State anxiety, uncertainty in illness, and needs of family members of critically ill patients and their experiences with family-centered multidisciplinary rounds: A mixed model study

Jiyeon, Kang; Cho, Young-Jae; Choi, Seung-Hye

doi:10.1371/journal.pone.0234296

Cited by 21 publications

(16 citation statements)

References 37 publications

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“…Therefore, it is of great clinical significance to pay attention to the sense of disease uncertainty of guardians of children with IBD. Current studies on family members' sense of disease uncertainty mainly focused on comprehensive clinical specialties such as internal medicine, surgery, and oncology [ 9 ], while there were few reports on guardians of IBD children. This study mainly studied the correlation between the guardian's sense of disease uncertainty and family strength and mental resilience in children with IBD.…”

Section: Introductionmentioning

confidence: 99%

A Study on the Relationship between Sense of Disease Uncertainty and Family Strength and Mental Resilience in Guardians of Children with Inflammatory Bowel Disease

Yan

Luo

2022

Emergency Medicine International

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Background. Inflammatory bowel disease is difficult to cure, which seriously affects the physical and mental health of children and brings negative psychological stress to guardians. Uncertainty in illness of guardians reduces the ability of care and is not conducive to the treatment and recovery of children. Therefore, it is of great significance to explore the related factors of uncertainty in illness. Objective. The aim of this study is to explore the relationship between sense of disease uncertainty and family strength and mental resilience in guardians of children with inflammatory bowel disease (IBD). Method. A total of 146 guardians of 88 children with inflammatory bowel disease were investigated. The guardians’ sense of disease uncertainty, family strength, and mental resilience were evaluated by Mishel uncertainty in illness scale-family member (MUIS-FM), family hardiness index (FHI), and Connor–Davidson resilience sca1e (CD-RISC), respectively. Spearman correlation was used for analyzing the correlation between the guardian’s sense of disease uncertainty and family resilience. Results. The guardian’s MUIS-FM score from lowest to highest was complexity, unpredictability, lack of information, and uncertainty. The average scores of FHI and CD-RISC were lower than the average score of CD-RISC of the general community in China 65.4 (t = −4.36, P < 0.05 ). The score of MUIS-FM was significantly correlated with the scores of FHI and CD-RISC ( P < 0.05 ). Multiple linear regression analysis showed that the challenge score in the FHI scale and the fortitude score and the strength score in the CD-RISC scale were the main influencing factors of guardians’ sense of disease uncertainty in children with IBD ( P < 0.05 ). Conclusion. The guardians of children with IBD had a more serious sense of disease uncertainty, which was related to family strength and mental resilience.

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Section: Introductionmentioning

confidence: 99%

A Study on the Relationship between Sense of Disease Uncertainty and Family Strength and Mental Resilience in Guardians of Children with Inflammatory Bowel Disease

Yan

Luo

2022

Emergency Medicine International

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“…This finding echoes a study of families in Greece with a relative in the ICU experienced feelings of turmoil because of difficulties of obtaining information from ICU staff about the patient's illness that was understandable and maintaining communication 13 . Critically ill patients can experience a wide variety of acute and life‐threatening complications, thus feelings of anxiety are increased because of the uncertainty of the progression of the disease or illness 19 . Most participants in this study did not have a medical background, and therefore, they felt helpless and lost regarding their loved ones' conditions and treatment plans.…”

Section: Discussionmentioning

confidence: 59%

Sailing in a sea of perplexity: Family caregivers' experience of patients with delirium

Huang

Tsai

Wang

et al. 2021

Nursing in Critical Care

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Background Family caregivers play an important role for patients admitted to the intensive care unit (ICU), and delirium is a common clinical syndrome. Little is known about the experiences of family caregivers when a relative is a patient with delirium, especially for caregivers in Asian cultures. Aims and Objective To understand the experience of family caregivers with a family member as a patient with delirium in the ICU in Taiwan. Design A descriptive qualitative study with in‐depth face‐to‐face semi‐structured interviews. Methods Interviews were conducted with 20 family caregivers of 20 patients with delirium in the ICU of a hospital in northern Taiwan. Results The core theme describing the phenomenon of family caregivers of a patient with delirium was “Sailing in a sea of perplexity,” which described family caregivers' uncertainty of navigating the ICU and providing support for a relative. Three subthemes described the core theme: (a) perplexity of the ICU environment, (b) perplexity of making decisions, and (c) perplexity of Chinese cultural constraints. Conclusion “Sailing in a sea of perplexity” underscores how uncertainty among family caregivers of patients with delirium in ICUs can lead to feelings of fear and anxiety. Therefore, nursing professionals should not only focus on patient care but also be sensitive to caregivers' feelings of uncertainty and their cultural beliefs. Relevance to clinical practice Unfamiliarity and lack of knowledge about intensive care and patient treatments were a source of family caregivers' perplexity. To reduce uncertainty, we recommend increased communication between staff and caregivers. Hospitals can also provide information on their websites, including treatment of delirium and visitation hours. Information access could be enhanced by developing a smartphone app linked to a QR code that families can scan to obtain information, which would be useful during restricted visitation.

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“…As a consequence, this improves family members' satisfaction. Family presence and participation are fundamental for implementation of humanized care in the ICU, (3,24) however, at the setting where this survey was conducted, family members did not participate in the multiprofessional visits. This non-participation possibility may explain the lower satisfaction in the information and support dimensions compared with the scores of needs in the same domains.…”

Section: ❚ Resultsmentioning

confidence: 99%

Needs of family members of patients in a coronary care unit

Coelho¹,

Lopes²,

Lopes³

et al. 2022

Einstein (São Paulo)

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Objective: To identify the need of family members of patients hospitalized in a coronary intensive care unit and their degree of satisfaction with the care provided. Methods: An observational and cross-sectional study including family members of patients hospitalized in the coronary intensive care unit for acute coronary syndrome in Killip I or II. After the second visit of the same family member to the patient in the unit, a 43-item inventory of needs and stressors of family members was applied. Family members assessed each need for its importance and satisfaction using a four-point Likert scale. The scores in each dimension of importance and satisfaction were compared using the Wilcoxon test, considering a value of p<0.05 as significant. Results: One hundred family members were interviewed. The most important needs were related to assurance and information. Family members had satisfaction scores corresponding to be very satisfied or totally satisfied, but with lower scores when compared to the needs scores (p<0.01). Conclusion: The most important needs of family members of patients hospitalized in the coronary intensive care unit were related to assurance and information. Multiprofessional interventions involving better communication of patient information to family members should be incorporated into the coronary intensive care unit.

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State anxiety, uncertainty in illness, and needs of family members of critically ill patients and their experiences with family-centered multidisciplinary rounds: A mixed model study

Cited by 21 publications

References 37 publications

A Study on the Relationship between Sense of Disease Uncertainty and Family Strength and Mental Resilience in Guardians of Children with Inflammatory Bowel Disease

A Study on the Relationship between Sense of Disease Uncertainty and Family Strength and Mental Resilience in Guardians of Children with Inflammatory Bowel Disease

Sailing in a sea of perplexity: Family caregivers' experience of patients with delirium

Needs of family members of patients in a coronary care unit

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