Health related quality of life in children with thalassaemia assessed on the basis of SF-20 questionnaire in Yazd, Iran: a case-control study

Baghianimoghadam, Mohammad Hossein; Sharifirad, Gholamreza; Rahaei, Zohreh; Baghianimoghadam, Behnam; Heshmati, Hashem

doi:10.21101/cejph.a3640

Cited by 34 publications

(24 citation statements)

References 19 publications

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“…The results indicated that the age group (10)(11)(12)(13)(14)(15)(16)(17)(18)(19) was the most frequent group in males and females (40%) compared to the age groups 1-9 and >20 years (38% and 22%), respectively, in Fig. 3.…”

Section: Resultsmentioning

confidence: 96%

The Correlation Between Thalassemia With Body Mass Index and Blood Groups in Children and Adult Patient in the Province of Babylon, Iraq

Hammod

Mokif

Al-Harbi

2018

Asian J Pharm Clin Res

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Objective: This study aimed to evaluate the relationship between thalassemia disease and body mass index (BMI) and the correlation with blood group of thalassemia patients.Methods: The study includes 260 persons (male+female), 200 persons were thalassemia patient (120 male and 80 female), and 60 healthy persons (30 male and 30 female) as control group; furthermore, people were divided into three group according to age 1–9, 10–19, and >20 years, and BMI and blood group were measured for all patients and healthy people.Results: The results showed that the frequency of thalassemia in male (65%) is higher than in female (40%); as well as, the results showed that the age group (10–19) years is more frequent in male, while in female, the age group (1–9) years is more frequent. The results of BMI revealed a significant decrease (p<0.05) in all groups of thalassemia patients compared with healthy group; as well as, the results of blood group showed that the group (O+) is the more frequent 34% in comparison with the other blood groups.Conclusion: We conclude that there was a strong relationship among gender, blood group (the most common blood group observed is O +ve), and BMI with thalassemia.

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Section: Resultsmentioning

confidence: 96%

The Correlation Between Thalassemia With Body Mass Index and Blood Groups in Children and Adult Patient in the Province of Babylon, Iraq

Hammod

Mokif

Al-Harbi

2018

Asian J Pharm Clin Res

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“…Moreover, parents of children with thalassemia feel anger, shock and guilt. In addition, social attitudes, stigmas and discriminations toward chronic patients, which are often rooted in inadequate information about the disease and are considered among other problems facing the families, are more harmful or more destructive than the disease itself 12. Accordingly, misconceptions and negative attitudes of parents toward their child’s disease, which is often caused by lack of knowledge, could endanger their public health.…”

Section: Introductionmentioning

confidence: 99%

Lived experiences of Iranian parents of beta-thalassemia children

Aziz

Firouzkouhi

Ghalgaie

2017

JMDH

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IntroductionThalassemia is a chronic blood disease, which imposes adverse effects on patients and their families. Parents of such patients, given that they had the thalassemia trait, hold themselves responsible for their children’s disease in addition to other difficulties, bear the burden of guilt and hopelessness and worry about the health and future of their children. This study aimed to explore the lived experiences of parents of children with thalassemia.MethodsThe present research was conducted using a descriptive phenomenological approach. A purposive sampling was carried out until data saturation. Participants included 15 parents of children with thalassemia who were referred to the Thalassemia Center of Zabol to perform therapeutic procedures for their child in 2016.ResultsExtracted interviews were analyzed employing Colaizzi’s method, and four main themes were obtained, including “Gray marriage consanguinity”, “Burdened with increased number of thalassemia children”, “Socio-familial worries” and “Inexpressible wishes for having an ideal society”.ConclusionThe results revealed that parents of children with thalassemia experience a wide range of problems in different aspects, such as physical, emotional, mental, social, economic and familial dimensions. Their experiences are valuable and can help in achieving a better understanding of their problems, which in turn can enable the members of the treatment team to play a more active role and the society to have a better understanding of this disease.

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“…Furthermore, β-thalassemia is a major health problem worldwide and is more prevalent in some parts of Africa, Middle East region, the Indian Sub-continent, South-East Asia, and Melanesia as well as the Pacific Islands (Majid & Abidi, 2013;Baghianimoghadam et al, 2011). Iran is located on the "Thalassemia Belt" in the Eastern Mediterranean region of World Health Organization (WHO).…”

Section: Introductionmentioning

confidence: 99%

Caregiver Burden and Social Support in Mothers with β-Thalassemia Children

Mashayekhi¹,

Jozdani²,

Chamak³

et al. 2016

GJHS

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Background: In our knowledge, there was no available information on social support and caregiver's burden among parents of thalassemic children. Aim:To examine caregiver's burden and social support in mothers of thalassemic children, this study was conducted. Methods:This cross-sectional study was conducted from July to October 2013 in Jiroft Thalassemic Center (JTC) in southeast of Iran. To assess the caregiver's burden and social support, caregiver burden scale and Norbeck social support questionnaire was used respectively. Results:There was a response rate of 98% (160 out of 163 mothers were participated). Generally, 51.5% and 49.5% of mothers reported low and high level of social support, respectively. In term of caregiver's burden, 20%, 29% and 51% of mothers reported high, moderate and low level of burden, respectively. There was no significant correlation between mean score of caregiver's burden and mean score of social support. Conclusion:Our study showed that social support of Iranian mothers with thalassemic children is low. In addition, caregiver's burden among this group of mothers is high. Further research is recommended to prepare more evidence in this regard.

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Health related quality of life in children with thalassaemia assessed on the basis of SF-20 questionnaire in Yazd, Iran: a case-control study

Cited by 34 publications

References 19 publications

The Correlation Between Thalassemia With Body Mass Index and Blood Groups in Children and Adult Patient in the Province of Babylon, Iraq

The Correlation Between Thalassemia With Body Mass Index and Blood Groups in Children and Adult Patient in the Province of Babylon, Iraq

Lived experiences of Iranian parents of beta-thalassemia children

Caregiver Burden and Social Support in Mothers with β-Thalassemia Children

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