Health related quality of life survey about children and adolescents with juvenile idiopathic arthritis

Brasil, Tatiana Braga; Ferriani, Virgínia Paes Leme; Machado, C. R.

doi:10.2223/jped.939

Cited by 7 publications

(6 citation statements)

References 8 publications

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“…Many studies use proxy reporting (14,25,26), whereas other studies have shown that self-reporting appears to be more reliable (20,27) for evaluating HRQOL. Different HRQOL questionnaires, both generic and disease specific, have been used for children with JIA.…”

Section: Introductionmentioning

confidence: 99%

Predictors of health‐related quality of life in children and adolescents with juvenile idiopathic arthritis: Results from a web‐based survey

Haverman¹,

Grootenhuis²,

M³

et al. 2012

Arthritis Care & Research

115

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Objective. Children with juvenile idiopathic arthritis (JIA) experience functional impairment due to joint manifestations of the disease. The aim of our present study was to assess health-related quality of life (HRQOL) and its predictors in a group of children and adolescents with JIA. Methods. The study sample includes all JIA patients (ages 6 -18 years) who consulted a pediatric rheumatologist in Amsterdam, The Netherlands, between February 2009 and March 2010. HRQOL was measured using the Paediatric Quality of Life Inventory 4.0 (ages 6 -18 years). Functional ability was measured using the Childhood Health Assessment Questionnaire, and medical and sociodemographic parameters were assessed. The study sample was compared to a Dutch youth norm population including children with other chronic health conditions. The proportion of children with JIA with an impaired HRQOL (<1 SD) was evaluated and multivariate regression analyses were performed to predict HRQOL outcome. Results. Of the eligible patients, 64.1% (n ‫؍‬ 152) participated. Both children (ages 6 -12 years) and adolescents (ages 13-18 years) with JIA reported a significantly lower HRQOL in almost all domains compared to either healthy controls or children with other chronic health conditions. Approximately half of the children with JIA showed an impaired HRQOL. The main predictors of HRQOL were functional ability, pain, subjective burden of medication use, and school absence. Conclusion. The HRQOL is severely affected in children and adolescents with JIA. These findings underline the necessity to systematically monitor HRQOL in daily clinical practice.

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Section: Introductionmentioning

confidence: 99%

Predictors of health‐related quality of life in children and adolescents with juvenile idiopathic arthritis: Results from a web‐based survey

Haverman¹,

Grootenhuis²,

M³

et al. 2012

Arthritis Care & Research

115

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“…También se puede evaluar la capacidad funcional y calidad vida; para ello el más utilizado y validado de manera internacional es el CHAQ (Chilhood Health Assesment Questionnaire) de fácil aplicación adaptado y validado en niños de habla hispana, y comprende la evaluación de aspectos físicos: incluyendo el deterioro de funciones, los síntomas y el dolor causado por la enfermedad o por su tratamiento; aspectos psicológicos: cubriendo un amplio rango de estados emocionales y funciones cognitivas e intelectuales; y aspectos sociales: haciendo hincapié en el aislamiento social y en la autoestima asociados al papel social 12,13 .…”

Section: Introductionunclassified

Vitamin D levels and its association with disease activity and quality of life in patients with juvenile idiopathic arthritis from ISSEMYM Toluca Maternal Children‘s Hospital

Mendieta-Zerón

Ruiz-González

Saro

2019

Rev. parag. reumatol

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Introducción: La Artritis Idiopática Juvenil (AIJ) es una de las enfermedades crónicas inflamatorias más comunes en la edad pediátrica; se sabe que la vitamina D tiene un efecto directo sobre la salud del hueso y músculo y en la última década se han encontrado funciones sobre la respuesta inmune e inflamación. El objetivo de este trabajo es determinar si existe una asociación entre los niveles de vitamina D y la actividad de la enfermedad y calidad de vida de los pacientes con AIJ. Material y Métodos: Estudio de cohorte, observacional y analítico en donde, previa aprobación por el comité de ética en Investigación del Hospital, se determinaron niveles de vitamina D, al mismo tiempo se aplicaron test CHAQ y JADAS71, en pacientes con diagnóstico de AIJ, en la consulta de Reumatología Pediátrica, se recolectó información de 28 pacientes con diagnóstico de AIJ. Resultados: Se encontró una media de niveles de vitamina D de 21.53 ng/mL (+/-7.04 ng/ mL) con un mínimo de 6.9 ng/mL y una máximo de 38.9 ng/mL. Los resultados obtenidos para calidad de vida evaluada a través del Cuestionario CHAQ reportaron que un 30.8% cursa con limitación nula, el 30.8% limitación leve, 26.9% limitación moderada y 11.5% de limitación grave. Al utilizar el test JADAS para valorar actividad de la enfermedad, un 42.3% de pacientes cuentan con enfermedad inactiva; 7.7% con baja actividad, un 26.9% con actividad moderada y 23.1% con actividad alta. Conclusión: En la población estudiada se encontró a la población en rangos de insuficiencia de vitamina D, sin embargo, no se encontró una relación entre estos niveles con la actividad de la enfermedad y calidad de vida de los de los pacientes con AIJ.

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“…Thus, every child has the right to a good quality of life and to have their needs met. However, it is emphasized that the quality of living standards are often not respected, hence the importance of the evaluation of the child's QOL, especially the ones that have an associated pathology [4,5].…”

Section: Introductionmentioning

confidence: 99%

Quality Of Life Assessment In Children With Cerebral Palsy

Frota¹,

Vasconcelos²,

Moreno-Valdés³

et al. 2016

Int Arch Med

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Objectives: Evaluate the QoL of children with CP followed at Núcleo de Tratamento e Estimulação Precoce, in Fortaleza, Ceará, Brazil; identify the most affected domains of the Pediatric Quality of Life Inventory. Methods: This was a cross-sectional, of which target population consisted of parents of children with CP (N = 62). Data collection was carried out by applying the socioeconomic questionnaire and the Health-related Quality of Life tool-HRQoL-PedsQL version 4.0, module applied to parents. Data analysis was performed with SPSS statistical software, version 23.0. Results: The results after transformation of scores into a scale of 0 to 100 in PedsQL, the data showed statistical difference between QOL domains except for physical capacity and social aspect and in descending order of impairment, the domains were related to school activity, the emotional aspect, physical capacity and the social aspect. Conclusions: Given the above, to attain improvement in QoL indicators, it is reasonable to propose interdisciplinary intervention among healthcare professionals in order to develop improved strategies aiming to promote early integration of children with CP in schools, to obtain significant results.

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Health related quality of life survey about children and adolescents with juvenile idiopathic arthritis

Cited by 7 publications

References 8 publications

Predictors of health‐related quality of life in children and adolescents with juvenile idiopathic arthritis: Results from a web‐based survey

Predictors of health‐related quality of life in children and adolescents with juvenile idiopathic arthritis: Results from a web‐based survey

Vitamin D levels and its association with disease activity and quality of life in patients with juvenile idiopathic arthritis from ISSEMYM Toluca Maternal Children‘s Hospital

Quality Of Life Assessment In Children With Cerebral Palsy

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