Health behavior in persons with spinal cord injury: development and initial validation of an outcome measure

Pruitt, Sheri D.; Wahlgren, Dennis R.; Epping‐Jordan, JoAnne E.; Rossi, Ana L. S.

doi:10.1038/sj.sc.3100649

Cited by 29 publications

(21 citation statements)

References 17 publications

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“…1,5 Many are potentially preventable or reducible. [5][6][7] They may cause morbidity and rehospitalizations along with increased costs of care and decreased quality of life. 3,[7][8][9] The prevalence of secondary conditions and rehospitalization rates in persons with SCI does not diminish over time, suggesting that persons with SCI need long-time follow-up and that health education and long-term care can be improved.…”

Section: Introductionmentioning

confidence: 99%

“…[5][6][7] They may cause morbidity and rehospitalizations along with increased costs of care and decreased quality of life. 3,[7][8][9] The prevalence of secondary conditions and rehospitalization rates in persons with SCI does not diminish over time, suggesting that persons with SCI need long-time follow-up and that health education and long-term care can be improved. 1,3,8 Depending on the health delivery system, a general practitioner (GP) is the first person to be contacted for SCI secondary conditions.…”

Section: Introductionmentioning

confidence: 99%

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Care needs of persons with long-term spinal cord injury living at home in the Netherlands

et al. 2009

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Study design: Cross-sectional survey. Objectives: To describe the care received, care needs and preventability of secondary conditions according to persons with long-term spinal cord injury (SCI) living at home. Setting: The Netherlands. Methods: A questionnaire was sent to all members of the Dutch SCI Patient Organisation. From a list of 26 SCI secondary conditions, participants chose the five conditions they perceived as most important. For each of these conditions, they described the type of care they received, their need for (extra) care and its preventability. Results: Response rate was 45% (n ¼ 453) and mean time after injury was 13.3 years. In case of secondary conditions, participants were more likely to visit their general practitioner (58%) than another medical specialist (29%) or rehabilitation specialist (25%). For all most-important secondary conditions, care was received in 47% and care, or extra care, was needed in 41.3%. Treatment was the type of care most often received (29.5%) and needed (17.2%). However, for information and psychosocial care, the care needed (12.2 and 9.9%, respectively) was higher than the care received (7.6 and 5.9%, respectively). Thirty-four percent of all most-important secondary conditions were perceived as preventable, the rate increasing to 52.8% for pressure sores, of which 29.9% were considered to be preventable by the participants themselves. Conclusions: This study showed substantial unmet care needs in persons with long-term SCI living at home and underlines the further improvement of long-term care for this group. Information, psychosocial care and self-efficacy seem to be the areas to be enhanced.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Care needs of persons with long-term spinal cord injury living at home in the Netherlands

et al. 2009

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“…According to the conceptual model, there is also potential to offset the effects of persistent depression by directly reinforcing the self-management knowledge and skills associated with avoiding physical complications. 49 Similarly, informed by the conceptual model, there is an opportunity to reinforce self-management tools (even in the face of ongoing depression or other psychological obstacles) at different time points following SCI, drawing on the lessons from the broader universe of chronic disease care. 50 In sum, benefits could be substantial if the different means described in this paper were to be consistently applied, thereby mitigating the affect of depression in SCI, alleviating patient burden and reducing health-care costs.…”

Section: Prevention Treatment and Potential Cost Avoidancementioning

confidence: 99%

The influence of depression on physical complications in spinal cord injury: behavioral mechanisms and health-care implications

et al. 2013

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Study Design: This study is a literature review and a proposed conceptual model. Objectives: The objective of this study is to develop a conceptual model to explore the relationship between the presence of depressive symptoms and secondary physical complications such as pressure ulcers, urinary tract infections and autonomic dysreflexia in spinal cord injury (SCI). Setting: Community setting for individuals with SCI. Methods: A conceptual model explaining the mechanism underlying the relationship between depression and secondary physical SCI complications was developed based on the International Classification of Functioning, Disability and Health (ICF). A literature review was conducted to develop the model and to identify potential mechanisms responsible for the association.Results: A conceptual model based on ICF was created, informed by the literature discussing the link between depression and secondary physical SCI complications. Evidence in the literature was located that supports both a causal connection between depression and increased physical complications and/or the potential mechanisms mediating that connection. Conclusion: The proposed model can be utilized to encourage further research on the influence of depression on SCI outcomes and the importance of prompt and effective identification and treatment of depressive symptoms. Additional research is needed to assess the relationship between depression and secondary physical SCI complications, and to test the validity of the model.

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“…measure of the effectiveness of treatment, i.e., the final effect of treatment (called “outcome”), which is rated on a scale of patient’s “quality of life” after completing a particular treatment program [21–25]. …”

Section: Introductionmentioning

confidence: 99%

The quality of life of persons with TBI in the process of a Comprehensive Rehabilitation Program

et al. 2012

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SummaryBackgroundThe aim of the research was to evaluate the effectiveness of the phased rehabilitation program in patients after traumatic brain injury, one developed by the authors and controlled by the strategic plan, pertaining to their quality of life compared to patients treated according to a standard, phased rehabilitation program.Material/MethodsThe study included 40 patients of post traumatic brain injury treated at the Rehabilitation Clinic of the L. Rydygier Academy of Medical Sciences in Bydgoszcz and the Department of Medical Rehabilitation of the Cracow Rehabilitation Centre. An experimental group included 20 patients rehabilitated by a strategic approach and a control group consisted of 20 patients treated before the introduction of this approach. In assessing the effectiveness of rehabilitation, a structured interview was used with clinical observation and the Battery of Quality of Life Assessment. The study was conducted twice: before and after eight weeks of rehabilitation.ResultsThe quality of life of people after brain injury is affected by self-service difficulties, difficulties in meeting the physiological needs and loss of psychophysical comfort, decreased mobility, impaired cognitive functions and executive and social functions. There is no consistency between the stated (subjective) level of quality of life of the patient, and the depth of objectively measured disability resulting from the injury sustained.ConclusionsA rehabilitation program controlled by a strategic plan, in collaboration with the patient treated subjectively is more effective in improving the quality of life, since the cooperating patient is more motivated to carry out individually designed goals. A rehabilitation program based on a strategic plan is worthy of recommendation for the treatment and improvement of patients after cranio-cerebral trauma.

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Health behavior in persons with spinal cord injury: development and initial validation of an outcome measure

Cited by 29 publications

References 17 publications

Care needs of persons with long-term spinal cord injury living at home in the Netherlands

Care needs of persons with long-term spinal cord injury living at home in the Netherlands

The influence of depression on physical complications in spinal cord injury: behavioral mechanisms and health-care implications

The quality of life of persons with TBI in the process of a Comprehensive Rehabilitation Program

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