Gender differences in caregiver strain, needs for support, social support, and quality of life among spousal caregivers of persons with multiple sclerosis

Lee, Eun Jeong; Pieczynski, Jessica; DeDios-Stern, Samantha; Simonetti, C; Lee, Gloria K.

doi:10.3233/wor-152205

Cited by 24 publications

(20 citation statements)

References 49 publications

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“…Female family members of critically ill patients had higher information, proximity, comfort, and support needs, compared to male family members. These results consistent with previous study [37] that reported female caregivers may feel more obligated and expected to fulfill a wide variety of caregiving roles.…”

Section: Plos Onesupporting

confidence: 93%

State anxiety, uncertainty in illness, and needs of family members of critically ill patients and their experiences with family-centered multidisciplinary rounds: A mixed model study

2020

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This study aimed to determine whether family-centered multidisciplinary rounds could alleviate anxiety and uncertainty in illness and meet needs for critically ill patients' families. A family-centered multidisciplinary rounds protocol was developed identifying needs of critically ill patients' families, and family experiences were reviewed through in-depth interviews. A sequential mixed-methods study was utilized, combining survey data and semi-structured interviews in a tertiary medical intensive care unit in South Korea. A structured questionnaire assessed needs, anxiety, and uncertainty in illness for 50 participants. Interview data of 10 participants were analyzed using grounded theory. Assurance was the highest family need, followed by information need. Family needs differed according to gender, relationship to the patient, and length of intensive care unit stay. Participants reported family-centered multidisciplinary rounds provided a sense of relief, a chance to listen to medical staff, and a chance to provide medical staff with comprehensive information about patient care. Proximity needs were found to have a positive correlation with state anxiety, while comfort needs had a negative correlation with uncertainty in illness. Families reported family-centered multidisciplinary rounds were positive, useful experiences. Thus, standardization of family-centered multidisciplinary rounds is needed to meet families' various needs.

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Section: Plos Onesupporting

confidence: 93%

State anxiety, uncertainty in illness, and needs of family members of critically ill patients and their experiences with family-centered multidisciplinary rounds: A mixed model study

2020

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“…It was evident from the results, as previously reported (Lee et al, 2013;Lehan et al, 2012), that providing care to a person with a debilitating neurological condition, such as MS, is highly stressful and caregivers o f these people face several challenges throughout the caregiving process. However, caregivers prioritise the needs of the patient they care for above their own health (Bevans & Sternberg, 2012) and most o f the participants in this study demonstrated extreme willing ness to endure and sacrifice for the people they care for.…”

Section: Discussionmentioning

confidence: 52%

“…Akku §, 2011; Bevans & Sternberg, 2012;Bogosian et al, 2009;Given et a l, 2012;Khan et a l, 2007;Lee et al, 2013;Papastavrou et al, 2012;Smedman 2012), a number of resources have been identified to make caregiving easier (e.g. Bjorgvinsdottir & Halldorsdottir, 2014;Given et a l, 2012;Koopman et al, 2006;Lehan et al, 2012;O'Connor & McCabe, 2011;Peters et al, 2013;Smedman, 2012).…”

Section: Resources Available To Caregiversmentioning

confidence: 97%

“…Anxiety, loneliness, worry, and depression seem to be particularly prevalent amongst caregivers of people with MS (Bevans & Sternberg, 2012;Khan et a l, 2007;Smedman, 2012). The challenges faced by caregivers can be detrimental not only to their mental health, but also their physical health, with increased risk of impaired immune functioning, coronary heart disease, and early death (Bevans & Sternberg, 2012;Lee, Dedios, Fong, Simonette, & Lee, 2013).…”

Section: Challenges Faced By Caregiversmentioning

confidence: 99%

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The caregiver experience: a South African perspective on caring for people with multiple sclerosis

Plooy

Pretorius

2014

Journal of Psychology in Africa

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This study explored the lived experiences of caregivers of people with multiple sclerosis (MS) with regard to their daily challenges, as well as the resources which help them to cope with their caregiving task. Participants were eight South African men (« = 3) and women (n = 5) [white = 6; coloured = 2] caring for a person with MS. They responded to a qualitative interview on their caregiving experiences. The data were thematically analysed. Findings suggest their daily challenges of managing symptoms, limited social interaction, financial difficulties, and the unpredictability of the future as a result of MS. Resources helpful to coping with caregiving roles include resilience, positive attitude, patience, religion, information, and financial security. Carer support should be tailor-made, because of the unique experiences of each caregiver and the varied presentation of MS.

