Health Inequities Experienced by Aboriginal Children with Respiratory Conditions and Their Parents

Stewart, Miriam; King, Malcolm; Blood, Roxanne; Letourneau, Nicole; Masuda, Jeffrey R.; Anderson, Sharon; Bearskin, Lisa Bourque

doi:10.1177/084456211304500302

Cited by 15 publications

(44 citation statements)

References 35 publications

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“…Our Phase 1 and 2 results ( 15 ) indicated that Mi’kmaq children living with asthma relied on peer as well as parental support, which is consistent with asthma support strategies for children in general ( 20 ). Given this finding, Phase 3 professional participants recognized that, in addition to educating school staff, educating the entire student population was important for building awareness and support and because children tend to share what they learn at school with their family members at home.…”

Section: Discussionsupporting

confidence: 70%

Asthma Prevention and Management for Aboriginal People: Lessons From Mi’kmaq Communities, Unama’ki, Canada, 2012

et al. 2016

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BackgroundAsthma affects at least 10% of Aboriginal children (aged 11 or younger) in Canada, making it the second most common chronic disease suffered by this demographic group; yet asthma support strategies specific to Aboriginal peoples have only begun to be identified.Community ContextThis research builds on earlier phases of a recent study focused on identifying the support needs and intervention preferences of Aboriginal children with asthma and their parents or caregivers. Here, we seek to identify the implications of our initial findings for asthma programs, policies, and practices in an Aboriginal context and to determine strategies for implementing prevention programs in Aboriginal communities.MethodsFive focus groups were conducted with 22 recruited community health care professionals and school personnel in 5 Mi’kmaq communities in Unama’ki (Cape Breton), Nova Scotia, Canada, through a community-based participatory research design. Each focus group was first introduced to findings from a local “social support for asthma” intervention, and then the groups explored issues associated with implementing social support from their respective professional positions.OutcomeThematic analysis revealed 3 key areas of opportunity and challenges for implementing asthma prevention and management initiatives in Mi’kmaq communities in terms of 1) professional awareness, 2) local school issues, and 3) community health centers.InterpretationCulturally relevant support initiatives are feasible and effective community-driven ways of improving asthma support in Mi’kmaq communities; however, ongoing assistance from the local leadership (ie, chief and council), community health directors, and school administrators, in addition to partnerships with respiratory health service organizations, is needed.

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Section: Discussionsupporting

confidence: 70%

Asthma Prevention and Management for Aboriginal People: Lessons From Mi’kmaq Communities, Unama’ki, Canada, 2012

et al. 2016

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“…1 In the Northern Territory (NT), respiratory illness is the most frequent reason for hospitalisation of young children (<5 years) and preventable cause of death of Indigenous infants. 3,4 Health education is a key component in improving clinical outcomes. 3,4 Health education is a key component in improving clinical outcomes.…”

Section: Introductionmentioning

confidence: 99%

Culturally appropriate flipcharts improve the knowledge of common respiratory conditions among Northern Territory Indigenous families

McKay

Chang

Versteegh

et al. 2015

Health Prom J of Aust

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The use of culturally appropriate educational flipcharts improves the knowledge of respiratory conditions among carers of Indigenous children hospitalised with common serious respiratory illness. SO WHAT? In the first paediatric quantitative study on the use of flipcharts as a means of providing health education to Indigenous Australians, we have shown that the use of culturally-appropriate flipcharts is an effective method of providing health education.

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“…Another limitation of our study is that there is an important difference between access to care and utilization of care. We were not able to disentangle this issue, and previous research has suggested that, even in Ontario, there may be barriers to utilization of care for Aboriginal patients . Future research into utilization of pediatric oncology care among minority and marginalized populations in Canada is required.…”

Section: Discussionmentioning

confidence: 86%

“…We were not able to disentangle this issue, and previous research has suggested that, even in Ontario, there may be barriers to utilization of care for Aboriginal patients. 37,43 Future research into utilization of pediatric oncology care among minority and marginalized populations in Canada is required. Finally, our data set did not contain information regarding adherence to therapy.…”

Section: Discussionmentioning

confidence: 99%

Inferior survival among Aboriginal children with cancer in Ontario

Marjerrison

Pole

Sung

2014

Cancer

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BACKGROUND: Pediatric cancer distribution and outcomes have not been examined in Canadian Aboriginal children. The objective of this study was to describe the distribution, event-free survival, and overall survival of Aboriginal children with malignancies who reside in Ontario compared with non-Aboriginal children. METHODS: This population-based study included 10,520 Ontario children (aged <18 years) who were diagnosed with cancer between 1985 and 2011. Patients were identified from the Pediatric Oncology Group of Ontario Networked Information System database. Aboriginal children were identified by self-reported ethnicity or postal code on a Native reserve at diagnosis. Descriptive statistics of the patients were presented and compared using the Fisher exact test. Event-free and overall survival probabilities were calculated for Aboriginal and non-Aboriginal children, described using Kaplan-Meier curves, and compared using log-rank tests. RESULTS: In total, 65 Aboriginal children and 10,364 non-Aboriginal children with malignancy were identified. The distribution of malignancy type was similar between the 2 groups. There were no significant differences in baseline characteristics, presence of metastatic disease, or treatment approach (clinical trial, standard of care, or individualized protocol) between the groups. The 5e-year event-free survival rate (6 standard error) was 56.3% 6 6.2% among Aboriginal children versus 72.8% 6 0.4% among non-Aboriginal children (P 5.0042), and the 5-year overall survival rate was 64% 6 6.0% versus 79.3 6 0.4% (P 5.0017), respectively. The cause of death did not vary according to Aboriginal ethnicity. CONCLUSIONS: Survival was significantly inferior among Aboriginal children who had cancer compared with non-Aboriginal children who had cancer in Ontario. Future studies are required to define the etiology of this disparity, evaluate the issue nationally, and create interventions to improve outcomes for Aboriginal children. Cancer 2014;120:2751-9.

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Health Inequities Experienced by Aboriginal Children with Respiratory Conditions and Their Parents

Cited by 15 publications

References 35 publications

Asthma Prevention and Management for Aboriginal People: Lessons From Mi’kmaq Communities, Unama’ki, Canada, 2012

Asthma Prevention and Management for Aboriginal People: Lessons From Mi’kmaq Communities, Unama’ki, Canada, 2012

Culturally appropriate flipcharts improve the knowledge of common respiratory conditions among Northern Territory Indigenous families

Inferior survival among Aboriginal children with cancer in Ontario

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