts 37,39,40 . Additional research is needed to better characterize how these factors contribute to receipt of follow‐up care since both have been shown to impact overall survival in patients with cancer 41,42 …”

Section: Discussionmentioning

confidence: 99%

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Factors associated with loss to follow‐up after radiation therapy for head and neck cancer

et al. 2022

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Objectives Head and neck cancer (HNC) patients are at high risk for late occurring radiation‐related morbidity and recurrence, necessitating close long‐term medical surveillance. This study identified factors associated with becoming lost to follow‐up (LTFU) at a comprehensive cancer center. Materials and Methods Patients were drawn from survivors who received radiation for HNC at a single institution between 2001 and 2018. LTFU was defined as living patients without a clinical encounter within 2 years of the data query. Results In total, 537 patients met the inclusion criteria and 57 (10.6%) were identified as LTFU. Individual comparisons identified time since completing radiation, non‐White race and being unmarried as associated with LTFU. Multiple regression identified time since treatment and being unmarried as factors associated with LTFU. A decision tree correctly sorted 89.4% using time, distance, and marital status. Conclusion Time since radiation, distance to clinic, and being unmarried were factors associated with becoming LTFU.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Factors associated with loss to follow‐up after radiation therapy for head and neck cancer

et al. 2022

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“…92 A recent study at a large tertiary care centre has identified follow-up compliance is low (54%) and is associated with non-white race and increased distance to the eye clinic. 93 Most children with glaucoma administer numerous eyedrops, undergo several surgical procedures and have multiple general anaesthetics. They report a significant reduction in their vision related quality of life (VR QoL) and health related (HR) QoL compared with normally sighted individuals, and decreased functional visual ability as well as a substantial economic burden.…”

Section: Discussionmentioning

confidence: 99%

Approach to childhood glaucoma: A review

Karaconji

Zagora

Grigg

2022

Clinical Exper Ophthalmology

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Childhood glaucoma represents a heterogenous group of rare ocular conditions that may result in significant sight threatening complications related to elevated intraocular pressure (IOP). It can be classified as either primary or secondary and the latter may have systemic associations. This review will be based on the work of the childhood glaucoma research network (CGRN) and will focus on the diagnosis and management of the most common types of childhood glaucoma. These include primary congenital glaucoma (PCG) and juvenile open angle glaucoma (JOAG) as well as secondary causes of glaucoma associated with non-acquired ocular anomalies (Axenfeld-Rieger anomaly;Peters anomaly and Aniridia), glaucoma associated with systemic disease (Sturge Weber syndrome and Neurofibromatosis), those due to acquired conditions (Uveitic glaucoma, trauma and tumours) and importantly glaucoma following cataract surgery.

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“…Tis study has included a wide range of possible barriers to good adherence based on previous glaucoma and other chronic pediatric diseases studies, but the specifc infuence of some barriers (e.g., anxiety and depression, medication schedule) on medication adherence in pediatric glaucoma deserves further investigation. In addition, we did not analyze some impediments like race and ethnicity, insurance coverage, as well as depressive symptoms of children, which were previously proven to infuence followup adherence for children with pediatric glaucoma or medication adherence of children with asthma [19,54,55].…”

Section: Discussionmentioning

confidence: 99%

Medication Adherence and Common Barriers for Caregivers of Preschool Children with Pediatric Glaucoma

Liu

Zhang

et al. 2022

Journal of Ophthalmology

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Purpose. To investigate the medication adherence among caregivers of preschool children with pediatric glaucoma and to elucidate common barriers leading to poor adherence. Methods. A cross-sectional study. Caregivers of preschool children with pediatric glaucoma completed a questionnaire on demographic information of caregivers, demographic and disease characteristics of children, caregivers-reported medication adherence (by an adapted Morisky Adherence Scale), and possible 13 barriers. Results. Overall 132 questionnaires were considered valid. Thirty-six percent of all reported poor medication adherence. Caregivers’ age and self-evaluated knowledge about pediatric glaucoma showed a significant difference between the adherent and nonadherent groups ( P < 0.05 ). Nineteen percent of all reported only one barrier as important, 65% cited multiple barriers, and 16% cited no barriers. Anxiety and depression were cited as important by most caregivers in both groups. Univariate logistic regression analysis demonstrated that difficulty with the acquisition of medications (OR, 2.5; 95% CI, 1.1–5.7; P = 0.025 ), difficulty with medication schedule (OR, 2.3; 95% CI, 1.0–5.0; P = 0.043 ), and high expenses for medications (OR, 4.8; 95% CI, 1.4–15.9; P = 0.011 ) were significantly associated with higher odds of poor adherence. Conclusions. Over one-third of caregivers of preschool children with pediatric glaucoma were in poor medication adherence. Nearly two-thirds of caregivers cited multiple barriers simultaneously as important hindrances to medication usage. Anxiety and depression, difficulty with the acquisition of medications, difficulty with the medication schedule, and high expenses for medications were prominent barriers. Individualized solutions should be provided according to reported barriers by each caregiver and the other most common barriers.

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Follow-up Adherence and Barriers to Care for Pediatric Glaucomas at a Tertiary Care Center

Cited by 16 publications

References 21 publications

Factors associated with loss to follow‐up after radiation therapy for head and neck cancer

Factors associated with loss to follow‐up after radiation therapy for head and neck cancer

Approach to childhood glaucoma: A review

Medication Adherence and Common Barriers for Caregivers of Preschool Children with Pediatric Glaucoma

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