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“…Positive correlation interconnections between depression level and depressive and denial control strategies are revealed (Lee, Dedios, Fong, Simonette, & Lee, 2013;Mikula, Nagyova, Krokavcova, Vitkova, Rosenberger, Szilasiova, Van Dijk, 2014;Busch, Spirig, & Schnepp, 2014). Cognitive deficit growth of MS patients provokes the growth of depression level irrespective of specific control types (Haase et al, 2008).…”

Section: Relevancementioning

confidence: 99%

Proceedings of the Iii International Scientific and Practical Conference “Psychological Health of the Person: Life Resource and Life Potential”

2017

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The Proceedings cover different aspects of mental health research concerned with human life resource and life potential, as well as applied aspects of health psychology.The editorial policy was based on the principles of selection and reviewing of all submitted manuscripts. At the first stage all the manuscripts underwent an initial review by the Editor-in-Chief and the Editorial Board before peer-review in order to assess whether their content complied with the Conference theme. The manuscripts which did not comply with the subject matter of the Conference have been rejected. At the second stage all the manuscripts underwent a double blind review process: each work was reviewed by two experts from the Board of Reviewers; reviewing procedure was anonymous both for the experts and authors.In case of positive review results provided by both experts the contributions were included in the Editor-in-Chief Portfolio. At the third stage manuscripts underwent scientific style as well as language literacy assessment and language editing. This work was carried out by the team of Language Editors. Based on the results of the three stages of reviewing the list of the manuscripts recommended for the publication in the Conference Proceedings has been defined.The problem of assessment, prophylaxis and preserving human psychological health is of utmost importance today. Its relevance is determined, first, by the fact that both a person and his / her development as a healthy and autonomous personality represent a subject of a psychological research. Second, recent global transformations impose special requirements to the person seeking for health preservation, self-development, and self-actualisation. Among these requirements there is readiness to act in new, unpredictable conditions, to make decisions in unstable situations and to bear responsibility for one's decisions. To meet these requirements, a person should be able to see opportunities for self-development and self-fulfillment in the surrounding world, finding new meanings of his / her life activity.Existence of life resource and life potential expands the scope of any person's activities, turning the person's significant life purposes into more achievable ones. Resources are known to subjectively increase the value of a person both in his / her self-perception and in the eyes of others, making the person stronger, more prominent and proactive.Among various human resources health is a fundamental one. At the same time, life potential is not a less important characteristic, since it ensures human capacity to create, develop and use life conditions, factors and circumstances which are beneficial for an organism.Considering human health through the prism of life potential, it is necessary that the value of health within culture of its formation should be the highest, being defined not so much by the need for self-preservation but for self-improvement.The presented Proceedings are the result of both scientific studies in Psychology and fruitful and prospective long-term inte...

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Gender differences in caregiver strain, needs for support, social support, and quality of life among spousal caregivers of persons with multiple sclerosis

Cited by 24 publications

References 49 publications

State anxiety, uncertainty in illness, and needs of family members of critically ill patients and their experiences with family-centered multidisciplinary rounds: A mixed model study

State anxiety, uncertainty in illness, and needs of family members of critically ill patients and their experiences with family-centered multidisciplinary rounds: A mixed model study

The caregiver experience: a South African perspective on caring for people with multiple sclerosis

Proceedings of the Iii International Scientific and Practical Conference “Psychological Health of the Person: Life Resource and Life Potential”

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