Gaps in communication between cancer patients and healthcare providers: symptom distress and patients’ intentions to disclose

Penalba, Valentina; Deshields, Teresa L.; Klinkenberg, Dean

doi:10.1007/s00520-018-4442-4

Cited by 24 publications

(20 citation statements)

References 39 publications

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“…Cancer patients who suffering from pain might choose not to use resources available to manage pain because of erroneous beliefs. the studies confirmed that cancer patients are still uncomfortable with discussing many of their symptoms in the clinical setting, even when the symptoms are bothersome (Oldenmenger, Geerling, Mostovaya, Vissers, de Graeff, Reyners, & van der Linden, 2018;Penalba, Deshields & Klinkenberg, 2019).…”

Section: Introductionmentioning

confidence: 70%

Effect of nursing intervention guidelines regarding Oncology Patient Health Outcome

Elshahat¹,

Sherief

Shaheen³

et al. 2020

Port Said Scientific Journal of Nursing

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Background: Cancer-related pain is one of the greatest scared consequences of cancer and its treatment. Also, cancer patients having recurrent interaction with a variety of health providers, their pain is commonly uncontrolled. Cancer-related pain identified as vital symptoms that influence on the quality of life among cancer patients. Aim: The aim of this study is to evaluate the effect of pain nursing intervention guidelines on oncology patients" health outcome. Research design: Quasi experimental design was used in this study. Sample: A purposive sample of 94 cancer patients with a pain reported 4 or more on a 0 to 10 numeric screening scale. Setting: The study was conducted in oncology unit at Mansoura University and Port Saied General Hospitals. Methods: The study implement the National Comprehensive Cancer Network guidelines for cancer related pain, brief pain inventory and Pain management barriers were measured at baseline, one month, and three months after applying the intervention guidelines. Results: Participants experienced significant improvements in pain degrees at one-month assessment, and these improvements were continued at three-months assessment. Conclusion: The nursing intervention practice based on the National Comprehensive Cancer Network fatigue guideline was effective in reducing pain severity. Recommendation: Pain should be assessed at least twice per day for cancer patient. Also, the patients need to receive educational materials for pain management and to reduce the barriers

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Section: Introductionmentioning

confidence: 70%

Effect of nursing intervention guidelines regarding Oncology Patient Health Outcome

Elshahat¹,

Sherief

Shaheen³

et al. 2020

Port Said Scientific Journal of Nursing

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“…Sexual concerns are generally not addressed or discussed as much as patients would like, 45 and patients generally wait for healthcare professionals to raise the subject. 46 In our clinical setting, sexual health conversations are integrated into the clinical work, routines for assessment and treatment have been created, and it becomes clearer when a patient should be referred to specialists and sexologists.…”

Section: Findings To Datementioning

confidence: 99%

Cohort profile: an observational longitudinal data collection of health aspects in a cohort of female cancer survivors with a history of pelvic radiotherapy—a population-based cohort in the western region of Sweden

et al. 2021

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PurposeThe study ‘Health among women after pelvic radiotherapy’ was conducted in response to the need for more advanced and longitudinal data concerning long-term radiotherapy-induced late effects and chronic states among female cancer survivors. The objective of this paper is to detail the cohort profile and the study procedure in order to provide a sound basis for future analyses of the study cohort.ParticipantsSince 2011, and still currently ongoing, participants have been recruited from a population-based study cohort including all female patients with cancer, over 18 years of age, treated with pelvic radiotherapy with curative intent at Sahlgrenska University Hospital in Gothenburg, in the western region of Sweden, which covers 1.7 million of the Swedish population. The dataset presented here consists of baseline data provided by 605 female cancer survivors and 3-month follow-up data from 260 individuals with gynaecological, rectal or anal cancer, collected over a 6-year period.Findings to dateData have been collected from 2011 onwards. To date, three studies have been published using the dataset reporting long-term radiation-induced intestinal syndromes and late adverse effects affecting sexuality, the urinary tract, the lymphatic system and physical activity. These projects include the evaluation of interventions developed by and provided in a nurse-led clinic.Future plansThis large prospective cohort offers the possibility to study health outcomes in female pelvic cancer survivors undergoing a rehabilitation intervention in a nurse-led clinic, and to study associations between demographics, clinical aspects and long-term late effects. Analysis focusing on the effect of the interventions on sexual health aspects, preinterventions and postinterventions, is currently ongoing. The cohort will be expanded to comprise the entire data collection from 2011 to 2020, including baseline data and data from 3-month and 1-year follow-ups after interventions. The data will be used to study conditions and treatment-induced late effects preintervention and postintervention.

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“…A recent study confirmed that cancer patients are still uncomfortable with discussing many of their symptoms in the clinical setting, even when the symptoms are bothersome [10]. Although lack of energy and pain were most often discussed, only about 50% of patients intended to discuss these bothersome symptoms with their physician.…”

Section: Pain Prevalence: Reasons For Lack Of Improvement In Cancementioning

confidence: 99%

Treatment of Pain in Cancer: Towards Personalised Medicine

Everdingen

Kuijk

Janssen

et al. 2018

Cancers

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Despite increased attention to cancer pain, pain prevalence in patients with cancer has not improved over the last decade and one third of cancer patients on anticancer therapy and half of patients with advanced disease still suffer from moderate to severe pain. In this review, we explore the possible reasons for the ongoing high prevalence of cancer pain and discuss possible future directions for improvement in personalised pain management. Among possible reasons for the lack of improvement are: Barriers for patients to discuss pain with clinicians spontaneously; pain measurement instruments are not routinely used in daily practice; limited knowledge concerning the assessment of undertreatment; changes in patients’ characteristics, including the ageing of the population; lack of significant improvement in the treatment of neuropathic pain; limitations of pharmacological treatment and lack of evidence-based nonpharmacological treatment strategies. In order to improve cancer pain treatment, we recommend: (1) Physicians proactively ask about pain and measure pain using assessment instruments; (2) the development of an optimal tool measuring undertreatment; (3) educational interventions to improve health care workers’ skills in pain management; (4) the development of more effective and personalised pharmacological and nonpharmacological pain treatment.

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Gaps in communication between cancer patients and healthcare providers: symptom distress and patients’ intentions to disclose

Abstract: Results of this study support the perception of communication gaps between patients and HCPs about symptoms. Better understanding of these gaps is needed to ensure that patient-centered care is delivered and that patients' symptoms can be appropriately managed in oncology clinics.

Cited by 24 publications

References 39 publications

Effect of nursing intervention guidelines regarding Oncology Patient Health Outcome

Effect of nursing intervention guidelines regarding Oncology Patient Health Outcome

Cohort profile: an observational longitudinal data collection of health aspects in a cohort of female cancer survivors with a history of pelvic radiotherapy—a population-based cohort in the western region of Sweden

Treatment of Pain in Cancer: Towards Personalised Medicine

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