Gynecological Care and Contraception Considerations in Women with Cerebral Palsy

Fasen, Madeline; Saldivar, Brittany; S, Elamsenthil; Thompson, J.R.; Fouad, Lina; Edwards, Louisa; Jacob, Rafik

doi:10.14423/smj.0000000000001170

Cited by 2 publications

(3 citation statements)

References 15 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Although women with CP face similar barriers to other disabled women in relation to women-centred screening programmes, they are also likely to experience barriers caused by HCPs' lack of understanding of the effects of CP in adulthood and how these interconnect with the female life cycle (Table 4). For example the invasive nature of cervical examinations may trigger spasms or additional pain for women with CP (Fasen et al, 2020), or the involuntary movements associated with some types of CP could cause the breast to be overshadowed by the head and shoulder thus preventing the clear visualization of breast tissue (Poulos et al, 2006). Spasticity is disagreeable, complex and little understood (Bhimani, McAlpine, and Henly, 2012), but listening to women's own words about it can be helpful.…”

Section: Discussionmentioning

confidence: 99%

“…We sought diversity in social class, age and classification of CP. Central motor dysfunctions may be spastic, dyskinetic, mixed, ataxic and hypotonic (Fasen et al, 2020) with regional distribution of affected functions such as haemiplegia, diplegia and quadriplegia (Scope, 2018) (see Table 1). Digital strategies facilitated consent among women with CP, their participation in research interviews, and communication with the research team, without necessarily relying on others for physical or communication support.…”

Section: Participants Sampling and Recruitmentmentioning

confidence: 99%

“…Disease prevention is relevant to disabled women, including those with cerebral palsy (CP), as much as to women without perceived impairments. However, a plethora of evidence reports barriers to participation in womenoriented screening programmes for disabled women in comparison to those who are not disabled (Fasen et al, 2020;Horner-Johnson et al, 2014;Kilic et al, 2019;Ramjan et al, 2016). For example in Kilic et al's (2019) qualitative study with women with physical impairments, barriers to participation included structural and environmental barriers (e.g.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Barriers and enablers to participating in regular screening programmes for women with cerebral palsy: A qualitative life course study

Shah

Taylor

Bradbury‐Jones

2021

Journal of Advanced Nursing

View full text Add to dashboard Cite

Aims: To determine the barriers and enablers to regular, women-oriented screening programmes for women with cerebral palsy (CP); and to discuss the participants' suggestions for change.Design: Qualitative life course approach.Methods: Twenty-five life course interviews were conducted with women in 2020 who identified as having a diagnosis of CP. Interviews were conducted in person or using electronic platforms. Framework analysis was used to interpret the data.Findings: Access and utilization of regular screening programmes for women with CP across the life course are determined by multiple socioecological factors. Three themes are discussed focusing particularly on cervical and breast screening: 1. barriers, 2. enablers and 3. women's suggestions for change. Some women chose to opt out of sexual health checks for fear they would be too uncomfortable or the procedure would be too difficult. Practitioner attitudes towards disability in general, as well as the extent to which they understood the effects of CP for women, was highlighted as a barrier. Accessibility and adaptability of the environment also influenced women's uptake of screening. Conclusion:Women with CP face many challenges to their sexual and reproductive healthcare. These can deter them from participating in regular women-oriented screening programmes, which puts them at higher risk of preventable diseases.Understanding the lifelong effects of CP for women, and the interaction with their reproductive health could help to reduce unmet needs and increase participation in relevant screening across the life course.Impact: Knowledge of the challenges to regular screening programmes experienced by women with CP across the life course is crucial to provide appropriate preventative healthcare for women with CP across different stages of life. Elements of this knowledge could have benefits for the care of all disabled women.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Participants Sampling and Recruitmentmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Barriers and enablers to participating in regular screening programmes for women with cerebral palsy: A qualitative life course study

Shah

Taylor

Bradbury‐Jones

2021

Journal of Advanced Nursing

View full text Add to dashboard Cite

show abstract

Basic hope and coping among women with physical disability – the moderating role of types of disability

Gabryś¹

2022

Studia Z Teorii Wychowania

View full text Add to dashboard Cite

This research aims to investigate the relationship between basic hope and coping among women with physical disability exploring the moderating effect of types of disability. The study involved 165 women with physical disability who completed of two inventories: Basic Hope Questionnaire BHI-12 and The Coping Orientations to Problems Experienced (COPE) by Carver, Scheier and Weintraub in the Polish adaptation by Piątek and Wrześniewski. The associations between the variables were examined using correlation and moderation analyses. The obtained results show that relation between basic hope and coping among women with physical disability are moderated by types of disability. Two moderating models designed are statistically significant.

show abstract

Gynecological Care and Contraception Considerations in Women with Cerebral Palsy

Cited by 2 publications

References 15 publications

Barriers and enablers to participating in regular screening programmes for women with cerebral palsy: A qualitative life course study

Barriers and enablers to participating in regular screening programmes for women with cerebral palsy: A qualitative life course study

Basic hope and coping among women with physical disability – the moderating role of types of disability

Contact Info

Product

Resources

About