Fragebogen zur elterlichen Krankheitsbewältigung: Coping Health Inventory for Parents (CHIP) - Deutsche Version

McCubbin, Hamilton I.; McCubbin, Marilyn A.; Cauble, Elizabeth; Goldbeck, Lutz

doi:10.1026//0942-5403.10.1.28

Cited by 20 publications

(22 citation statements)

References 13 publications

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“…The German translation of The Coping Health Inventory for Parents (CHIP) [26] provided by McCubbin and colleagues [27] was utilized to assess the repertoire of parental coping strategies which are associated with their child’s chronic condition. It is a self-report questionnaire including 45 specific coping behaviours.…”

Section: Methodsmentioning

confidence: 99%

Quality of life among parents of children with phenylketonuria (PKU)

Fidika

Salewski

Goldbeck

2013

Health Qual Life Outcomes

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BackgroundParents of children with chronic conditions are known to be at risk of impairment in their quality of life (QoL). Studies considering other chronic conditions proposed diverse factors to have an impact on the parent’s QoL. So far, there has been little research on parents who have a child with phenylketonuria (PKU). This study was designed to evaluate the parental quality of life (PQoL) of parents of children and adolescents who have PKU and identify possible predictors of PQoL.MethodsIn this cross-sectional study 89 parents completed self-report measures of PQoL, family stress, social support, and parental coping. To determine the impact of these potential predictors on PQoL, regression and mediation analyses were performed.ResultsMost parents coped well with their children’s metabolic disorder. Family stress (β = −0.42; p < 0.001) and perceived social support (β = 0.33; p = 0.001) were proven to be the most powerful predictors, accounting together for 45% of the variance of PQoL. Social support mediated the association between family stress and PQoL.ConclusionsThe current study indicates that parents of younger children are an especially vulnerable group. Members of health-care teams should be able to identify and empower vulnerable parents to seek and maintain social support.

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Section: Methodsmentioning

confidence: 99%

Quality of life among parents of children with phenylketonuria (PKU)

Fidika

Salewski

Goldbeck

2013

Health Qual Life Outcomes

Self Cite

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“…The CHIP has good internal consistency with alphas >0.70 for the 3 subscales and fair concurrent validity as evidenced by significant correlations with independent measures of family environment and changes in child's health. Test‐retest reliability is 0.75, 0.63, and 0.71, respectively, indicating sufficient sensitivity for changes in the situation (19).…”

Section: Methodsmentioning

confidence: 99%

Factors associated with the use of complementary and alternative medicine in juvenile idiopathic arthritis

Feldman¹,

Duffy²,

Civita³

et al. 2004

Arthritis & Rheumatism

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“…The 28 items of the instrument form 6 scales (acceptance, avoidance, cognitive-palliative, distance, emotional reaction, wishful thinking) and an overall rating of the disease management. The coping skills of parents will be assessed with the Coping Health Inventory for Parents (CHIP-D) [45]. This questionnaire measures parental coping with chronic childhood disease with 45 items that form 3 scales (maintaining family integration, maintaining social support, understanding health care situation).…”

Section: Copingmentioning

confidence: 99%

Social inequalities in the participation and activity of children and adolescents with leukemia, brain tumors, and sarcomas (SUPATEEN): a protocol for a multicenter longitudinal prospective observational study

et al. 2020

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Background: About 2000 children and adolescents under the age of 18 are diagnosed with cancer each year in Germany. Because of current medical treatment methods, a high survival rate can be reached for many types of the disease. Nevertheless, patients face a number of long-term effects related to the treatment. As a result, physical and psychological consequences have increasingly become the focus of research in recent years. Social dimensions of health have received little attention in health services research in oncology so far. Yet, there are no robust results that allow an estimation of whether and to what extent the disease and treatment impair the participation of children and adolescents and which factors mediate this effect. Social participation is of great importance especially because interactions with peers and experiences in different areas of life are essential for the development of children and adolescents. Methods: Data are collected in a longitudinal, prospective, observational multicenter study. For this purpose, all patients and their parents who are being treated for cancer in one of the participating clinics throughout Germany will be interviewed within the first month after diagnosis (t1), after completion of intensive treatment (t2) and half a year after the end of intensive treatment (t3) using standardized questionnaires. Analysis will be done by descriptive and multivariate methods. Discussion: The results can be used to identify children and adolescents in high-risk situations at an early stage in order to be able to initiate interventions tailored to the needs. Such tailored interventions will finally reduce the risk of impairments in the participation of children and adolescents and increase quality of life.

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Fragebogen zur elterlichen Krankheitsbewältigung: Coping Health Inventory for Parents (CHIP) - Deutsche Version

Cited by 20 publications

References 13 publications

Quality of life among parents of children with phenylketonuria (PKU)

Quality of life among parents of children with phenylketonuria (PKU)

Factors associated with the use of complementary and alternative medicine in juvenile idiopathic arthritis

Social inequalities in the participation and activity of children and adolescents with leukemia, brain tumors, and sarcomas (SUPATEEN): a protocol for a multicenter longitudinal prospective observational study

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